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  • What is a normal amount to void?

    I've been keeping track of how much I void and it's about 150ml each time. Sometimes less. Is that normal, or bad?
    Looks like I'm an IC'er too

    Currently taking:

    Urised 1 tablet 4 x a day..My 3yo loves the fact that my pee is now blue

    Lexapro 10mg

  • #2
    That's not too bad, but less than a normal bladder.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      I usually void anywhere from 5 to 8 ounces which is between 150 and 240mls. I am different all the time. I do know that when I have like 180mls in me, I usually really have to go. But then there are times where I can hold it and go up to 300mls. But of course I usually get the feeling that I gotta go before I reach that point. I just try not to run to the bathroom every single time I have the urge, which is alot
      Jen

      Comment


      • #4
        Voiding volume

        Hiya, 150 ml is not really much but not bad either. Mine is always different. Sometimes i have a bad urge and cant hold it at all and i only void around 150ml and then sometimes i have the same urge and void up to 300. But usually it is around 250ml.
        i am trying to teach myself to hold it a bit longer each time which of course doesnt work all the time but i try and then when i void like 300 i am a happy girl! I did a bladder distension and through that my bladder capacity got a bit bigger. Hope it will last like that.

        Good Luck

        Symptoms started November 2005
        Diagnosed with IC in January 2007
        Diagnosed with Vulvodynia 2006
        Medications since July 2007: Gepan Installations now only every 2 months - Amitriptilyn(Elavil) 6 drops at night - Elmiron 200mg/day, Ranitic150 in the morning together with Desloratodine 5mg - Guaifenesin Capsules 300mg (for vulvodynia), Prelief with critical food
        Vitamins/Minerals: Neutra C

        Herbal Tea (Chamomille) 3 cups a day, sit baths with sea salt after sex - Hyalofemme Gel before sex - Multi GynActi Gel after sex - Macrobid 50mg after sex


        Comment


        • #5
          I was measuring in oz not ml because I was using a cheap measuring cup. I was really shocked because I would feel like I was going to burst and it would only be 4 oz which is about 120 ml I think. I woke up and ended up peeing 9 oz but I felt like I was going to die before I went.
          Christine



          I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
          1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
          2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
          I have tried every oral medication as well as rescue instills and DMSO.

          I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

          Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
          Also proud mom to the best Bullmastiff on earth, Claus

          Comment


          • #6
            They say that 12 to 16 ounces is suppose to be a normal amount to void, but normally we will start feeling the sensation that we have to go when we have like 150mls to 200mls in the bladder.
            Like Christine, there are days that I feel I have to go sooo bad, and only go like 5 to 6 ounces. Then there are days I will only go 4 ounces. Yet there are a few times I will hold it as long as I can and go 10 to 12 ounces, though at that point I really got to go Baaaad.
            Jen

            Comment


            • #7
              my thoughts...

              Well ladies,

              I haven't measured my urine yet, but I can say that last night I woke up in the middle of the night thinking I was about "to go" all over myself....sat on the white throne, and even pushing, probably went less than an ounce. I seriously could have probably caught it in a tablespoon!

              ...darn night-time urges.

              On the upside, getting out of bed allowed me to flip my one-year old over so his feet were no longer in my face (he loves to sleep upside down in our bed)
              Most days I'm the eternal optimist , but on the days I'm not, for your personal safety and sanity's sake, stay away.

              I have too many chronic illnesses to mention: so I won't.

              "I could have missed the pain, but I'd have had to miss the dance." -Garth Brooks

              "I will never give up on my dreams; I will simply modify my path for reaching them." -J (me)

              Comment


              • #8
                Re: my thoughts...

                I see its been a few years since someone posted on this thread. I haven't actually measured my urine yet, however I feel like most of the time I go a lot. So much where it feels like my urine stream will never end! I imagine filling up a 1 cup measure cup and feel like sometimes I go where it may fill 2-3 measure cups. My urologist says that that doesn't sound much like IC, but more like OAB. But every-time I try a new food I get a flare! Sometimes I feel like I will never stop peeing. Sometimes I double void, where after I just emptied my bladder I have the urge to void again. I can feel the burn/pain which makes me have to go more...this only happens if my urine is really flared, then it burns when I void...Sometimes it feels like more! I mean sometimes I drink a lot of fluids but not always. I will wake up and pee a lot, even though I had not had anything to drink in 6-7 hours. I am thinking of going the the University of Michigan Medical Center, because changing my diet, and doing treatments on my own isn't helping much at all. I feel as lost as I did 4 years ago when I was diagnosed. I finally decided to keep a voiding diary and food diary, let me tell you that is hard to keep up with. Anyone else in Michigan been to U of M?

                Comment


                • #9
                  Re: my thoughts...

                  Originally posted by mhalin01 View Post
                  I see its been a few years since someone posted on this thread. I haven't actually measured my urine yet, however I feel like most of the time I go a lot. So much where it feels like my urine stream will never end! I imagine filling up a 1 cup measure cup and feel like sometimes I go where it may fill 2-3 measure cups. My urologist says that that doesn't sound much like IC, but more like OAB. But every-time I try a new food I get a flare! Sometimes I feel like I will never stop peeing. Sometimes I double void, where after I just emptied my bladder I have the urge to void again. I can feel the burn/pain which makes me have to go more...this only happens if my urine is really flared, then it burns when I void...Sometimes it feels like more! I mean sometimes I drink a lot of fluids but not always. I will wake up and pee a lot, even though I had not had anything to drink in 6-7 hours. I am thinking of going the the University of Michigan Medical Center, because changing my diet, and doing treatments on my own isn't helping much at all. I feel as lost as I did 4 years ago when I was diagnosed. I finally decided to keep a voiding diary and food diary, let me tell you that is hard to keep up with. Anyone else in Michigan been to U of M?
                  One thing you might do is measure the amount of urine each time you go. You could use a plastic container, such as a large Cool Whip one, to measure. If you use a measuring cup and marking pen to put a mark at 1/2 cup, 1 cup,1 1/2 cup, and 2 cups, you should have a better idea of how much you are urinating.

                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                  Patient Help: http://www.ic-network.com/patientlinks.html

                  Sub-types https://www.ic-network.com/five-pote...markably-well/

                  Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                  [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

                  Comment


                  • #10
                    Re: my thoughts...

                    i vary a ton depending on how irritated my bladder is. when it's super irritated, it holds tiny amount. when it's happy i can hold 2-3x that. but i learnt not to compare myself to everyone else, find my normal. when i'm home and not super flaring i try to stretch my bladder some by drinking more and holding off a bit longer... but only when bladder is happy

                    Comment

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