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A BIG thankyou

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  • A BIG thankyou

    Hi everyone, I feel i want to take the time to thank you all. Let me explain...For about 2 years now on and off (Mostly on) i have suffered from what i and my doctor assumed were bladder infections. Recently however the burn and pressure i was getting was becom ing constant and painful to a point i was unable to function properly. Once again i visited my doctor, sample was clear and although he mentioned a visit to a urologist in passing more antibiotics were pushed my way. (this would also mean another bout of thrush due to these). In my despair i came home minus antibiotics and searched the internet.
    This my friends is where i stumbled upon you guys. After reading only a few i sat and i cried. Why? firstly because i felt this was where i was going to find all my answers, and secondly because of the courage that you all show.
    As you will all know, no one can fully understand what you are feeling unless you have been there. I often log on to see how every one is doing, because even though we don,t know each other i feel i have a thousand new best friends.
    Any way because i am rambling on i will draw to a close, but not without saying a hugh thankyou . Without you guys i would still be suffering and banging my head against a brick wall as far as my doctor is concerned. I have changed my diet on your reccomendations and have had great results. I wish it could be that easy for so many of you who are still suffering (i feel guilty that you all took the time to offer your advice which has helped me and you still have to deal with it).

  • #2
    Hello There and
    This site is great and has helped me more than doctors.. Its a great place to come for all kinds of support...Glad you have found us and hope to talk with you more

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

    Link to Patient Handbook:

    Diet Reference Sheet:

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


    • #3
      I'm glad if we were able to help.

      Stay safe

      Elmiron Eye Disease Information Center -
      Elmiron Eye Disease Fact Sheet (Downloadable) -

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help:


      Diet list:

      AUA Guidelines:

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Anyone who says something is foolproof hasn't met a determined fool