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Can't take it anymore!

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  • Can't take it anymore!

    Hi to all ,I can not take it anymore I have constant pain 24hrs a day ,frequency ,urgency and lower pelvic pressure. I take tramacet for pain but thats it .I have to wait until June 5th to see a Doctor. I live in Canada and I can not get an appointment until then. I work full time ,can't sleep at night , have diabetes and kidney disease have to be carfull with what I eat because of diabetes and the kidneys Im a mess. Latelly I've been depressed not like Im going to do somthing to my self (never)but about "WHY ME" .
    You must all understand the frustration , I have a wonderfull husband who takes such good care of me and loves me a lot.
    I went to make an appointment with my DR and she is on holidays what am I going to do for pain ? for one more week . I will go CRAZY I think.
    It is nice to see that Im not alone and that someday I will feel better. Thank you to all
    :Loren

    Current Meds
    Elmiron 300mg tid
    Elavil 25mg at hs
    Atarax 50mg bid
    Tramacet as needed
    Vitamin D 2000 iu bid
    Gabapentin 300mg tid
    Uracyst instillatons one a month

  • #2
    Lonen,

    Thanks for writing. I think that most of us have had days like you're having right now. When you're in pain, it's all about calming and soothing your bladder... so make sure you've followed the IC diet perfectly. Even one cup of coffee a day (even decaf) or green tea or soda can be causing most of the pain you're struggling with... so make sure that you stick with diet. If you need more info, please visit: http://www.ic-network.com/handbook/diet.html.

    If your pain is agonizing right now, please go to your local emergency room. Sometimes that's the best way to get the care that you need. They can also communicate with your doctor the urgency of your situation, etc. etc. when I finally went to the ER two days in a row on my worst days, I finally got the care that I needed.

    Sending you lots of support. We've been there. You can get through it too.

    Jill
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

    Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.






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    • #3
      Hi Lonen,

      I have 24/7 pain also and I can relate to the frustration and hopelessness that you are feeling. I am so sorry you are feeling discouraged right now. It's so hard to feel helpless isn't it?

      I don't know if I can say or do much to help, but I just wanted you to know that a friend somewhere cares and feels the way you do, and is thinking of you and praying for you now and everyday.

      HUGS,
      Moonheart
      http://www.TheCraftyEwe.etsy.com

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      • #4
        You've been given some excellent advice. Watch that diet --- and be sure to drink six to eight cups of water every day. If you don't drink enough, the urine can become concentrated and even more irritating.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

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        • #5
          I feel for you. I have pain all the time. I even follow the IC diet and I still have severe pain. You are not alone. I will pray that the time goes by fast and you can get in to see your doctor and I pray he/or she is a good doctor and can help you.
          Jen

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          • #6
            Lonen,
            I feel your pain too. I too am in pain 24/7 and feel so hopeless sometimes. I just can't wrap my mind around this disease and what it has done to me. I used to be so active and want to do things and now most days, I just want to curl up in a ball. I'm so glad you have an understanding husband, my husband thinks he's understanding, but he's so not. Our kids are grown and now it's "our time" and he wants to do so many things and he gets so frustrated with me, thinking that I DON'T. He thinks I've become so unsociable and gets so mad at me for it, but just can't understand that I am way more frustrated then he is, and that I would give anything to be able to do the things that I want to do. It's so frustrating to have to keep explaining over and over again why I can't do something. So I really do feel your pain, lets hang in there together!

            Kari
            Kari

            I'm 47 years old, married 27 years. I have two wonderful boys and two wonderful grandchildren. I was diagnosed in 1994. Life has certainly thrown me many many surprises, all of which I'm trying to stay positive and hopeful, and I try to think about my blessings not my misfortunes, when possible. Stay Strong!

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