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  • urethral syndrome

    My urologist NP feels I may have Painful Bladder Syndrome. Today, I had appt with urologist, who spent at least 30 minutes talking/listening. :-) He feels I may have urethral syndrome or a combination of the two.

    Any one have urethral syndrome?

  • #2
    I got a PBS diagnosis, as well. What is urethral syndrome - what are your symptoms? Do you have pfd, too? Thanks!

    Comment


    • #3
      What is pfd?

      Comment


      • #4
        PBS & Urethral Syndrome

        Hi All,

        I have IC which I think is the same as PBS. If your urethral pain is like mine ask your doctor simply for a script for Pyridium. You can take it like 3 times a day and wow what a difference!

        Hope this helps!

        A little about me:

        Diagnosis: Interstitial Cystitis, Endometriosis, IBS, Vulvar Vestibulitis

        Current Meds: Interstim implant, Elmiron, Elavil, Hydoxyzine, Protonix, Reglan, Vicodin as needed
        34 years old - married with 3 kids
        #1 Vaginal birth 1996
        Vulvarvestibulitis 1996 a month after birth - suffered over a year with that
        IC started in 1997 ((hydro(pointless) but not officially diagnosed only mast cells and inflammation?)
        Endo started 1999 (like 5 laps thru the years to laser tumors and remove large ovarian cysts)
        #2 Vaginal delivery 2002
        2002 thru 2005 - Endo and IC
        Total Vaginal Hysterectomy in 05 (Horrible - total regret - NO RELIEF OF ANYTHING EXCEPT MY ABILITY TO HAVE MORE CHILDREN)
        Bladder sling 6 mths after hyster in 05
        Another hydro (even more pointless) 06 and found hunner's ulcers (offical diagnosis date)
        Neurostimulator - Interstim 07 (best thing ever for frequency)
        Appendectomy 07
        Another bladder sling op because sling broke (Worst pain ever during first one and then again, WOW!)

        IC - Bladder Retention (New) - UTIs (New/6 since Jan 08) - PFD - IBS - Acid Reflux - Groin Tendonitis - Severe Constipation - Anxiety disorder and depression

        100mg Elmiron - 2 twice daily
        90mg Avinza (Morphine) - 1 am and pm
        Benefiber 3x daily
        Miralax
        Amitiza (RX for constipation)
        60mg Prevacid
        15mg Oxycodone every 3 hours as needed
        10/325 Percocet every 4 hours as needed
        10mg Valium as needed
        10mg Ambien as needed
        Pyrelle and Urelle for burning
        Prelief
        Vivelle Patch (Estrogen)
        IC Diet (try but not really strict but found some triggers)[/SIZE]

        Comment


        • #5
          I do have prescription for Pyridium. I also had Prosced which worked, but that is off the market. My pharmacy subsituted Uro blue for it.. and it doesn't seem to work.

          Comment


          • #6
            Prosed

            Originally posted by labguides View Post
            I do have prescription for Pyridium. I also had Prosced which worked, but that is off the market. My pharmacy subsituted Uro blue for it.. and it doesn't seem to work.
            Prosed is still available. I just got some samples on friday. You may need to check with your Dr.

            maria

            Comment


            • #7
              Prosced

              What is this? How does it help?

              Thanks,

              Kim F.
              34 years old - married with 3 kids
              #1 Vaginal birth 1996
              Vulvarvestibulitis 1996 a month after birth - suffered over a year with that
              IC started in 1997 ((hydro(pointless) but not officially diagnosed only mast cells and inflammation?)
              Endo started 1999 (like 5 laps thru the years to laser tumors and remove large ovarian cysts)
              #2 Vaginal delivery 2002
              2002 thru 2005 - Endo and IC
              Total Vaginal Hysterectomy in 05 (Horrible - total regret - NO RELIEF OF ANYTHING EXCEPT MY ABILITY TO HAVE MORE CHILDREN)
              Bladder sling 6 mths after hyster in 05
              Another hydro (even more pointless) 06 and found hunner's ulcers (offical diagnosis date)
              Neurostimulator - Interstim 07 (best thing ever for frequency)
              Appendectomy 07
              Another bladder sling op because sling broke (Worst pain ever during first one and then again, WOW!)

              IC - Bladder Retention (New) - UTIs (New/6 since Jan 08) - PFD - IBS - Acid Reflux - Groin Tendonitis - Severe Constipation - Anxiety disorder and depression

              100mg Elmiron - 2 twice daily
              90mg Avinza (Morphine) - 1 am and pm
              Benefiber 3x daily
              Miralax
              Amitiza (RX for constipation)
              60mg Prevacid
              15mg Oxycodone every 3 hours as needed
              10/325 Percocet every 4 hours as needed
              10mg Valium as needed
              10mg Ambien as needed
              Pyrelle and Urelle for burning
              Prelief
              Vivelle Patch (Estrogen)
              IC Diet (try but not really strict but found some triggers)[/SIZE]

              Comment


              • #8
                Doesn't Peridium build up in the body or something and cause side effects??

                Comment


                • #9
                  Prosed

                  This is some of the information available on Prosed. I started taking it today and am already peeing blue. I hope it helps because with the support I get from my uro I may as well not see anybody.

                  http://www.rxlist.com/cgi/generic/prosed_ids.htm

                  Maria
                  Last edited by Maride; 03-14-2007, 08:02 AM. Reason: Link added.

                  Comment


                  • #10
                    Pyridium

                    Soccermom32,

                    I spoke to a pharmacist who stated that the red and blue drugs basically do the same exact thing but he did think it was not recommended for everyday for like a year or so but was ok for a month or two and to discuss taking this with a urologist only.

                    The past few days I don't think I could have made it without the stuff. Major flare-up. I think it was caffeine. Decided to have a few soda!

                    Wrong choice!

                    Hope this helps!

                    Kim F.
                    34 years old - married with 3 kids
                    #1 Vaginal birth 1996
                    Vulvarvestibulitis 1996 a month after birth - suffered over a year with that
                    IC started in 1997 ((hydro(pointless) but not officially diagnosed only mast cells and inflammation?)
                    Endo started 1999 (like 5 laps thru the years to laser tumors and remove large ovarian cysts)
                    #2 Vaginal delivery 2002
                    2002 thru 2005 - Endo and IC
                    Total Vaginal Hysterectomy in 05 (Horrible - total regret - NO RELIEF OF ANYTHING EXCEPT MY ABILITY TO HAVE MORE CHILDREN)
                    Bladder sling 6 mths after hyster in 05
                    Another hydro (even more pointless) 06 and found hunner's ulcers (offical diagnosis date)
                    Neurostimulator - Interstim 07 (best thing ever for frequency)
                    Appendectomy 07
                    Another bladder sling op because sling broke (Worst pain ever during first one and then again, WOW!)

                    IC - Bladder Retention (New) - UTIs (New/6 since Jan 08) - PFD - IBS - Acid Reflux - Groin Tendonitis - Severe Constipation - Anxiety disorder and depression

                    100mg Elmiron - 2 twice daily
                    90mg Avinza (Morphine) - 1 am and pm
                    Benefiber 3x daily
                    Miralax
                    Amitiza (RX for constipation)
                    60mg Prevacid
                    15mg Oxycodone every 3 hours as needed
                    10/325 Percocet every 4 hours as needed
                    10mg Valium as needed
                    10mg Ambien as needed
                    Pyrelle and Urelle for burning
                    Prelief
                    Vivelle Patch (Estrogen)
                    IC Diet (try but not really strict but found some triggers)[/SIZE]

                    Comment

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