No announcement yet.

You know what makes me REALLY mad?

  • Filter
  • Time
  • Show
Clear All
new posts

  • You know what makes me REALLY mad?

    I have severe pelvic floor dysfunction for which I am in therapy. PFD causes a lot of my pelvic pain. PFD is more painful than my IC right now.

    What makes me mad is that after I had my daughter almost 4 years ago I KNEW something was wrong. I would go to my gynocologist and asked her if I looked right, was I sewn up wrong etc....and she said I was "fine." I even told her that I was leaking some urine and that I couldn't hold a tampon in. As soon as anything hit the tampon it would literally fall out. I TOLD her this & her general attitude was, "yup, that can happen after you have a baby."

    I will ALWAYS wonder what would have happened had I had a doctor who said, "NO, that's NOT normal, you need PT" if I'd be where I am today. Would I be here with severe pelvic pain and IC?

    I know it doesn't matter to wonder such a thing but I really feel like my medical care was poor these past 4 years. How many other women are suffering under this gynocologist b/c she is ignorant to PFD and/or IC??

    Makes me mad!!!

  • #2
    add me to the list of moron gyns. mine told my husband that there was nothing wrong with me. I was only seeking his attention, take me home and explain to me that there is nothing wrong. needless to say at the tome he stayed drunk, and caused a massive fight between us.. some people are not cut out to be doctors. ((((((((((((((hugs))))))))))))))))))
    'The will of God will never take you where the Grace of God will not protect you.'


    • #3
      Trust me, i could write the book on bad gyns! I saw about a dozen of of them over 13 years before being diagnosed with endometriosis and another 6 gyns before being diagnosed with IC. I've been told that the symptoms are 'just a woman thing,' that the pain's all in my head, and have been told by 4 gyns that i need a hysterectomy. To me, that's not just bad doctoring, but negligence.

      I really wish there were more understanding docs out there who don't just write us off as 'hysterical females.' IC is a very real, very painful and very common condition. You'd think they'd be taught more about it in med school...

      Allergies (Claritin)
      Anemia (iron supplement)
      Asthma (albuterol inhaler)
      Bilateral hearing loss (hearing aids)
      Chronic migraines (amitryptiline, midrin, special diet)
      Chronic rhinitis and sinusitis
      Endometriosis – stage IV (lapex surgery done by specialist 3/07; now pain- and symptom-free!)
      Other treatments tried: surgery, 13 birth controls, Lupron (poison! ), and Depot Provera (the worst thing my body’s ever gone through! )
      Interstitial Cystitis (Elmiron, Tramadol, Darvocet, IC diet)
      Knee problems (ballet-related injury – no diagnosis 10 years later)
      Scoliosis (>10 years of chiropractic treatment – none currently)
      Seizure (4/03)
      Surgeries: 6/95 – maxillo-facial surgery to realign jaw; currently have 8 screws in jaw
      2/06 – laparoscopy with excision of endometriosis and ovarian cyst, appendectomy, hysteroscopy, D&C, removal of uterine polyp
      3/07 – laparoscopy with excision of endometriosis, hysteroscopy, cystoscopy, hydrodistention, insertion of stent in ureter


      • #4
        Your not alone feeling like things could have been caught earlier since they were brought to the doctors attention but instead were dismissed!

        I mean I suspect my PFD was known by my gastro back in 1990 but no one recommended pt...and now PFD has progressed to prolapse!

        Feel for you!
        Faith, Hope, and Love,

        I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back!

        IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        or find me on facebook
        Be the Miracle! & Pay it Forward!

        [email protected] please contact me...I am here to help!


        • #5
          Originally posted by soccermom32 View Post

          Makes me mad!!!
          You have every right to be mad. I never realized until IC how many doctors are ignorant, rude, and just plain bad doctors. It definitely is a problem for us ICers.

          There can not be a crisis next week. My schedule is already full.

          March 2006 IC tested positive

          current treatments for IC:
          Zoloft 100mg
          tramadol hcl 50mg (4-8 per day)
          diphenhydramine (1 nightly)
          elavil 25mg, Just started Nov 11

          additional meds for pain if needed:
          tried Elmiron for over year and didn't see much of a change, gained weight

          Also take Lisinolpril for high blood pressure

          Other conditions:
          IBS '93
          depression '94
          stomach ulcers '95
          Mitral Valve Prolaspe Syndrome '01
          Migraines since childhood
          Chronic Fatique '03

          It's not the number of years in your life that matter but rather the life in your years.


          • #6
            It is sadly exactly for these reasons and my own bad care I received that I have no faith or trust in doctors anymore! And that's sad.....


            I'm 47 years old, married 27 years. I have two wonderful boys and two wonderful grandchildren. I was diagnosed in 1994. Life has certainly thrown me many many surprises, all of which I'm trying to stay positive and hopeful, and I try to think about my blessings not my misfortunes, when possible. Stay Strong!