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  • #1

    Does OAB cause pain?

    I'm pretty sure it doesn't. I won't see a uro until next week but my gyn keeps trying to say this is OAB and when asked point blank if OAB causes pain he said "sometimes". Everything I've read about it makes no mention of pain and I get significant pain requiring codeine.

    A urogyn w/ a bad personality diagnosed me with PBS which she said if it went on it would be called IC and after reading up here and elsewhere I'm pretty sure that's what I've got. Just wondering if there's any truth to what he said.

    He tried me on Vesicare which did nothing. He thinks I should have botox injections next! I hardly think that's my next step!! Any thoughts?

    He did my cysto and said there are no signs of IC because my bladder looked white and smooth w/ no signs of redness or inflammation. Does that make any sense? He said he "stretched" it which should be the hydrodistention we agreed he'd do. I'm under the impression that you don't have to have glomerulations or Hunner's ulcers for a PBS diagnosis, is that correct?

    Ob/gyn's shouldn't play uro's I think!

    Maybe I just shouldn't listen to him LOL
    I'm sorry if I lost track and asked this before, just came home from gyn appt. and wanting to understand.

    Thanks for any info.
    Holly
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    • #2
      If the cystoscopy you had was done in the doctor's office, it would probably not diagnose IC. When I had my cysto during the "rule out" part of diagnostic testing, my bladder appeared to be completely healthy and normal. However, when it was over-distended (hydrodistention) under anesthesia, the interstitial cystitis became visible --- and the Hunner's ulcers were seen.

      I think it would be a good idea to see a urologist.

      Warm healing thoughts,
      Donna

      P.S. I haven't done a lot of research on overactive bladder, but I do think that feeling of extreme urgency would be uncomfortable, if not painful.
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

        Comment

        • #3
          Donna ,I have a question for you, My uro just did a cysto to rule out hunners.I was in the understanding that hunners would only show up in a hydro, he said no they will show up in a cysto? Is this correct , I belived they would only most likely show up in a hydro.What do you think? Hugs Sandra
          "Never Give Up."

          To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/7769467@N03/

          My Photobucket Link:
          http://s237.photobucket.com/albums/f...ramack_photos/

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            • #4
              I can answer that... no, the Hunner's won't necessarily show up in a regular cysto. In fact, I'd dare to say probably 90% of the time, a hydrodistention is required to see them. Same goes for glomerulations. It takes a very, very severe case of IC to show up without distention, and very very few people have it that badly.

              IC does a good job of "hiding" from a regular in-office cysto.

              Holly -- I agree with Donna. It's probably a good idea to get a referral to a true urologist at this point, preferably one that deals with women's urological issues or even specializes in IC.
              ****
              Jen

              *Diagnosed with severe IC in 2004
              *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
              *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
              *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

              **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                Comment

                • #5
                  Hey Jen thanks, I had hunners when i was 1st Dio, Had my last hydro 2 years ago. But my pain levels have been real bad . He was judgeing me having another hydro by my cysto, I think to prove him wrong as well I will have to cave in a have another hydro, As soon as my classes are up I think I will request it. Any more advise would be great ,Thanks Sandra
                  "Never Give Up."

                  To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/7769467@N03/

                  My Photobucket Link:
                  http://s237.photobucket.com/albums/f...ramack_photos/

                    Comment

                    • #6
                      I have a question on hydro distention. maybe I already know the answer. What does a normal bladder look like with distention? I have had a cysto which showed inflamation. I am considering a hydro for the possible theraputic (sorry spelling) affect.

                      Holly, my 1st dx was OAB I thought the same thing, researched OAB NEVER any mention of pain! Find a urologist. Good Luck!
                      mom to 3 wonderful kids


                      IC symptoms 7/03,
                      hysterectomy 11/04,
                      prolapse cervix 7/07
                      diagnosed: IC 2007
                      IBS 2008

                        Comment

                        • #7
                          Originally posted by ICNDonna
                          If the cystoscopy you had was done in the doctor's office, it would probably not diagnose IC. When I had my cysto during the "rule out" part of diagnostic testing, my bladder appeared to be completely healthy and normal. However, when it was over-distended (hydrodistention) under anesthesia, the interstitial cystitis became visible --- and the Hunner's ulcers were seen.

                          I think it would be a good idea to see a urologist.

                          Warm healing thoughts,
                          Donna

                          P.S. I haven't done a lot of research on overactive bladder, but I do think that feeling of extreme urgency would be uncomfortable, if not painful.
                          Hi Donna,
                          It was done under anesthetic in hospital. And he did a hydrodistention. I've had an appt. scheduled w/ a uro but it's so far off it's crazy. I've since gotten a good recommendation to another one on this board and will have that next week.

                          I have no urgency, I never have to rush to the bathroom, it's just painful if I have to do any waiting but I can wait w/out any problems of the incontinence type.

                          From my reading I'm under the impression that you can have IC or PBS without the classical presentation of glomerulations and ulcers. Would you all agree with that? From what I read on this site, those presentations were set up for research/clinical purposes only and were never meant to be used as criteria for diagnosing the disease. I'm under the impression that in the absense of any other pathology to the bladder or relating structures, with these symptoms they call it PBS/IC.

                          Please tell me someone if I have that wrong. Thanks:-)
                          Holly

                            Comment

                            • #8
                              You are correct in saying that there are somek people who have IC and don't have the "classical" pinpoint bleeding on hydrodistention. I know of at least one other person who was diagnosed by having a potassium sensitivity test after the had passed the hydro test with flying colors. The PST proves that she does indeed have IC.

                              Donna
                              Stay safe


                              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                              Have you checked the ICN Shop?
                              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                              Patient Help: http://www.ic-network.com/patientlinks.html

                              Sub-types https://www.ic-network.com/five-pote...markably-well/

                              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                               [3MG]

                              Anyone who says something is foolproof hasn't met a determined fool

                                Comment

                                • #9
                                  Originally posted by ICNDonna
                                  You are correct in saying that there are somek people who have IC and don't have the "classical" pinpoint bleeding on hydrodistention. I know of at least one other person who was diagnosed by having a potassium sensitivity test after the had passed the hydro test with flying colors. The PST proves that she does indeed have IC.

                                  Donna
                                  Okay, thanks:-)

                                    Comment

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