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  • vm
    replied
    I hope this means that once you get the infection cleared up you'll be feeling much better and not "flare-ish"!

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  • Shannonmarie018
    replied
    I went to my Uro on Wednesday and it ends up that I do have a mild bladder infection. I thought I was flaring this whole time. It's a good thing that I went in. And you guys are right, don't trust those azo strips cause mine kept saying I was negative for infection. They sent my urine out and did a culture and I do have an infection. Feeling a lot better today. I'm taking Keflex for 7 days. Hope i don't get a yeast infection. Yuck!

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  • jen74
    replied
    I had a nasty infection about three months ago. I also dont trust those test strips. Mine always come back normal, but my culture shows I have an infection. EVen the ones that they use in the doctors office does not show my infections. I have to have a culture.
    I also have the antibiotic macrodantin that I take after sex, which is funny because my hubby and I have not even had sex in a long while due to all the pain I have, and when I have a good day, I sure done want to mess it up by having sex. It sucks! So I use my macrodantin before I do my bladder instillations just to hopefully help prevent a UTI.
    Jen

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  • stacey79
    replied
    I struggle with infections a lot and always have. I do everything I'm supposed to like only take showers, wipe from front to back, clean after intimacy, etc. But, it doesn't seem to make a difference. The last couple of years, it's seemed to be an infection ever four to six weeks. My uro has me on a low dose of antibiotics. I take it three times a week. THe first one worked for about a year. I only had maybe one or two infections that year. Then they started coming back more frequently. We just switched up my antibiotic again to help get them back under control.

    I would caution you with the AZO strips. If you're worried, please go in and have your doctor culture the urine sample. Probably only 20% of my infections show up before culture. 80% only show up in a culture. I think we feel them sooner with our sensative IC bladders. The other thing I found with the strips is the box says they're most accurate if urine has been in the bladder for something like four hours. THat's hard to do with an IC bladder when it's not feeling well.

    I also completely understand that panic that you might be getting an infection. Here's what I do when that happens. I start upping my water intake. Sometimes it can almost flush things out. I also carry Pyridium with me at all times. It doesn't usually help with my IC symptoms, but does help with an infection. I have it in my purse, in my suitcase, etc. (It's one item I don't leave home without!) Heat also helps my bladder feel better, so I travel with my heating pad packed and carry a stick-on heat pad in my purse. That way I know if I"m out and get hit all of a sudden (which often happens with infections), I at least have a first line of self-help defense.

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  • ICNDonna
    replied
    I haven't had an infection since I switched 100% to showers instead of tub bathing.

    Donna

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  • Shannonmarie018
    replied
    thanks, I'll ask my doc about antibiotics. I think the elmiron is helping. I haven't had an infection for about 9 months now.

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  • vm
    replied
    I have IC and used to get very frequent infections as well. My doctor put me on one antibiotic pill after intercourse a few years ago and I haven't had an infection since. It was really a godsend b/c no matter what I did before and after sex, I always wound up with an infection anyway. You might ask your doc about this.

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  • MarthaF
    replied
    How different are your symptoms when you have a diagnosed infection? Many of us diagnosed with IC find that we really have an infection that is not found by the lab test. The test is able to find some bacteria, mainly E. coli, but there are many other kinds of bacteria that can get into the bladder and cause symptoms. They are not usually found since they do not grow enough colonies or they invade the bladder wall and hide from dectection.

    There have been new findings in the area of bladder infections and one is that they can gather in biofilms, or intracellular communities, and hide from detection and treatment. (Discovered by researchers in Scott Hultgren's lab at the Washington Univ. and published several years ago). The theory is that the bacteria hide and then re-emerge from the biofilm to cause another infection. But there are other species of bacteria that can do the same thing and are hard to detect without a more extensive culturing method. A broth culture is able to detect more kinds of bacteria that may be responsible for ongoing and chronic infections that are not diagnosed. A diagnosis of IC is made when no bacteria are found, but in fact there may be some present. United Medical Lab in McLean, VA is the only lab that will do broth cultures and they may find species that require a different antibiotic and longer treatment to eradicate.

    It is possible to have more than one species present at one time - and one may be isolated and another may not be. If one or both are treated with the right antibiotics for the right amount of time symptoms may resolve.

    Martha F
    Last edited by MarthaF; 05-09-2007, 12:40 PM.

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  • GriffsMommy
    replied
    I know that some people that are prone to infections take a low dose of an antibiotic either each time after they have sex or everyday. Maybe you want to suggest this to your dr. I have only had one documented infection in my life so this isn't personally a problem for me. Hopefully some of the other gals who have problems with infections will chim in.

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  • Shannonmarie018
    started a topic bladder infections

    bladder infections

    I was the bladder infection queen, I'd get one or two a year for about the past 6 years. In the fall I started experiencing IC symptoms and after a postassium sensitivity test and a bunch of other stuff I was diagnosed with IC. i've been on Elmiron for 3 months now, I'm starting to feel a little better. I am still terrified of getting bladder infections. I know that symptoms of ic are similar but I know that the times that I had to go to the doctor I did have an infection. I'm so scared now. I'm nervous about having sex. I try to go to the bathroom right after. I drink mostly just water. I don't drink coffee or soda at all anymore. I'm hoping that with taking elmiron that I won't get bladder infections anymore. Has anyone else seen a difference? Sometimes I'll have pain in my urethra for no reason or some cramping when I urinate and I freak out that I'm having an infection. I know now that I don't but I just get so scared. I wish I could relax a little more. I keep azo test strips in my bathroom so that I can test to see if I have an infection.
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