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Please help....anyone else have hip pain?

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  • Please help....anyone else have hip pain?

    I was diagnosed last month with IC and am taking elmiron and going for DMSO treatments once a week. It seems to be helping a litle for urgency but my biggest problem is hip pain. I have been going to the doc for over a year for the hip pain and stumbled upon the IC. I had my left ovary removed and a cystosopy at the same time. 3 1/2 yrs ago I had a vaginal hysterectomy due to pelvic organ prolapse. I had a rectocele and cytoscele. And it took a year to diagnose that too because the pain I felt was all in my hips and legs! My urologist doesn't seem to think the IC is the cause of the hip pain but I have had ultra sounds, MRI, Cat Scan, etc. I go to a Chiropractor 3 times a week. I've seen an orthopedist had nerve testing and still nothing. I am miserable and am wondering if anyone else experiences this hip/groin pain? If so what do you do to relieve it? I use a heating pad on my back/hip/pelvic region regularly which seems to help but only temporarily. Can anyone relate? Thanks! I hate to sound so desperate but that's how I feel.

  • #2
    I get hip pain, and also back pain -- the pain from IC can pretty much be anywhere. Although I take narcotic painkillers when the bladder is bad, the best thing I've found for hip/back pain is lidoderm -- lidocaine transdermal patch. It''s prescription only, so you have to talk to your doctor again about this.

    Ordinarily I'd feel obliged to add the caveat "There are many causes of hip pain and you should see a doctor to rule them out before concluding that the IC is the cause blah blah blah, but it sounds like you've done that already.

    I love my heating pad, but some people find ice more effective. You might want to give it a tryl
    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
    Wishing you happiness and good health, and all the best out of life.

    Peace, Carolyn

    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007

    On the Beach with IC


    • #3
      I do have hip pain as well...

      I have pain in my right hip. Never had nerve testing so to speak; however, my Dr feels that my ilioinguinal nerve is to blame. Therefore, once every six months or so I go for an ilioinguinal trigger point injection. When I first had the injections, they were every 2-3 weeks for a few months. Now I don't have to have them as often. He believes the nerve was damaged in one of my c-sections and thus aggravates me now. When it hurts, it gets worse with movement and gets to where I don't even want to walk anymore. My upper right leg becomes stiff and sore. It's a real downer as when I try to lose weight/exercise, it rares its ugly head...making it impossible to do something as simple as walking without horrible pain.

      If I may, here's a link to my physician (Dr C. Paul Perry) and his site has some excellent information on it

      Good luck!


      • #4
        I get hip pain too, in my right hip especially. When I was seeing a physical therapist for the pelvic floor dysfunction that is associated with my IC, she noted that my sacrum (very low spine, basically in the butt) is not aligned properly and that likely puts stress on my hip. She said it is likely from years of muscle guarding against IC pain and urgency (I began having symptoms at 8 years old, and am now 32)... she also said the sacrum could be being pulled out of place by tight pelvic muscles as well.

        She gave me stretches and exercises to do at home (which I continue to do even though I am unable to go to PT anymore for various reasons) and recommended heat on the pelvic area to loosen it up. I find either my heating pad or sitting in our hot tub beneficial. Right now, I have a surgical incision I cannot get wet, so I have been relying solely on the heating pad... it does help, but I understand your frustration... the pain often comes back!!

        *Diagnosed with severe IC in 2004
        *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
        *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
        *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

        **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.