hi yall.
i'm in a flare that doesn't seem to have an end in sight. i don't have a lot of pain just extreme urgency and it's driving me wild.
how long does your flare usually last?
i think this is my longest one. prior to getting on proper meds i felt bad everyday but somehow learned to train my bladder and was able to hold the frequency urges for longer periods of time. but this time it's sooo hard. i've resorted to wearing oxytrol bladder patches that you can get at a drugstore and they help a lot but 1 patch only lasts for 4 days and there's like 8 patches in one pack and it's expensive as all hell and i'm so tired. every time i take the patch off my urgency comes back wild. before, my bladder would at least show signs of progress in healing but this flare has not budged. i haven't been well on the diet but i am starting tonight. i've downloaded the IC diet app and am trying to familiarize myself with friendly foods. when my medication works - it works so well that nothing irritates me so it's always hard for me to stay on an IC diet. i'm kicking myself so hard right now for not being more diligent and having more self control with the foods i eat. i feel like i did when i first had IC symptoms and my life was in turmoil. except this time i have meds to help me and they aren't.
what other options are there for me? besides elmiron and elavil. i'm on elmiron 3 times a day. i only take elavil 10mg as needed, but this time it's not doing much but giving me anxiety. i'm on glucosamine supplement which works like magic usually, but not now. i started taking an antihistamine again and i'm also taking 2 desert harvest aloe pills for a week now. tried to take 4 but it increased my urgency? weird. i know you can get meds instilled into the bladder but that seems so invasive and i'm afraid of having my urethra spasm after and make things worse.
god, i wouldn't wish this disease on my worst enemy. seriously. any help, advice would be so appreciated. thanks guys.
i'm in a flare that doesn't seem to have an end in sight. i don't have a lot of pain just extreme urgency and it's driving me wild.
how long does your flare usually last?
i think this is my longest one. prior to getting on proper meds i felt bad everyday but somehow learned to train my bladder and was able to hold the frequency urges for longer periods of time. but this time it's sooo hard. i've resorted to wearing oxytrol bladder patches that you can get at a drugstore and they help a lot but 1 patch only lasts for 4 days and there's like 8 patches in one pack and it's expensive as all hell and i'm so tired. every time i take the patch off my urgency comes back wild. before, my bladder would at least show signs of progress in healing but this flare has not budged. i haven't been well on the diet but i am starting tonight. i've downloaded the IC diet app and am trying to familiarize myself with friendly foods. when my medication works - it works so well that nothing irritates me so it's always hard for me to stay on an IC diet. i'm kicking myself so hard right now for not being more diligent and having more self control with the foods i eat. i feel like i did when i first had IC symptoms and my life was in turmoil. except this time i have meds to help me and they aren't.
what other options are there for me? besides elmiron and elavil. i'm on elmiron 3 times a day. i only take elavil 10mg as needed, but this time it's not doing much but giving me anxiety. i'm on glucosamine supplement which works like magic usually, but not now. i started taking an antihistamine again and i'm also taking 2 desert harvest aloe pills for a week now. tried to take 4 but it increased my urgency? weird. i know you can get meds instilled into the bladder but that seems so invasive and i'm afraid of having my urethra spasm after and make things worse.
god, i wouldn't wish this disease on my worst enemy. seriously. any help, advice would be so appreciated. thanks guys.
Comment