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  • Going to new Dr.

    Well I'm a bit nervous, I'm going to see another URO tomorrow....today I guess lol This will be the 2nd URO that I have seen and the first was a JERK!!! I'm nervous just because I don't want to feel like it's all in my head and the PST that I had done isn't worth anything u know.

    This is my thought.....I should of told the 1st dr this.....but if the PST is not a "true test" then why in the world does it cause alot of pain. I truly hope that this URO I see at 1:45 today has more of an open mind. My GYNO said that he was a good dr. and a friend of mine who is a RN said that he has a great bed side manner.

    I just hopes he knows about IC. lol If not then the search will continue on. lol

    I have my history ready with my list of all my meds....man I feel like I'm an old lady. lol And about how many voids at night. The pain, what kind of pain and where it is located.

    Does anyone else know of anything else I should make sure to have or tell him?

    Many thanks a head of time
    Live your life to YOUR best, and Love to YOUR best!!!



    DX in 03 with Shingles
    Removal of Left ovary due to Cyst in 2005,
    I have had cyst since I started my period as a child age 12
    Hysterecotmy December 06
    IC DX March 07 by PST
    2 "rescue" instills in March 07
    Cyco May 07 confirmed IC
    Uro study June 07
    1st Pain Block July 17,08
    Hydro/Cysto Nov 11, 2008
    12-11-08 was told I had alot of inflamation

    Meds: Allergic to 6 things
    Premarin......taking the gen cause I get it at Walmart for 4$$
    Presique for my drepression :woohoo:
    Abilify for my depression
    Adderall ...found out I'm ADD...makes sense now
    Kolopin for anxiety
    Noroco for my pain
    Valtrex for my shingles as needed

    Sorry if my spelling is off on the meds [/FONT]


    http://community.webshots.com/user/s...host=community

  • #2
    Just be sure to stay as calm as possible with the doctor. Don't let him interrupt you while you're telling him your story (unless it's just for a clarification, like, "What date did that start?"), but act rational. Pain is a very emotional issue, but for some stupid reason, often when we let that emotion show, our doctors take us less seriously. Sad but true.

    You sound like you're well prepared. I hope this goes well for you. Sometimes you have to search a long time before you find the right doctor; here's hoping this is the end of your search and the beginning of your getting better!!
    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
    Wishing you happiness and good health, and all the best out of life.

    Peace, Carolyn
    ___________________________________________________

    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


    On the Beach with IC

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    • #3
      Hi,
      I don't have any advice but do want to wish you the best luck. I truly hope this Uro works out for you! Let us know what happens.
      ~Laura

      There can not be a crisis next week. My schedule is already full.

      March 2006 IC tested positive

      current treatments for IC:
      Zoloft 100mg
      Prelief
      tramadol hcl 50mg (4-8 per day)
      diphenhydramine (1 nightly)
      elavil 25mg, Just started Nov 11

      additional meds for pain if needed:
      darvacet
      loratab
      percocet
      tried Elmiron for over year and didn't see much of a change, gained weight

      Also take Lisinolpril for high blood pressure

      Other conditions:
      IBS '93
      depression '94
      stomach ulcers '95
      Mitral Valve Prolaspe Syndrome '01
      Migraines since childhood
      Chronic Fatique '03


      It's not the number of years in your life that matter but rather the life in your years.

      Comment


      • #4
        I hope all goes well for you and your search ends here. I just started calling up uro's offices and asked if any of the dr's in the practice saw a lot of IC patients. The nurse at the one office told me that there was a dr that saw a lot of IC patients and he is who I am seeing now, so far so good, very nice.
        Christine



        I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
        1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
        2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
        I have tried every oral medication as well as rescue instills and DMSO.

        I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

        Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
        Also proud mom to the best Bullmastiff on earth, Claus

        Comment


        • #5
          Thank u ladies I will post when I get back later on
          Live your life to YOUR best, and Love to YOUR best!!!



          DX in 03 with Shingles
          Removal of Left ovary due to Cyst in 2005,
          I have had cyst since I started my period as a child age 12
          Hysterecotmy December 06
          IC DX March 07 by PST
          2 "rescue" instills in March 07
          Cyco May 07 confirmed IC
          Uro study June 07
          1st Pain Block July 17,08
          Hydro/Cysto Nov 11, 2008
          12-11-08 was told I had alot of inflamation

          Meds: Allergic to 6 things
          Premarin......taking the gen cause I get it at Walmart for 4$$
          Presique for my drepression :woohoo:
          Abilify for my depression
          Adderall ...found out I'm ADD...makes sense now
          Kolopin for anxiety
          Noroco for my pain
          Valtrex for my shingles as needed

          Sorry if my spelling is off on the meds [/FONT]


          http://community.webshots.com/user/s...host=community

          Comment

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