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Cystoscope And Confirmation Today

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  • Cystoscope And Confirmation Today

    Ok well I have had the Urodynamics which showed Doc I cant hold very much "pee" in my bladder before I get horrible cramping and have a strong urdge to pee and the pain isnt fun either. She said back then (2 weeks ago) she was convinced I had IC but I had to get this Cystoscope done to make sure there was no cancer and to take a look-see for the little red blood-blister thingys on the inside of bladder for more confirmation of the IC(I forgot the name of them LOL Sorry) sure enough, I have the red blood-blister thingys that are common with IC BUT thank heavens no other issues, everything else looked ok.

    She asked me what treatment I wanted to begin after reading the whole packet they gave me two weeks ago and I opted for the Bio-Feedback with Elec Stim and PT to help with the Pelvic Floor issues. Hopefully Insurance will ok it. Ill know in a few days.

    For all you newbys getting ready for the really wasnt half as bad as I thought. I feel the urodynamics was aweful and alot worse (a little humbling as well standing there on a pulpit kinda stand with tubes stinking out of my tush and my bladder with an xray machine in front of me). The pain from the cystoscope was instantanious but faded quickly...they also used numbing gel. Its now been 3 hours and I feeel blood in urine no painful peeing, nothing...other then a stomach ache and a massive headache from the antibiotic they gave me before I left. Im crabby too but Im exhausted from working before I went and also getting myself all worked up before the test.

    I hope my input is helpful. The cystoscope really wasnt bad at all. When I had it done 10 years ago, it was much more painful...maybe because I had a male Doc back then, and now I have a female Doc LOL!

    SOoooooooo Im done with testing (THANK GOD ) have my answer and confirmation of the IC that the Docs all suspected I had(THANKING GOD AGAIN )now...its time to find the right treatment for me. Medication is an absolute NOWAY because I get so sick from ANY hopefully we can find alternative therapies.

    HUGS 2 ALL!


  • #2
    I'm sorry that it's IC but happy for you that you finally got your diagnois. It's horrible waiting to know for sure what is going on with your own body. I know I was very relieved when I finally got my diagnois. I hope that you find a therapy that works well for you and you start to feel better soon.

    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus