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question about rating

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  • question about rating

    Hello I was just wondering the rating scale that Dr.s use for IC. I just had another hydro and the Dr has rated the IC at a 3. Is this scale 1-5 or 1-10 I have looked on line and one site says a uro uses 1-3 and a-c 1a being mild and 3c being severe, but that is all I could find. Hoping someone here can shed some light on my 3.


  • #2
    I've honestly never heard of a numerical rating for IC before. It might just be something your doctor does for himself, to rate the severity of his patients. I'd ask him what his scale is based on.
    *IC-- Summer 2004; PFD--October 2005
    *Fibro--Fall 2000; CFS-- Fall 2000
    *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

    Total Abdominal Hysterectomy--adenomyosis--9\08

    04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.


    • #3

      I asked the same question on this board about 6 months ago. My uro also rated mine and said it was a national rating system on the severity of the glomerations. I was told that it was 1-5.

      Symptoms began 11/28/05
      Diagnosed 6/5/06

      Pain, Urgency and Frequency

      Gluten (Wheat, Oat, Barley and Rye) Sensitive, Wheat and Corn Allergy

      Detrol, Atarax, L-Arginine 1000, Cranberry and Levsin


      • #4
        I also never heard of this rating scale. Maybe it is something new they started up. Hope you find out about it too.



        • #5
          thanks, I will ask the next time I go I am not a fan my uro and have butt heads often with them but it is the only one in this area. It took me 2 weeks just to get that answer after my hydro


          • #6
            My operative report says 2 out of 5 glomerations. The hydro/cysto was never gone over with me... i had to interpret the results myself.

            The uro when i briefly saw her after the hydro/cysto told me I had the beginnings of IC.

            Lyme disease diagnosed 11/05
            vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
            IC diagnosed with hydro/cysto- may 17, 2006

            Over growth of lactobicilli found 8/07 treating with doxy.

            Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

            8/22/07- was able to get my first speculum exam, with pap

            Strep D found in bladder with United medical labs May 2006
            2 strains of strep in stool culture 9/06
            high Strep ASO titre found 10/06

            NEW MED

            Capsasin cream-once a day for 20min,
            BUt wont lie it does burn

            About to start valium supositories for PFD

            Trigger point injections- oct 07

            Current meds:
            Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
            Zanaflex 2mg
            IC and low oxalate diet, no sugar diet
            Xanax for appointments to help relax me since they cause so much pain

            Started PT 3/07, PT has really helped me in ways I never knew that it would

            Meds ive tried
            Soma- can barely tolerate half a pill
            Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
            Estradiol cream
            Urelle- caused worse bladder spasm and retention

            Various antibiotics for lyme which caused yeast and made the IC and VV worse

            waiting for the next chronic illness to pop up

            "Did you know?
            Every 15 seconds,
            a person is
            diagnosed with
            interstitial cystitis."
            Source: J. Dimitrakov, MD