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  • #1

    question

    So this is so nerve racking. Okay does anyone else have this problem, I am getting so sick of it. It is ONLY when I go to the bathroom that I have irritation and burning in my urethra and I can feel it inside of the tube, and then it usually doesnt go a way for about 1 hour after I pee, or if I take a bath. I dont know if it just gets irritated or what. And I dont think it has anything or not much to do with food, because I could not eat for days sometimes and it would burn. It doesnt burn all of the time, but I do always have problems when I wipe after I pee, so sometimes I just dab or pat it dry, that really hurts is I use toilet paper. But thats about the extent of my IC. I am on elmiron and have been since last saturday so we will see if it does anything for me. My doctor said I have mild ic after doing a potassium sensitivity test. Okay well, anyone have these problems? Thanks
    Christi
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  • #2
    Oh and I am really getting sick of taking multiple baths a day, or sitting in the bath for like 5 minutes many times a day. Is this ever going to stop, does anyone else have to do this to make the pain go away, or I mean the burning inside of the urethra??

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    • #3
      I do have where sometimes I will have irritation after I void (when I've had no symptoms all day), then the longer I can hold it, it goes away until the next time.

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      • #4
        The Elmiron helped me alot. Took about 4 mos. to notice but it was worth the wait.

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        • #5
          see it feels like if I hold it, the burning will be worse.

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          • #6
            Originally posted by meme
            I do have where sometimes I will have irritation after I void (when I've had no symptoms all day), then the longer I can hold it, it goes away until the next time.
            I have that strange symptom too. A lot of times, it feels that after I void, my bladder is more irritated than when it was full, which is bizarre, I thought the urine was irritating my bladder. Then it seems to be more "soothed" when urine starts to build up again. Does anyone else have this?

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            • #7
              I have what I call a backward UTI pain. Instead of hurting when I started to pee, it hurt after I stopped. But I don't have the problem when I do treatments. I have had a pain in the middle of the night that literally makes me jump out of bed and do an instill. That does it for me, then I go back to sleep.
              TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
              My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985
              Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
              Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
              I post to encourage and offer total support for rescue instillations.
              Find me on facebook: L. Clark Thomas
              Louann

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              • #8
                I'm always more uncomfortable immediately after I urinate, but it only lasts for a few minutes. It's not a urethral burning, but is my bladder.

                I can't take tub baths without irritation so I confine my bathing to the shower. You'll want to be sure to use only plain white, unscented toilet tissue and blot --- don't wipe --- and don't touch the opening of the urethra with tissue. I find that if I place the tissue to catch any moisture, then stand up and hold the tissue in place for a few seconds, it works best. Some ICers will use a spray bottle and plain water to rinse the area after urination and report that helps too.

                Donna
                Stay safe


                Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                Have you checked the ICN Shop?
                Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                Patient Help: http://www.ic-network.com/patientlinks.html

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                AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                 [3MG]

                Anyone who says something is foolproof hasn't met a determined fool

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                • #9
                  Since inside of my urethra feels like thats where it is bothered, I have come up with a little thing that I do. I take a peice of tissue and roll it into like a cigarette almost looking roll, and then I put it into my urethra to clean everything out. This is just about the onyl thing that takes that wet feeling or irratating feeling away. I have been doing this for months, and it still works. I just wish I didnt have to do it, it take me like 5 minutes EVERYTIME that I go to the bathroom. That is one thing that I hate about IC. I used to be able to just go and be out in like 1 minute, but now I have to do so much in the bathroom to not burn.

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                  • #10
                    Wow, that sounds painful!

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