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  • #1

    Hanging On!

    Dear All,

    Thanks So Much For All Who Sent Their Support. I Calmed Down Real Fast. I See The Doctor Today And I'm Ready And Prepared.

    I Feel As If I Have A Small Army Behind Me, All Of You!!


    I'll Be Back
    Momere
    Tags: None
  • #2
    This is definitely a good army to have on your side. Glad you're feeling better.
    Kim

    Diagnosed August 2001

    Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

    Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

    I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

    *****************************

    “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

    “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

    Comment

    • #3
      Me too, I am glad to hear you are feeling better and calmer! That's what were here for!
      Hugs,
      Tracey
      How do you eat an elephant? One bite at a time...

      Harry arrived 2/23/09!



      *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      IC Diet Cheat Sheet:
      http://www.ic-network.com/diet/2009icdietlist.pdf


      Dx's:
      IC dx'd Nov 2004
      Lymphocytic Colitis dx'd July 2005
      Possible IBS
      Current IC Meds
      Vistaril 25mg in the evening
      Previous IC Meds taken:
      Cystoprotek - 2 caps 2x's a day
      Elmiron, 100mg 3x's a day
      Ditropan, 5 mg 3x's a day
      Others:
      Wellbutrin 150mg 2x's a day for Anxiety/IBS
      Pepcid 40mg a day for GERD
      Zytrec for Nasal Allergies
      Align Probiotic daily for IBS

      Comment

      • #4
        How did the doctor visit go?
        Sharon

        Shopping??? Did someone mention shopping? I'll get my hat... ;-)

        Where I can be found most days.



        Link to the ICN Patient Handbook:
        http://www.ic-network.com/handbook/

        Link to the IC Diet:
        http://www.ic-network.com/diet/


        IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment

        • #5
          Hope your visit goes well.
          Interstitial Cystitis Stomach problems
          diastolic dysfunction
          vascular insufficency of left leg
          pelvid floor disorder
          hypothroidisim
          asthma
          bread cancer - 5yrsl. remission
          swollowing difficulty
          fatigue
          lots of doctors
          lots of med.














          Keep your eyes on the Lord and he will direct your paths.

          Comment

          • #6
            Back From Dr.

            Hi,

            Thanks So Much For The Kind Words. Just Got Home From Doctors Visit. I Was In So Much Pain I Was Taking 2-3 Uerelle Daily. Something I Originally Took Once A Day.

            She Said Since I Took Only One Urelle Daily For The Last Year She Wanted To Get On This Quickly. I Figured She Would Try Another Med. She Said She Was Going To Put Elmiron Directly In My Bladder "now". Good Thing I Did Not Know This Before Visit I Would Have Put Myself In A Frenzy.

            I Asked Why That Way As Opposed To Tablets. This Is What "she" Said. The Instillation Will Work Quickly, Elmiron Takes About 6 Mos To Start Working And That When Taken Orally The Body Only Gets A Small Amount. She Said We Will Do It Weekly For 6 Weeks.

            Because I Had Read Here That Many Have Tried It, I Was Not Nearly As Frightened As I Might Have Been. She Said For Me To Hold For One Hour. So Here I Am At Home And It's 2 Hours Later And I Am Still Holding On To My Miracle Tonic. I Figure The Longer I Hold It The Better. It Did Make Me Feel Better Right Away.

            It Wasn't Pleasant But Not Horrible Either. I'm Of The Frame Of Mind When It's Being Done I Just Tell My Body "this Is A Good Thing" So I Have 6 Weeks Of This And I Shall Post Each Visit As It May Help The Next Person And So On.


            Thankfully,

            Momere

            Comment

            • #7
              Hope it works for you. My doctor doesn't like me to hold installs any longer than he says.
              Interstitial Cystitis Stomach problems
              diastolic dysfunction
              vascular insufficency of left leg
              pelvid floor disorder
              hypothroidisim
              asthma
              bread cancer - 5yrsl. remission
              swollowing difficulty
              fatigue
              lots of doctors
              lots of med.














              Keep your eyes on the Lord and he will direct your paths.

              Comment

              • #8
                Instills?

                Hi,

                You Said Your Doctor Doesn't Like You To Hold Instills Longer Than What He Says? Did He Give A Reason?

                My Doctor Did Say Hold For One Hour. I Assumed Longer Might Be Better. Anyone Else Told How Long To Hold? Anyone After 6 Instills Better Or Is This Going To Be An Ongoing Thing?

                Should I Start Feeling A Little Better Each Day? I Started Drinking Decaf Coffee, I Read Folgers Decaf Has No Caffene. Also Does Anyone Know If It's Ok To Drink The New Folgers "easy On The Stomach" Coffee. It's New And The Commercial And Advertisement Say New And Easy On The Stomach. I Look Like "i'll Say Poop" Not Having Coffee In The Morning.


                Thankfully Yours,

                Momere

                Comment

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