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Curious about how many times you urinate?

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  • Curious about how many times you urinate?

    I'm currently on Enablex, 3 days now, no difference yet. I was on Ditropan xl, detrol, sactura none of these worked. My problem is urgency,frequecny. No bladder pain. Have not been tested for IC yet. Doc wants to try oab meds before testing.

    Anyway, my question is those on meds for oab or ic how often do you urniate, while on meds.

    Thanks in advance.

  • #2
    I go from anywhere to 10 to 20 times in the day and about 2 to 3 times a night...I think normal is around 5 times a day..

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

    Link to Patient Handbook:

    Diet Reference Sheet:

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


    • #3
      I'm on Elavil (among other things) and it has helped with my frequency. I've only been on it a little over 2 weeks, and I've already seen an improvement. I was going between 20 to 25 times a day, and multiple times during the night. I now go between 10 and 20 times a day, and only once during the night. I definitely enjoy sleeping more during the night and not having to get up to go pee all the time!
      I am Jenny.
      "Karma is affiliated with the Neopagan law of return or Threefold Law, the idea that the beneficial or harmful effects one has on the world will return to oneself."

      -UTI's and Kidney infections: Since 6 months of age
      -HPV: November 2005
      -Advance high-grade pre-cancer cells found in cervix: January 2006
      -LEEP procedure: January 2006
      -IC: January 2007

      Medications (Began Treatment 3/27/07):
      -Elmiron 100mg 3 x per day
      -Elavil 25 mg
      -Hydroxyzine HCL 10mg
      -Sanctura 20 mg 2 X per day (added 07/24/07)

      Weekly Instillations @ Doctor (Starting 07/31/07 instillations will be performed by self at home - Wish me luck!)
      -20cc Lidocaine 2% Plain
      -2cc Sodium Bicarbonate 8.4%
      -1cc Heparin (10,000 units/cc)


      • #4
        I'd say, 10 to 15 times per day, usually NONE at night but sometimes one. You have to see it in context, though -- before treatment I was going 22 times in one night! I can't even guess how many times per day. So I'm not "normal" but oh, so much better! I can also get off the toilet NOT still feeling like I have to go, most of the time.
        Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
        Wishing you happiness and good health, and all the best out of life.

        Peace, Carolyn

        Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007

        On the Beach with IC


        • #5
          I've been up since 6am drank 20oz of water, 20oz of herbal tea and 1 cup of milk and I've pee'd 3 times today and its 2pm. I only get up to pee at night if my 3 year old wakes me up b/c she has to pee.


          • #6
            I go 15-20 times a day(on a good day) and 2-4 at night. Yuck.

            IC diagnosed officially via cysto/urodynamics 1/26/07

            Grade II Endometriosis diagnosed via lap 12/11/07

            "Fall down seven times, Stand up eight."

            "Life is a tragedy for those who feel and a comedy for those who think."

            Current Treatments:
            Interstim Since 5/25/07!
            Birth Control


            • #7
              While I was on Elmiron 3xday and Elavil I probably went 8-10 times a day. Night has never been much of a problem for me-once I can get to sleep that is. Now that I've cut back on the Elmiron its more like 10-15 times a day. When I'm flaring though I can go every 10-15mins for 2 or 3 hours, that's like 12 times in 2hrs!!!! Sucks when that happens.


              • #8
                I think it also depends on how much you are drinking. Plus everyones bodies process at faster and slower rates. Like when I drink like maybe 20 oz of liquid, I will start peeing within 15 minutes. Liquid goes through me quickly I guess.


                • #9
                  I go about 10 times a day and once at night. Before meds I was going up to 20 times a day and 3 times a night.
                  I am a soul whose intentions are good.
                  Oh Lord please don't let me be misunderstood.


                  • #10
                    I think maybe it depends on the severity of the bladder like inflammation or you have less bladder capacity. Or if you eat or drink some that irritated the bladder. For me personally, I quit counting.

                    Sending hugs, Trishann


                    • #11
                      Its 4:30p.m. here and I think since I have been up at 6:15a.m. that I've have gone about 5 times. At night I get up and go about 1-2 times. Since I have been on Vesicare, it really has helped me. I used to go about 10 days aday and at least 6 times a night.


                      • #12
                        It actually differs for me every day. There are days that I can go like 15-to 20 times a day, and then there are days that I can go 8 to 10 times.


                        • #13
                          I now go about 8-12 times a day, and none at night. Before I was diagnosed, I could go up to 40 times a day, and at least 5-10 a night.

                          *Diagnosed with severe IC in 2004
                          *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                          *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                          *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                          **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


                          • #14
                            The only thing I'm on right now is Elmiron and when I did a voiding journal a couple of weeks ago I was going 40+ times in a 24 time period. Night time varies but I usually get up at least 1 or 2 times sometimes more.

                            I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                            1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                            2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                            I have tried every oral medication as well as rescue instills and DMSO.

                            I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                            Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                            Also proud mom to the best Bullmastiff on earth, Claus


                            • #15
                              Well... I was put on the OAB meds too... none worked and my urologist thought something would have worked (I tried 3 meds), so he said stop them. The side effects were bad and I gave them a long time to see if they work (and doubled the Ditropan). I was going 30-40 times a day. I still am. I had a tiny bit of improvement with pyridium am/pm with an antibiotic at night... but I stopped the am med and the frequency went up again. I go about 6 times a night at my worst (I usually sleep 6 hours/night). When the pyridium 2x/day was helping a tad I'd go about 30 times/day and 3-4 times at night. I'll have moments where I'm running to and from the bathroom for a few hours, then I'm ok for a couple of hours... then the bathroom marathon again...

                              They just did an in office cystoscope and didn't see anything. My uro was shocked to see how much the urethra hurt me (with filling it up with the numbing gel and with the scope).

                              Oh well... I hope that helped you somewhat. They have not Dx'd me yet. I just started Elmiron which the uro hoped would help not just the bladder, but also the lining of the urethra. We'll see. I have to give it 1-3 months! He said that seeing an IC specialist wouldn't hurt, but he didn't see anything... but the urethra was surprising (and that my symptoms are atypical). Oh well (shrug). Hope this helped!
                              [SIZE="1"][B]Be well, Alyssa :hi:[/B]