Announcement

Collapse
No announcement yet.

questions, questions, questions...

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • labguides
    replied
    <<I'm going to try MSM>>

    Is this prescription med? If not, where is it available?

    Leave a comment:


  • Roxie2007
    replied
    HI! I totally agree that it's crazy that so many people have different symptoms that all add up to IC! Cipro helps my flares too. My IC specialist said that it does help some...not all....during flares. I'm lucky that it does. My dr. gave me a 30 day supply of Cipro and told me to take it for up to 3 days from when the flare started. That way the antibiotics isn't so hard on the body. I take Probiotics to help counteract the antibiotics. Luckily the MSM has helped tremendously with the flare ups. Good luck to you! Roxie

    Leave a comment:


  • jen48446
    replied
    I have mild IC thankfully I never had the pain, I had enough pain with menstrual cramps when I was in my late teens in high school to last me a lifetime! I only had the urgency to pee. We are all different & that is what makes it so hard to pin point things. Research, research & research!!!! For me it was talking to others & I also joined Yahoo groups that helped me too. Keeping a good relationship with your doctor is important as well. I started reading every book on women's hormones I could find several years ago & boy have I learned a lot, helped me understand my body even better!

    Leave a comment:


  • ICNDonna
    replied
    It's very possible to have IC with no severe pain. And yes, antibiotics do have anti-inflammatory qualities so that could easily be the reason you feel better while taking them.

    Are you following an IC diet? That can be very important.

    Warm healing thoughts,
    Donna

    P.S. Your picture is gorgeous!

    Leave a comment:


  • Guest's Avatar
    Guest started a topic questions, questions, questions...

    questions, questions, questions...

    So the PUF test (Pelvic Pain and Urgency/Frequency questionnaire) - I'm almost certain I scored a 15. It perplexes me that people have different combinations of symptoms. Myself, I experience pain and urgency, but not usually frequency. I do go to the bathroom more frequently than my coworkers, but I don't think I go an exorbitant amount. I go on average only once or twice a night. Is this because my body is just different? Are there different mechanisms that cause the different symptoms? My aunt was diagnosed with IC several years ago via hydro/cysto - and she told me her symptoms were only frequency and urgency, not pain. When she's stressed or eats a trigger food, she goes to the bathroom several times an hour and gets little sleep. Could it be that our bladders/brains are reacting differently to the same problem (i.e. depleted/ing GAG layer, etc.). Also, if IC is immune system-related, would that show up in blood tests?

    In my very first post, I mentioned how I had two non-UTIs with negative cultures - yet when I was given Cipro the first time it helped a lot, and Cipro XL the second time it seemed to help even more. Why would I respond to the antibiotics if my UTIs were actually just flares? Is it just because of their possible anti-inflammatory effects? PLUS, when I had another 'flare' two weeks ago on Friday, the pain was so bad I actually vomited. Yet, I had no UTI symptoms like I had previously - no extra pain while peeing, no blood in my urine, and no urgency 24/7 or frequency (every 20 minutes). I'm just confused - I wish I understood this disease more.
Working...
X