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confused, does pst test rule out IC?

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  • confused, does pst test rule out IC?

    I just had a pst test done, and i flunked it. (no pain/urgency with any solution). my doctor said I do not have ic. Does the pst test rule out IC? what does this mean? my doctor thinks i just have pelvic floor dysfunction, and is sending me to physical thearapy for a month. My symptoms are frequency/ urgency, no pain. ( very rare mild pelvic pain). im a little concerned that i still could have it, but he doesn;t want to put me on any medication or treatment. I left relieved, but now my mind is stirring in dought. Does anyone have any suggestions or thoughts?

  • #2
    While the test is fairly accurate there are some people that do have IC and did not have any reaction to the solution. But it could also mean that you dont have it like your doctor stated. Should have any second thoughts you might try getting a 2nd opinion. Remember no one else knows your body like you do, so if you still have that little nagging feeling, you might want to check it out. Also lots of people with IC have PFD problems. Hopefully this is what you have and going to the therapy will help you

    Good luck
    God grant me the serinity to withstand the days ahead!!!

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    In Memory of My Father (Lawerence) 1/25/2007

    Interstim Sept 2001
    1st InterStim Removal May 2005
    2nd Interstim Implanted May 2005
    2nd InterStim Removed March 2007
    Hysterectomy 1999
    Tubes Tied 1997
    C-Section 1996

    Me and my kids

    Taylor (my daughter) Me and my daughter My son Cody and Taylor


    • #3
      Apparently from what my uro told me there is a lot of controversy in the uro community about if the PST is a good way to diagnois IC. My gyn's office did it and said that I def had it, I was very uncomfortable when they put the solution with the potassium in. They started me on Elmiron and told me to follow the IC diet. However when I wasn't feeling better after a couple of months I decided to go see a uro on my own to see what they thought about the whole thing. I gave him my whole history including having the PST done and the positive that the gyn's office gave me. He said that showing positive on this test doesn't mean that you have IC for sure and some uro's don't even believe in this test. He did an office cystoscopy about 2 weeks ago and did admit that he found areas of "chronic inflammation" and that it would have been uncomfortable during the PST but wasn't willing to say it was IC yet. I go back in a month and if I still don't feel better he will do a cysto/hydro because he says this is the "gold standard" of diagnoising IC. Maybe if you still think you have it (I still think I have it even though the uro hasn't been willing to say so yet, I just know he wants to rule everything else out first) then you should go to a second uro and have an office cystoscopy done to see if anything is abnormal and go from there. As Patricia said nobody knows our bodies as well as we do.

      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus


      • #4
        I have current symptoms identical to yours and my uro, also, didnt' 'think I have IC, although on the basis of past most severe symptoms he felt I might have had a mild case which is now gone or in remission.
        I got a referral to a pfd specialist, too.