Announcement

Collapse
No announcement yet.

Two years healing, remission for five years now, what worked for me.

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • #16
    Re: Two years healing, remission for five years now, what worked for me.

    Originally posted by purpletomorrow View Post
    One other drug helped me a lot. Remeron, also known as mirtazapine. It's a trycyclic antidepressant that tamps down nerve pain. It helped me sleep at night. Highly recommend, a very good drug for me, and one that I reacted really well to.
    I was really helped by this on my first round of IC. In fact I'm pretty sure that's what finally pushed me into remission. I was following the diet and doing all the other things you're supposed to do, but nothing really moved the needle towards complete remission until I went on Remeron. It's too bad it makes you a hungry hungry hippo but that's from the antihistamine properties, which messed up bladders usually love. So you kind of have to decide which is worse...the misery of maybe gaining some weight vs. the misery your bladder is causing.

    Am about to give it another shot; would love to hear more input/experiences on Mirtazapine.
    Diagnosed with IC in 2005, PFD in 2016. My sister has had IC for 21 years and our mother over 30. 66 years of bladder fun combined!

    Comment


    • #17
      Re: Two years healing, remission for five years now, what worked for me.

      Thank you for all the tips

      Comment


      • #18
        Re: Two years healing, remission for five years now, what worked for me.

        Hi Laura,
        Im planning to try the cystoprotek and desert aloe. Any tips when is the best time to take them? How much to take? Thank you and Im happy for you having a relief from this nasty condition.

        Comment


        • #19
          Re: Two years healing, remission for five years now, what worked for me.

          Of course only try one at a time-so you can tell if it is helping. The DH Aloe site tells you everything you need to know about starting it. I imagine that Cystoprotect offers the same information online too.

          Comment


          • #20
            Re: Two years healing, remission for five years now, what worked for me.

            Tral914, your inbox is full and I cant send you any more massages.

            Comment


            • #21
              Your story is almost exactly my experience. I've pretty much been in remission for 4 years with an occasional mild irritation and I take baking soda with water once and it goes away. I am still taking Cystoprotek, a prelief if I have coffee and hydroxyzine at night. Are you still taking any meds as a maintenance routine or were you able to stop. Many thanks

              Comment


              • #22
                Originally posted by smurph99 View Post
                Your story is almost exactly my experience. I've pretty much been in remission for 4 years with an occasional mild irritation and I take baking soda with water once and it goes away. I am still taking Cystoprotek, a prelief if I have coffee and hydroxyzine at night. Are you still taking any meds as a maintenance routine or were you able to stop. Many thanks
                This is a pretty old thread so you may not see a response from the individual, but I'm sure others will respond.

                And ... I'd like to say to the IC Network.


                Donna
                Stay safe


                Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                Have you checked the ICN Shop?
                Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                Patient Help: http://www.ic-network.com/patientlinks.html

                Sub-types https://www.ic-network.com/five-pote...markably-well/

                Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                [3MG]

                Anyone who says something is foolproof hasn't met a determined fool

                Comment

                Working...
                X