Is this IC?

[kell IC Friend Find all posts View Profile Close kell]

Hi! I need help! I am not sure if I have IC.
I am a 37-year-old woman. I had pelvic pain for a few months, but my OBGYN discovered an infection. I took antibiotics, but shortly thereafter I developed IC-like symptoms. All of a sudden one day, I had the urge to urinate frequently and felt constant bladder pressure. That was 4 weeks ago. Since then, I have had some dull bladder pain (nothing unbearable) and a near constant pressure/urge to urinate. My OBGYN did two tests for a UTI , two weeks apart, and they both came back negative. I had a UTI about 20 years ago, but no urinary tract/bladder infections since. My OBGYN did an ultrasound and said my ovaries, bladder and kidneys look normal. Still, he wants to do laparoscopic surgery to see if I have endometrosis, which may be putting the pressure on my bladder. He said there is a slight change I may have IC, but he thinks it’s endometrosis . However, the ultrasound showed no endometrosis, but he says I could still have it.
I suspect I may have IC. What do you all think?
My symptoms are:
Dull pain in the bladder area;
Pressure on the bladder and need to urinate often (sometimes once an hour, sometimes 3 times an hour),
I have no other symptoms, and I find that ibuprofin helps me feel better. It relieves the pain and pressure, although not entirely.
Could this be beginning IC? Does it start mild and get worse?
I had a baby (my first) two years ago, and my bladder has not really been the same since. It hasn’t had the same capacity, but that wasn’t really a big problem until now. Also, I have had a very high-stress job and for the past 18 months and have not urinated as often as I should. Before these symptoms set on, I would sometimes hold it until I was bursting and would sometimes only pee two to three times in a 10-stretch at work (because I was so busy.) I also wasn’t drinking enough fluids during the day. I wonder if this — combined with childbirth — could have messed up my bladder function.
I am thinking of doing the elimination diet to see if it has any affect.
Any advice? Thank you!

[Roxie2007 ICN Member Find all posts View Profile Close Roxie2007]

HI and Welcome!
To me, your symptoms do sound familiar. My first symptoms were freqency and pressure and it all started after the birth of my son 31 yrs ago and a very stressful life.
I would highly suggest the IC diet...staying away from caffeine, teas, anything citric or acidic, night shade foods, spicy, seasonings, fake sugars etc....some times it's the least we expect when it comes to food.....like Bananas because of the potassium and for me calcuim pills.
There's several great meds for frequency...Elavil being one of them (Prescripton) or over the counter (AZO, Uristat) and to help heal the mucus lining of the bladder...Elmiron (Prescription)
I wish you luck on trying to get this figured out and hope you get it under control soon.
Everyone here is very helpful, knowledgeable and here to listen and give great advice. Keep in touch. Roxie

[GriffsMommy ICN Member Find all posts View Profile Close GriffsMommy]

It sounds like it could be IC but then again it could be endo. They have a lot of symptoms that are similar, espically if the IC is on or in the bladder. Your dr is right though that it could still be endo because unless endo has actually grown through a structure in your body it will not show up on an ultrasound, it could be everywhere and they wouldn't see it. This is why they want to do a lap to see if it's there or not, it's the only way to know for sure with endo. I hope that you don't have either because neither one of them are fun, I have both. Hope you get some answers soon.

[ICNDonna ICN Staff Find all posts View Profile Close ICNDonna]

It's possible that what you have is IC, but there are also other possibilities. It's best to work with your physicians towards a diagnosis. Putting yourself on an IC diet shouldn't do any harm and it might help. It's very important to your general health to get enough water every day.

Donna

[jen74 ICN Member Find all posts View Profile Close jen74]

I agree with Donna, you should work with your doctor to get the right diagnosis. It could be IC , it could be endo, or even both. I think I have endo as well ( my gyne highly suspects this). One thing is, do you feel your bladder symptoms are bad usually only around your period? Usually with endo, your bladder will be bad around your period more so than at other times. At least that is what I was told.
I hope you get an answer and some relief.
Jen

[cshell IC Friend Find all posts View Profile Close cshell]

I feel your pain

As others have said, my IC began almost the exact same way. Bacterial vaginitis which was treated and then feeling that the infection was recurring with tests all negative. Then I got an UTI which my idiot doctor treted incorrectly. By the time I got to a decent doctor, I fear the damage had been done. After finally recovering I started haveing frequency, bladdar spasms and eventually pelvic pain. I agree with the others that it could well be something other than IC.
Try the elimination diet, I also find prelief helps when you want to eat a no-no food. I use it regualrly and it is high in calcium. It is imparitive that you urinate more than twice in ten hours. I try not to push it past three hours and usually every two. I have the benifit of being a teacher with the bathroom righ across the hall, so with 45 minute classes, I can go fairly often. I also suggest trying to reduce your stress level. I am horrible at this myself, but it is good advice all the same. I also wish you the best of luck. Hang in ther and be persistent. I am sure it will get better.

cshell

[vm ICN Member Find all posts View Profile Close vm]

Your symptoms sound very similiar to mine - you can read my story by clicking on the link in my signature line.

Like Donna said, there are other things that should be ruled out that could lead to similar symptoms.

[kell IC Friend Find all posts View Profile Close kell]

Thanks for all the support, advice and suggestions. This really is a great site packed with useful information.
I have an appointment wih a urologist and went shopping for food to start the elimination diet.
Does anyone know how long it takes before you notice a difference after starting the diet?

[Roxie2007 ICN Member Find all posts View Profile Close Roxie2007]

It might take a while since you are eliminating foods and you have to figure out what your flare foods are.....but just deleting the majority of the flare foods might do the trick...or at least help you right off. Good luck! Roxie

[L. Thomas Support Volunteer Find all posts View Profile Close L. Thomas]

I would try to locate someone who has specialized in IC or treats a lot of people for IC. IC mimics a lot of problems. IC is a lifelong disease that has no cure but does have effective treatment for many.

My urogyn thinks my IC will not progress because my treatment is effective and I was diagnosed quickly. From what I understand IC is usually progressive if not treated effectively.