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Can't believe I have IC (newly diagnosed)

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  • Can't believe I have IC (newly diagnosed)

    Hi everybody! I'm new to this, so I have some issues. My Urologist has been trying to test me for IC for close to three years now, and I resisted. I almost always have blood in the urine, and I've had Kidney stones before and a few infections. The reason I did'nt agree with him about my Bladder is because all my pain is on my right side where my Kidney is. Although I've had kidney stones and infections, my Kidneys are fine. I finally agreed to the bladder testing and My Doctor could tell right away I had IC. He said I had all the text book signs. I do have some pain in my abdomen, but I have a hiatal hernia, so its hard to know whats causing it. I also have alot of unusual symptoms such as dizziness, numbness and problems swallowing. I do have a cardiologist who diagnosed me with sinus brady cardia.( low heart rate ) My question to everyone is can IC flare ups affect your blood pressure or heart rate?
    Hope you have a pain-free day! Ronni B.

    Favorite Quote: " I only allow five minutes a day to feel sorry for myself."
    My Mom who died from Pancreatic Cancer.

    Diagnosed with:
    Interstitial Cystitsis
    Heart Condition S.S.S , Pacemaker put in Feb. 2008
    Slipped disc in L4

    medications:
    Fentylnol Patch
    Lortabs 10mg
    Vesicare
    Detrol
    Florinef for blood pressure

  • #2
    Welcome to the board

    I have had my blood pressure rise with my pain. I had an episode a couple of months ago and was in the hospital for it. Luckily it resolved itself after I got the pain under control.

    You will find a wealth of information here and most of all support. We are all here for you
    Miss Bessie

    Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

    Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

    Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

    Comment


    • #3
      Thank you soooo much for your quick reply!! I've already felt alot of support
      because of the similar symtoms I see with everyone. I thought for many years
      I was losing it.
      Hope you have a pain-free day! Ronni B.

      Favorite Quote: " I only allow five minutes a day to feel sorry for myself."
      My Mom who died from Pancreatic Cancer.

      Diagnosed with:
      Interstitial Cystitsis
      Heart Condition S.S.S , Pacemaker put in Feb. 2008
      Slipped disc in L4

      medications:
      Fentylnol Patch
      Lortabs 10mg
      Vesicare
      Detrol
      Florinef for blood pressure

      Comment


      • #4
        Hey there and welcome to the gang! I wish I had some information for you on your question, but I don't - glad octoberfarm had some insight in a connection!!

        Hope to see you around the boards!!!

        Hugs,
        Tracey
        How do you eat an elephant? One bite at a time...

        Harry arrived 2/23/09!



        *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        IC Diet Cheat Sheet:
        http://www.ic-network.com/diet/2009icdietlist.pdf



        Dx's:
        IC dx'd Nov 2004
        Lymphocytic Colitis dx'd July 2005
        Possible IBS
        Current IC Meds
        Vistaril 25mg in the evening
        Previous IC Meds taken:
        Cystoprotek - 2 caps 2x's a day
        Elmiron, 100mg 3x's a day
        Ditropan, 5 mg 3x's a day
        Others:
        Wellbutrin 150mg 2x's a day for Anxiety/IBS
        Pepcid 40mg a day for GERD
        Zytrec for Nasal Allergies
        Align Probiotic daily for IBS

        Comment


        • #5
          I am so glad you found your way here.
          Sharon

          Shopping??? Did someone mention shopping? I'll get my hat... ;-)

          Where I can be found most days.



          Link to the ICN Patient Handbook:
          http://www.ic-network.com/handbook/

          Link to the IC Diet:
          http://www.ic-network.com/diet/


          IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment


          • #6

            I am sure IC can affect your blood pressure.. I didnt have high blood pressure until I was dg with IC.. The doctor said it was prob from the pain and also pain meds can raise your blood pressure...So I dont think IC causes it but I do think it contributes to it...
            Hugs
            Ronda

            ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


            Link to Patient Handbook:
            http://www.ic-network.com/handbook/

            Diet Reference Sheet:
            http://www.ic-network.com/diet/icndi...tsheet0909.pdf

            Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

            Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

            Meds I have Tried:
            Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
            Lexapro< Bad reaction to this med!
            Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

            Dx With IC in Nov 2006 with Hydro/Cysto
            Hydro/Cysto Caused Bladder to Rupture.

            Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



            ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment

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