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    Hi, I'm 27 and I just had a cystoscopy yesterday. The doctor didn't talk to me after the procedure but talked with my parents she showed my parents pictures from the cystoscopy and said she found irritation and gave me two prescriptions for Vicoden and Elmiron. My after-care paper work said to schedule an appointment with the doctor in 3-4 weeks.

    The doctor suspected IC when she suggested I get the cystoscopy done. So I'm guessing since she gave me the Elmiron that is what I have. Do they prescribe it for any other reason?

    I've been plagued with burning since I was about 11 when my period first started. The doctors originally always said it was a UTI but through the years the tests rarely showed any bacteria. I had a cystoscopy done about 9 years ago but it was for a urethral stricture and nothing else was found.

    In your opinion do you think I have IC judging by what the doc prescribed me?

  • #2
    Since the only thing Elmiron is given for is Interstitial Cystitis, I would say that he believes that is what you have.

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    • #3
      I'd have to agree.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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      • #4
        Elmiron is the only drug that treats IC. Hey, I take my hat off to him, at least he gave you something for the pain. Not many doctors(urologists) are that compassionate. Good Luck and hope the elmiron helps you.
        Jen

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        • #5
          Hugs
          Ronda

          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


          Link to Patient Handbook:
          http://www.ic-network.com/handbook/

          Diet Reference Sheet:
          http://www.ic-network.com/diet/icndi...tsheet0909.pdf

          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

          Meds I have Tried:
          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
          Lexapro< Bad reaction to this med!
          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

          Dx With IC in Nov 2006 with Hydro/Cysto
          Hydro/Cysto Caused Bladder to Rupture.

          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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          • #6
            I agree -- sounds like he has made his IC diagnosis! to the ICN...
            ****
            Jen

            *Diagnosed with severe IC in 2004
            *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
            *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
            *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

            **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment


            • #7
              Thanks guys.

              My GP recommended this doctor to me. My last urologist was a man and he was old, my dad went to him for his prostate now he retired so I needed to find a new doctor. This new doctor I like, she's pretty young so probabably more up to date on new conditions and she's female. I like women doctors for problems between the legs :-) My old urologist kept saying I had a stricture, and when Dr. Li my new doc went in she didn't find one this time.

              Did you guys have to wait a long time to find out what you have and how to deal with it?

              I see most people take Elmiron 3 times a day my doctor prescribed it to me twice a day. I wonder why?

              Karen

              Comment


              • #8
                I take Elmiron twice a day, two tablets. I don't think it's particularly uncommon. That's the last thing you should worry about right now. Just start educating yourself about the condition; this site is a great place for that. The patient handbook is the first thing to look at, and you can start the recommended IC diet any time you're ready. If you educate yourself about IC, you will be better prepared for your next appointment with the doctor, and hopefully won't be left scratching your head again.

                Good luck to you.
                Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                Wishing you happiness and good health, and all the best out of life.

                Peace, Carolyn
                ___________________________________________________

                Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                On the Beach with IC

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                • #9
                  Hi
                  Welcome to the ICN, It sounds like Ic ,Start a daily journal of your cycles & symptons , I find my Ic is very hormone related during ovulation & pre period. Big time pain! I hope you are able to find some relief, Also look into the patient handbook & try the Ic diet. Food is also a big trigger.
                  Hugs Sandra
                  "Never Give Up."

                  To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

                  My Photobucket Link:
                  http://s237.photobucket.com/albums/f...ramack_photos/

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