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  • Newbie here

    Hi there. I am 29 and was just this week diagnosed with IC. Thankfully, my doctor knew about it and was able to figure out what it was. My symptoms started showing up the end of January. After being treated with antibiodics for what was thought to be a bladder infection, and months of bladder pressure, urgency and light pain in the abdomen, I have just yesterday started taking Elmiron. It's going to take me a bit to get used to taking 3 pills a day, but I'm hoping that since we caught it early, we can do some good with it. I've read some threads on her and just feel awful for anyone who had to go through these symptoms for years or decades without relief. How madenning I had never heard of IC. I was actually doing a search online last week trying to see if I could find anything relating to my symptoms and came across an archived thread where someone mentioned IC so I used a search engine to see what it was. I hadn't mentioned it to my doc yet as a possibility since the symptoms matched, she came up with it on her own I'm glad I've found a group of people who obviously know and understand what I'm going through. Let me just tell you, I am soooooooooooo sick of going to the bathroom! Sorry to babble! Just wanted to say hey to everyone!

  • #2

    This forum is a great place to find out about all kinds of things that will help your IC.. Its great you have found a doctor who is aware of this disease..
    Well we are glad to have you...

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

    Link to Patient Handbook:

    Diet Reference Sheet:

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


    • #3
      Hi and to The ICN!!! I'm glad to hear that you are getting treated. This is a really great place to vent or ask questions. Dont ever be scared to ask anything... someone will always answer. If you ever want to chat pm me.


      Dance like no one is watching
      Love like you've never been hurt
      Live today like it's your last

      Dxd with IC in June '06


      • #4
        Welcome !!

        Hi, welcome to our site.
        I would be lost without all of these wonderful people on here who have helped me through my cystectomy etc.
        I feel like I have a second family, they are all so kind and understanding.
        Most people on here have treatment for IC in the way of medication, I had tried everything there was to try, and had my bladder removed as a very last resort.
        I am sure that you will get the support that you need on here.

        Look forward to chatting to you in the future, and remember everyone on here have had, or do have ICor IBS, so they all know what they are talking about.

        I too am sick of running for the loo and I have a NEW bladder.

        Take care

        Jill xx
        I have had IC and PBS for 20+ years.
        Tried every medication I can think off.
        Had a Clam Cystoplasty with Mitrofanoff in November 2006.
        Had a Total Cystectomy, with a neobladder, Urethradectomy and Mitrofanoff review, also had a peristomal hernia repaired.
        4th october 2007.

        Check out my profile on
        if you want to know more about me.


        • #5
          to the ICN