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Long and weird

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  • Long and weird

    OKay yes this is weird but I thought that I would ask. Ever since I have had ic well I guess ever since last october when these symptoms came on, I was REALLY sick, just tired and lethargic well and thats when also got the symptoms of IC. But in september about one month before I got my firdst uti, and my ic syptoms started, my head the top of my head like my scalp felt tender. And painful, but only when you touch it, like I hit the top of my head on something like a light fixture or something, and it would really hurt when I flipped my hair back or I guess not hurt but I could feel it and it was really tender like "ouch it feels like I bruides the top or something" I know this sounds weird. Well, I kinda just let it go even though it bugged me for months and NEVER went away. Well then I started going to the chiroprator and the tenderness started going away, or anyways I couldnt feel it for like the whole month that I went to the chiropractor. Well now I stopped going to the chiropractor and it just came back last night? Could this be nerves, have any of you heard of this happening. I also have vulvodynia, which I guess is nerves, so do any of you have problems with other nerves in your body? Dont think Im weird lol, this really is a major problem. Well I hope that you can help. Thanks
    PS When I have told doctors they just look at me weird, but this is a real problem, and at time is painful even when I am not touching my head I can feel i. It is on the top of my head in certain select areas on my scalp. And yes I have tried different shampoos and everything, I have dont all of the necessary precaution things, and I still am getting no where. What the heck, and ALL of this came about even the ic from me being really sick for like 4 months I think. And I STILL dont know what I was sick from, it just went away in time

  • #2
    I get this sometimes... I get weird tenderness in odd parts of my body, even the top of my head.

    I tend to blame it on either my fibromyalgia, OR trigger points (big, active knots in the muscle that can refer pain to places distant from the actual knot). I have myofascial pain syndrome as well, so I develop trigger points at an astounding rate. I know that when I was getting trigger point injections to pop these points, that tenderness would go away in the areas the trigger points referred pain to.

    Perhaps going to the chiropractor popped your own trigger points and eased that tenderness. Usually neck and shoulder trigger points cause that top of the head thing.... at least for me.

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


    • #3
      I get a very tender scalp at times too - I am guessing this is when I am really run down for some reason.


      • #4
        I have had this same sort of thing too...where the back of my neck feels almost irritated like it is bruised. I guess I never related it to IC but I would believer almost anything is possible