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  • Visit to Gynecologist - Pain, Pain, Pain

    Is this my imagination or does a visit to a gynecologist (involving some internal stuff and a pap smear) set off IC pain? Ouch!!!

    He was trying to show me that my internal vaginal area is sore (no kidding) and that it needs some Estrace. (I'm menopausal.)

    This pain is unreal.

    Does anyone else have this reaction after a visit to a gynecologist?

    BTW, when I reminded him that I have IC, he said, "That's a bad illness."
    "No joke", I'm thinking. "That's an understatement."

    On my last visit to him, he showed me by his prodding that the bladder is "hit" differently at different angles, and that wasn't any fun.

    And, yes, I tell this dude that what he is doing really hurts. I say ouch, squirm, and move away. Sometimes I can't believe the **** that I put up with.
    Diagnoses: Mast Cell Activation Syndrome (2012),Interstitial Cystitis (2003), Postural Orthostatic Tachycardia (2003), GERD (since ?), IBS (since ?), Low Blood Volume (2006), Small Intestine Bacterial Overgrowth (2007)

    Medicines:
    Claritin 10 mg/AM for MCAS and allergies
    Synthroid
    Aciphex 20 mg in PM for GERD
    Zantac 75 mg, one at night for MCAS and GERD
    Singulair 10 mg in AM, for MCAS & allergies
    Zyrtec 5 mg/PM for MCAS and allergies

    Non-Medicinal Helps:
    glucosamine 500mg/MSM 500mg 2 X/day
    I avoid foods that I react to in my esophagus, bowel and bladder, and I react to many things. It is an imperfect method, but it is all that I do at the moment.

    I can do all things through Christ which strengtheneth me. (Phillipians 4:13)

  • #2
    Ask about elmoron? Just dxed myself hoping to see a uro soon. The flare ups are horrible

    Mia
    Mia Sowell
    Fort Worth, TX
    2 Kids
    Ethan (3)
    April (17)
    Husband Eric (Very Supportive)
    Clinically Dxed 04-16-07
    Symptoms Since 2004

    Meds:
    Elmoron 400mg 2x Day
    Atarax 50mg 1x Day
    Xanex .50mg 8 hrs As needed
    Vicodin 5/500mg 4-6 hrs As needed
    Xanaflex 4mg 1x Day
    Urelief Plus 6 hrs as needed for Bladder spasms
    Prelief as directed

    Comment


    • #3
      Ok, you need to get a female Gyn. Men just don't get it. *sigh*
      http://www.TheCraftyEwe.etsy.com

      Comment


      • #4
        Link for you on making pelvic exams easier for women with IC:
        http://www.ichelp.org/FeatureArticle...amsEasier.html

        I've always really hated pelvic exams. My current gynecologist can do them pretty well & they are still uncomfortable, but not horrible. I can tolerate them because her practice will not renew my birth control pill without an annual exam. The bc pill controls my IC to some degree, so there you have it, I go in once a year.

        But, can't stand her nurse practitioner - she's awful at it! Last time I came away sore & bleeding. Won't accept an appt with her again. Period. And frankly, I know more about IC than she does, which doesn't bother me, but it seems to bother her. Not a good mix.

        Hope the article helps for next time & you are feeling better soon!
        Kadi

        -------------------------------------------------------------
        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        ------------------------------------------------------


        New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
        Source - Pinterest
        "


        Current treatments:
        -IC diet
        -Elavil 50mg at night
        -Continuous use birth control pills (4-5 periods/year)
        -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
        -Pyridium if needed,
        -Pain medicine at bedtime daily, as needed during the day several times per week
        -Antibiotic when doing an instillation to prevent UTI
        -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
        -Dye Free Benadryl 50 mg at bedtime
        -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
        -Managing stress= VERY important!
        -Fur therapy: Hugging the cat!

        Comment


        • #5
          Of the two best gynecologists I've seen, one's male & the other is female.

          My current IC specialist & my local urologist are male & they have been incredibly understanding & kind to me when I've been in pain.

          I think the main things are understanding of IC and compassion.
          Those qualities are not gender dependent!

          You know, there are lots of gynecologists out there....
          Nothing wrong with looking around for a new one!
          (And maybe your urologist or primary care doctor can steer you in the right direction!)
          Kadi

          -------------------------------------------------------------
          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          ------------------------------------------------------


          New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
          Source - Pinterest
          "


          Current treatments:
          -IC diet
          -Elavil 50mg at night
          -Continuous use birth control pills (4-5 periods/year)
          -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
          -Pyridium if needed,
          -Pain medicine at bedtime daily, as needed during the day several times per week
          -Antibiotic when doing an instillation to prevent UTI
          -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
          -Dye Free Benadryl 50 mg at bedtime
          -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
          -Managing stress= VERY important!
          -Fur therapy: Hugging the cat!

          Comment


          • #6
            The thing is, I think women are a bit more sensitive to the parts inside and how they can be ultrasensitive and all. I agree, I've had very sensitive male Gyn's. But can relate to the women better.
            http://www.TheCraftyEwe.etsy.com

            Comment


            • #7
              The last time I had a pelvic exam it hurt like crazy. My bladder was already irrated and it put me into a big flare the rest of the day. I had gone because I was having some extremely painful breakthrough bleeding and it was freaking me out. I ended up having them write me a note to excuse me from work for the rest of the day because it hurt so bad there was no way I was going back to work. I hope the next time I go is not so bad, I've been putting off making an appt even though I should
              Christine



              I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
              1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
              2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
              I have tried every oral medication as well as rescue instills and DMSO.

              I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

              Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
              Also proud mom to the best Bullmastiff on earth, Claus

              Comment


              • #8
                Actually, I don't think it matters who gives ME my annual... the last one I had was with a female doc who was very familiar with IC... BUT it still hurt like hell in the exam and made me flare afterwards. She did say my vagina slopes abnormally so she poked and prodded a bit more than normal... so maybe thats why. All I know is, she knew about it, tried to be gentle and it didn't matter. I still go once a year though as I thnk its important.

                Comment


                • #9
                  I find any pelvic exam painfull regardless of the sex of the Doc .
                  Hugs Sandra
                  "Never Give Up."

                  To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

                  My Photobucket Link:
                  http://s237.photobucket.com/albums/f...ramack_photos/

                  Comment


                  • #10
                    OK you all are frightening me. I haven't when to a gynecologist for a long time and I finally got an appointment for next month. Now I wonder if this is going to be a major mistake and if I will be able to make it home afterwards. I definitely don't want to get this all started up again.

                    Sending hugs, Trishann

                    Comment


                    • #11
                      Check out the article link I posted above on making pelvic exams easier.
                      My doctor follows the suggestions, uses a pediatric speculum also.
                      Talking about your concerns about pain & pelvic exams with
                      the doctor before they start the exam can reallly make a difference.
                      You can also print out the article & take it with you.
                      Kadi

                      -------------------------------------------------------------
                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                      ------------------------------------------------------


                      New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
                      Source - Pinterest
                      "


                      Current treatments:
                      -IC diet
                      -Elavil 50mg at night
                      -Continuous use birth control pills (4-5 periods/year)
                      -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
                      -Pyridium if needed,
                      -Pain medicine at bedtime daily, as needed during the day several times per week
                      -Antibiotic when doing an instillation to prevent UTI
                      -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
                      -Dye Free Benadryl 50 mg at bedtime
                      -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
                      -Managing stress= VERY important!
                      -Fur therapy: Hugging the cat!

                      Comment


                      • #12
                        I have always experienced painful pelvic/pap smears. And I think the drs think I am crazy. It doesn't matter if it is male or female. I always say during this is painful, or a certain area they are touching is painful. I just had to go the other day for a pelvic exam because my uro found a hard area during my cysto/hydro, and that exam was the worst yet, I kept telling her it hurt and she just kept saying try to relax and breath, no breathing or relaxing is going to make it better when it is that painful. Plus I was due to get my period any day so that didn't make it any better.

                        Now I have to go for a biopsy next week and I am scared to death. I know it is going to hurt, I asked her for a valium to take before and she said that I didn't need it and that the biopsy is just like an exam except they take a piece from the area to test it. Well, for me the exams are torture so this ought to be really fun. I do take Xanax only on an as needed basis, I haven't took then for about 6 mos so I am definately going to take one that day, but I know it won't be enough for me to relax.

                        I am glad I am not the only one that has painful pelvic exams. Sometimes the dr act like you are making this pain up.

                        SUe
                        Dx with IC April 30 2007
                        Dx with Endo Sept 2007
                        Supra Cervical Hysterectomy April 9 2009

                        Comment


                        • #13
                          For me personally, I don't intend to let any Doctor do an exam or put anything inside me ever unless I'm having major symptoms of cancer. I know it's not a wise decision but there comes a point that one has to draw a line in the sand as to what will be done to their bodies. I don't care if they are male or female, unless they have IC they just don't know what the heck they are doing or understand what we are going through. Period. Since I am over 60 it is a decision I am willing to make. I would advise younger people to not make this decision. Your whole life is ahead of you, don't take a chance on not living it. Ziggy

                          Comment


                          • #14
                            Just a head's up . My Doc has me take a one time dose of antibotics during any pelvic exam or intercourse , To prevent infections.
                            Good luck
                            Hugs Sandra
                            "Never Give Up."

                            To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

                            My Photobucket Link:
                            http://s237.photobucket.com/albums/f...ramack_photos/

                            Comment


                            • #15
                              You could ask your gyne to use a smaller speculum, like a pediatric size one. I had to go to my gyne the other day and get a culture done plus she did the pelvic exam and it did upset my IC that day, but you have to go through this sometimes. Pap tests are VERY important and need to be done. I would not want to get cancer down there and have it be to late to treat just because I was afraid of the pain from the exam. I would think that having cancer or having to have invasive teatment for cancer would be ALOT more painful than the pelvic exam. You kind of have to weigh these things in your mind.
                              There is no doubt, it sucks having to go through these things and having IC on top of it all. People that dont have IC dont know how lucky they really are, that is for sure. I hope they find a cure one day real soon.
                              Jen

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