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  • New to IC

    Hello,
    I'm relatively new to this whole IC thing, my GP has said I have IC and has done testing to rule out other conditions, so now I'm just waiting to get an appointment with the urologist to confirm. I first started having symptoms back in October and it's gotten progressively worse from there, being in university it's been difficult to sit through labs, lectures, and transit rides. For a while I was told that it was just my anxiety, and I started having panic attacks for fear of peeing myself in public, and now I can't seem to get that fear out of my head and it's stopping me from leaving the house, working, and seeing friends, and I'm not sure whether or not I'll return to university in the fall even though I'd like to as I had hoped to become a veterinarian. So I have a question: how common is it to experience incontinence with IC? I could deal with the pain and sensations if I was fairly confident I wouldn't pee myself, and I never have peed myself, but it's come to the point where I wear Poise pads everywhere I go and dehydrate myself before leaving the house just in case. Has anyone else here experienced similar anxiety?
    I also have a long history of food sensitivity and did some IgG food testing at one point that said I was sensitive to pretty much everything, interestingly the results of that heavily overlap with the IC diet. Since I have a small family history of salicylate sensitivity I'm now trying an elimination diet to remove most salicylates and oxalates from my diet (it's next to impossible to remove all of both) as well as continuing to avoid dairy and gluten and eggs, so I hope that will help, and it does seem to have reduced my pain from moderate to mild already.
    If anyone else here is young enough (I'm 20) to have experience dealing with this condition in university, what has helped you get through classes and the social scene there?
    Also, I'm super happy I found this site, it's a wealth of information on IC that doesn't seem to exist anywhere else and it's a tremendous help.

  • #2
    I became accustomed to using panty liners when I was taking meds that stained my underpants and have never stopped using them.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      New to ICN
      I have OAB and probably a bladder nerve damage. So in June 2019, I am going for a botox to help me relax my bladder muscles. I have had this problem for a long long time. But it became exacerbated when I reached menopause.

      Drink more water

      My doctor didn't inform me that foods can cause inflammation. I didn't know what was going on with my bladder until I Googled it and found that food was the main culprit. So I had to cut out a lot of ingredients and my go-to list is the IC Foodlist. https://www.ic-network.com/downloads/2012icnfoodlist.pdf

      I hope this list be updated as there are foods that need to be added.

      But it is important that you consume at lease six pint glasses of water a day. I drink at least 4 pint glasses in the morning (to flush my bladder) and at 3pm and 5 pm. On May 30th 2019, I had a very bad episode where I had to go to the emergency room to be treated. The pressure in my urethra area kept me awake for hours. The doctor told me I was dehydrated and must drink more water. I told her that my fear was if I drank more water, I would be sitting on the royal throne all night.

      But that didn't happen, for the first time in months, I did not wake up at 4am but slept right through. What a relief it was!

      Food Flares

      I had to change my cooking methods and not incorporate ingredients that would cause inflammation to my bladder. Even black pepper had to be chopped out!

      Umah

      Comment


      • #4
        Umah! Glad you found us.

        I'm glad the food list is helping you. It's not 100% for 100% of ICers, but is a real help in developing individual diet plans. There may be some foods that are safe for MOST ICers, but not all --- and some listed as a problem than can be tolerated by SOME ICers. The list is always being reviewed so it will be as accurate as possible for all of us.

        My daily water goal is six cups --- that seems to work well for me. If I drink more than that, it increases frequency, if I drink less, my urine becomes concentrated and irritating.

        I'm so glad this site is helping you.

        Warm hugs,
        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment

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