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  • Prelief has been amazing...

    I have added Prelief the last 4 days to my daily routine and I cannot believe the difference in my pain and burn level. It is almost too good to be true. That a long with Evian water, I have a significant improvement in my pain level. I still follow the IC diet to the tee and take all my meds.
    The elmiron though is really difficult for me to handle. The nausea, stomach upset and the runs are almost as bad as the pain. I may try to cut back (with my dr's approval) and see if the Elavil, Prelief, Cysotprotek, Cal/mag cytrate and tons of Evian water will be enough to keep the pain abay.

    Take care.
    Peace
    Danica


    Stopped taking Elmiron for the time being-- could not tolerate side effects

    ADARAX 25mg at night and at times morning
    Calcium mag citrate w/ vit.D
    Prelief 8 to 10 a day
    Cystoprotek 4 a day
    MSM

    ~God's mercy and grace are infinite~

  • #2
    how exciting that prelief is doing wonders for you. I myself didn't really notice that much of a difference when I used it

    Comment


    • #3
      Wow... that's great!!

      I take it before eating something I think may be questionable, and I think it helps, but I didn't get such a great response as you did ... how awesome!
      ****
      Jen

      *Diagnosed with severe IC in 2004
      *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
      *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
      *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

      **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Comment


      • #4
        Prelief

        Hi everyone, I guess I should make clear how Prelief has helped me. It has really been amazing for the burning pre and post urination that would last for hours. I truly do not burn like I did for the last few days since starting Prelief. Where it did not make much of an impact is the painful bladder spasms and vuvla irritation. Has anyone had any favorable relief from using Ultracet? What non-narcotic pain relievers can I use?
        Thanks and take care.
        Peace
        Danica


        Stopped taking Elmiron for the time being-- could not tolerate side effects

        ADARAX 25mg at night and at times morning
        Calcium mag citrate w/ vit.D
        Prelief 8 to 10 a day
        Cystoprotek 4 a day
        MSM

        ~God's mercy and grace are infinite~

        Comment


        • #5
          prelief

          I've had a good experience using Prelief also....its a bit pricey, but worth having on hand.

          Comment


          • #6
            IC is such a crazy illness. Why does a certain medication work so well in others like Prelief but not as well in others? IC is so fickle.
            Anyway, Walgreens sells Prelief for $13.00 and Rite Aid has it for around $11.00. (Orange County, CA)
            It is worth the price--anything to not have the excruciating burn...
            Take care~
            Peace
            Danica


            Stopped taking Elmiron for the time being-- could not tolerate side effects

            ADARAX 25mg at night and at times morning
            Calcium mag citrate w/ vit.D
            Prelief 8 to 10 a day
            Cystoprotek 4 a day
            MSM

            ~God's mercy and grace are infinite~

            Comment


            • #7
              Cool, glad you found something that helps.




              Diagnosed w/IC 7/18/05
              Dx'd w/Endo 5/5/06
              CFS
              IBS

              Current Treatments:
              Elmiron-100mg 4x's a day
              Atarax-10mg's 2x's a day
              IC Diet
              Oxycontin 40mg-Only when i can't take it anymore!



              Laparoscopy done, Endo lasered, Let's pray it stays away!



              "If you haven't gotten all the things you want, be grateful for the things you don't have that you don't want."

              Comment


              • #8
                Nikken water has really helped me manage IC pain!

                Hi everyone,
                I am a new member to this site and wanted to share the success I've had in managing the pain of IC. First a bit about me, I was first diagnosed with IC when I was 23 and I'm now 35. I've had baldder problems off and on during childhood and have gone through everything that others here have talked about: urethral stretchings, medications like Elmiron and all of the other drugs and implants into the bladder that my urologist has recommended over the years. Nothing really helped me and sometimes the side effects were worse than the IC.

                A nurse suggested that I drink baking soda in water to alleviate the symptoms and so I would take a little bag of baking soda with me in my purse every where I went! The baking soda would change the acidity in my baldder, which would take away the pain of a flare up almost immediately. But it tastes awful,like drinking ocean water! So I went on a mission to look for better alternatives that I could use that would alter the acidity level in my baldder.

                Then my mum heard about Nikken. Nikken is a Japanese company that produces health and wellness products. They have a water filter system that alkalizes the water as it comes out of the tap. I tried it first for two weeks and found that if I drank several glasses of this Nikken water every day I had no pain. NO PAIN! It was a miracle! I bought a water filtration system for my house and drink from it every day. As long as I drink about 8 glasses of this special water every day, I have no pain. I even bought a travel water bottle that alkalizes the water in the same way so that I can take it anywhere I go. As long as I drink from it periodically throughout the day, my pain is under control. No one would suspect that I have a problem since all they see is me drinking water. It tastes great and even better is that the filter adds natural minerals to the water so it's much better for you than drinking other kinds of filtered. Filtered water loses its healthy minerals through most filtration systems and that's why it's often called dead water. Scientists say that reverse osmosis actually acidifies the water, which is the worst thing you can drink if you have IC.

                Needless to say I've learned a lot about water and about the different and unhealthy kinds of water filtration out there. After struggling with side effects from various drugs, I'm happy to simply drink water that is good for me anyway, and still manage my IC pain in the process.

                Good luck to everyone out there and please feel free to ask me any questions about the Nikken system if you're curious. I should add that I am not a sales rep. for Nikken and do not stand to profit personally for sharing this information.

                Kirsten

                Comment


                • #9
                  Hi Kirsten~
                  I'm interested....Is there a website for NIkken water? Currently Evian has been a tremendous difference along with the Prelief tabs. Thanks
                  Peace
                  Danica


                  Stopped taking Elmiron for the time being-- could not tolerate side effects

                  ADARAX 25mg at night and at times morning
                  Calcium mag citrate w/ vit.D
                  Prelief 8 to 10 a day
                  Cystoprotek 4 a day
                  MSM

                  ~God's mercy and grace are infinite~

                  Comment


                  • #10
                    Nikken water website

                    Hi Danica,
                    Yes, Nikken has a website http://www.nikken.com
                    But I'veposted the direct link to the water page for you below:

                    http://www.nikken.com/product.cfm?Th...etProductID=19

                    Just copy and paste this into your browser and it should zip you right to the water info.

                    You can find out about all of their different products. If you live near me in Vancouver, BC. If you did you could try some of my water and see if it worked for you. That's what I did before I purchased the filter.

                    Kirsten

                    Comment


                    • #11
                      danica

                      i started elmiron and had awful headaches , so i stopped it , i dont usually get headaches so i related it to the elmiron, my flares are bad and so i decided to try it again, this time only one pill a day not 3. the headaches are gone now im trying to add a second pill , ask your dr if you can do this and buiild up slowly to the 3 times a day ,
                      dezcha

                      Comment


                      • #12
                        prelief

                        i use prelief and it is helpful im also on pyridium 3 times a day. the prelief i get is in pill form and it costs about$10.00(california) with some foods it seems to work better if i sprinkle it on there, like spaghetti. so my friend found me a tiny mortar and pasil to grind my own so i put in a few pills and grind them, sprinkle what i need on my food and enjoy.!!
                        dezcha

                        Comment


                        • #13
                          Hi Kristen~ I wish we lived closer because I'd pop over right now and have a a "water tasting" with you (instead of a wine tasting that I love doing with my husband on vacations). Unfortunately, I live in Orange County , California. Thanks for the link to the website...I will definitley explore it:-)
                          Take care.
                          Peace
                          Danica


                          Stopped taking Elmiron for the time being-- could not tolerate side effects

                          ADARAX 25mg at night and at times morning
                          Calcium mag citrate w/ vit.D
                          Prelief 8 to 10 a day
                          Cystoprotek 4 a day
                          MSM

                          ~God's mercy and grace are infinite~

                          Comment


                          • #14
                            tHAT'S Great!!! Where do you buy Prelief? I tried a couple pharmacies and they didn't have it. My doctor hasn't mentioned it.

                            Comment


                            • #15
                              You could buy in on this website in the IC shop. I have found it in walgreens and as well as Rite Aid but if all else fails the IC shop definitely has it. GOOD LUCK!!:-)
                              Peace
                              Danica


                              Stopped taking Elmiron for the time being-- could not tolerate side effects

                              ADARAX 25mg at night and at times morning
                              Calcium mag citrate w/ vit.D
                              Prelief 8 to 10 a day
                              Cystoprotek 4 a day
                              MSM

                              ~God's mercy and grace are infinite~

                              Comment

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