Possible IC - hydro

[KathyZ]

I found your site and wondered if any of you out there could help. This site seems like such a good one. My uro suggested I get a hydrodistension to rule out IC. However, I have fibromyalgia, and I wondered if any fibromyalgiacs out there could run down their experiece with this procedure. One of the uros I saw said he often does this without anesthesia. Is this common? Anyway, if anybody with fibro is out there, or if anybody wants to give me info, I sure would appreciate it. I void about 8 times in a 24 hour period, and do not get up in the night to urinate. I have tense pelvic muscles
and bladder pain off and on. No pain when I go, just pain about ten minutes after.
Thank you in advance KathyZ

[SandyRN]

Hi Kathy,

to the board. I have fibro along with a whole host of other diseases and problems. I had my cysto/hydro under anesthesia in the hospital OR and I really would not suggest being awake for the procedure. The only real problem I faced after the procedure was that I was extremely sore and in pain from them moving me around on that OR table. After I was asleep they put my feet up in stirrups, and it felt like I'd been twisted like a pretzel. I had some bladder pain afterward too, but it was manageable with pain meds. I am thinking about having another one done soon because I did eventually get some relief of my symptoms from the hydro.

If you haven't checked it out yet, take a look at the patient handbook, the link is a the top of this page. You might look at the diet section and see if changing your diet helps to alleviate your pain.

I'm glad you found us..this is a great place with lost of friendly, and knowlegeable people!

Sandy

[Sarojini]

I definitely recommend having this done under either spinal or general anesthesia -- you will likely find it quite painful otherwise.

I also have fibromyalgia, and afterwards, I was sore all over for a few days. That was partially from the fibro and partially from the particular paralytic drug (paralytics are used to make intubation possible and to keep you still during the procedure) that was used. If they use succinylcholine, you are more likely to be sore because of the mechanism of action of that drug.

As for bladder pain, mine was kept under good control with pain medication, but I did have some for about 48 hours after the procedure.

You may also want to ask your doctor about pelvic floor dysfunction, or PFD. You'll find information about this all over this site, and there is a special forum devoted to it (just scroll down on the main forums index 'til you find it). The tight pelvic muscles you're talking about sound an awful lot like PFD -- I have that too, so I know it can get pretty darn painful!!

[jen48446]

My uro tried getting me to do this in the office too, I was like over my dead body!!! He took a step back & said okay we'll schedule your outpatient procedure. I've heard of too many horror stories from others being forced or talked into this & the pain they experience it's horrible.

I had the Hydro & Cysto do get my diagnosis. Hope this helps

[L. Thomas]

I have never had hydro. I think all of the post I have read have had outpatient testing, not in the office. Cysto is done in the office and I had no problems with that test.

[Georgia L]

I have fibro and IC. I would not have the hydro done without general anethesia. It caused me pretty bad bladder spasms and the general pain from being handled during surgery and Sandi and Jen mentioned.
It can be helpful to have the hydro done.
Prayerfully,
Georgia