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  • Frustration with elimination

    Hi everyone,

    First I want to say I am so grateful this forum exists.

    I am 23 years old, type 1 diabetic.

    I went through several months of frustration with what I thought was UTI symptoms, but no positive culture. The pain was so severe and persistent. I was lucky to be referred to a urologist who introduced me to IC. After talking with her I immediately cut out every food on the list and found relief after just a few days.

    ​​​​​After a couple weeks, and reading through different people's experiences on this forum I decided to start reintroducing different foods to see if I could figure out what was causing my pain.

    I started with some of the lower items on the list like spicy foods. After no flare ups I tried citrus ( ie tomatoes, lemons etc,) alcohol and finally tried diet coke and coffee. I've consumed these things several times now and still no pain or other symptoms.

    After several more months and basically quitting the diet all together, I'm starting to question whether I really have IC or if it was something else giving me grief.

    I know I should be grateful I am no longer in pain, but I still feel a lot of anxiety wondering if I have IC or not.

    I was really convinced I have it because after speaking with the urologist and cutting out all the things she recommended I felt immediately relief. The symptoms she described were very similar to what I was feeling as well. But since then I've tried every food on the list and haven't found out what I'm sensitive too.

    I guess my question is, is it possible to have IC and not necessarily feel pain every time I consume something I'm sensitive to? Could it be that I am still in the early stages and not as sensitive as some more veteran IC patients are? From what I've read on the forums I am lead to believe differently, but l know that every one can be different.
    ​​​​​​

    I haven't had any issues after intercourse or exercising either.

    Any advice that you can give me would be appreciated. I am a very anxious person and not knowing is killing me.
    Last edited by cmarie14; 05-15-2021, 03:10 AM.

  • #2
    First of all, I'd like to say to the IC Network.

    Not all ICers have the same food and drink sensitivities. The diet list on this site was developed with input from thousands of IC patients so, while it's not 100% for all of us, it's an excellent starting point --- and for some of us, it's 100%. And there are some people with IC who don't feel they are diet sensitive.

    If you continue to feel good without diet restrictions, it's possible that you don't have IC. If the symptoms return, you will know what's wrong and can avoid the sometimes frustrating diagnosis process.

    Since the diet seemed to help significantly, you may find that if you stop following it, after a few weeks, or months, your symptoms may return. I wish I had a definite answer for you. Let's just hope that you don't have it.


    Donna

    Stay safe


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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

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