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I'm new to IC and trying to follow the diet which isn't easy. On top of that I'm also trying to lose 50 lbs and on EDiets so I'm trying to incorporate the IC diet into the EDiets and it's difficult. Is there a thread for Dietary help and hints anywhere here? If not is it possible to get one started somehow?
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"No matter how bad things get, you got to go on living, even if it kills you." ~Sholem Aleichem~
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Hang in there, figuring out the IC triggers is not an easy process, but it's totally worth it. After about 3 weeks on the diet, I started noticing a difference. I still needed medicines as well to control the IC, but I probably take a lot less of them because of successfully modifying my diet.
I don't know about Ediets, but I did use www.sparkpeople.com several years ago. It's free, has great articles, message boards (including a thread on chronic illness, which had other IC patients responding), recipes, etc. I lost 13 pounds on it, over a summer & have not gained them back. :woohoo: You might check it out.
Here are a few resources for you as well:
Article on understanding diet & IC
IC Chef Cookbook:
Safeway "shopping list"
Sending a hug & wishing you better days soon!Kadi
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
Source - Pinterest
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Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!
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Kadi
Kadi you're my lifesaver today! Thank you for posting that Safeway shopping list!! That's where my husband and I shop every day, it's right across the street. Thank you so much!! I was nearly in tears a minute ago talking to my husband on the phone while he called me back letting me know what flavored olive oils there are for me to try as a salad dressing and most of them had vinegar or black pepper in them, which I see is a no no. I ended up with a roasted garlic one with some herbs in it. I hope it's good. I see a lot of stuff on your list I'd love to have (Frito's, Cookies, lol) but I'm on that strict Diet and trying to lose 50 pounds (I've lost 3 this week, my first week) so I'm really having a tough time.
Also, thank you for the link to the IC Cookbook. That might be my lifesaver. I can't wait to go check that out more.
I can't thank you enough for everything. Finding this board and everyone on it has been a blessing to me. I hope some of my symptoms subside. I'm in a lot of pain this weekend, it's horrible. Does it ever go away?? God, I hope so.
BTW, congrats on losing the weight and keeping it off!!! :woohoo:
Hugs-
Ivy"No matter how bad things get, you got to go on living, even if it kills you." ~Sholem Aleichem~Comment
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Hi Ivy,
You're very welcome and yes, it does get better!
When I first got IC, I was voiding 60+ times a day, completely unable to sleep, doubled over most of the time, unable to wear pants, or jeans, barely able to work.
Over time, I have found my diet & treatment combination & I feel pretty good most days. (See list below my name for specifics) I still have flares, but most of the time, I use the restroom maybe 6-10x a day, wear jeans all the time, sleep well, work fulltime fairly easily, do yoga, go to the gym, hike & travel modestly. Life is pretty good overall.
Hang in there, it takes some time to figure out your personal diet, medicines, & physical routines (physical therapy & exercise help me a lot too). But when you do, life gets a lot better! I'm telling you a little of my story here to give you hope that yes, it is possible to be very sick, but get better!
If you have a Trader Joe's near you, I also have a shopping list for there
Cheers,Kadi
-------------------------------------------------------------
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
------------------------------------------------------
New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
Source - Pinterest
"
Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!Comment
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Hi Again Kadi-
I tried replying last night but it wouldn't let me. Arrggh!
I'd love the Trader Joe list also please. I have one right near me.
Thanks again!"No matter how bad things get, you got to go on living, even if it kills you." ~Sholem Aleichem~Comment
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Kadi
-------------------------------------------------------------
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
------------------------------------------------------
New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
Source - Pinterest
"
Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!Comment
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Thank you Kadi!"No matter how bad things get, you got to go on living, even if it kills you." ~Sholem Aleichem~Comment
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Alomond milk
Hello, I was wonderring if anyone can help in telling me if they ever had problem with Almond milk... I know it contains Potassium and Potassium is what Urologists used to diagnose IC by inserting it directly to the bladder.
Thank you and hope everyone gets better!!!Firestarter
Current Meds:
Prozac to control anxieties due to IC.
Stop takin Elmiron because of the side effects... Headaches, nausea, blurry vision and Fatigue.Back on Elmiron
Feel alot better off the Emiron frm anxieties. Still have urinary frequency and at night it's worse with flatulence,mucle cramps and spasms.
Low testosorone, On Pacthes!
Hydroxyzine pamoate 25mgComment
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