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  • Thank you...Thank you...

    Remember me? The person who hated her bladder yesterday?

    Well, I'm just writing to say thank you. Through you and this wonderful sight, I was able to figure out what was going on in my life. Since Tuesday, my world went completely out of control. I don't think I've ever been in so much pain in my life----I was shocked. I didn't get what was going on---the doctor was so vague. I was able to see, through you, that I was having a "flare" and by this afternoon, I could see I was getting it under control.

    The baking soda and water was an immense help. The elimination diet is already working and I am in quite a bit more comfort today than I was yesterday. I may sleep tonight thanks to you. The heating pad was a blessing, as was drinking lots of water and flushing my system. The AXO (?)(the over the counter little red pills) have been helping too, but tonight I don't think I even need one.

    Still have spasms and pain (the shooting ones are killers!) and I am still peeing much more than I ever have in my life, but I feel things calming down. Funny how suddenly tomatoes seem like little red devils sitting on my window sill! No thanks!

    So, once again, thank you so much for this site and all of your support. You run a good ship here and I for one am a grateful beneficiary.

    Much Love,

    Margot

  • #2
    Margot,
    I'm so happy your feeling better today. This board has definitely helped me many times also. It's so nice to talk to other people who truly understand what your going through and can give you some insight into it. So I'm glad you were able to get some help and some relief. And I know what you mean about the tomatoes, now when I look at acidy foods, my mind instantly says, OUCH, PAIN, NO WAY. I hope you continue to feel better.

    Kari
    Kari

    I'm 47 years old, married 27 years. I have two wonderful boys and two wonderful grandchildren. I was diagnosed in 1994. Life has certainly thrown me many many surprises, all of which I'm trying to stay positive and hopeful, and I try to think about my blessings not my misfortunes, when possible. Stay Strong!

    Comment


    • #3
      I am so glad you are doing better today...
      Hugs
      Ronda

      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


      Link to Patient Handbook:
      http://www.ic-network.com/handbook/

      Diet Reference Sheet:
      http://www.ic-network.com/diet/icndi...tsheet0909.pdf

      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

      Meds I have Tried:
      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
      Lexapro< Bad reaction to this med!
      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

      Dx With IC in Nov 2006 with Hydro/Cysto
      Hydro/Cysto Caused Bladder to Rupture.

      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Comment


      • #4
        Oh, what a wonderful message! Isn't this site a blessing?!

        So happy to hear you are feeling better.
        http://www.TheCraftyEwe.etsy.com

        Comment


        • #5
          how wonderful. I am so glad that you are feeling better.
          'The will of God will never take you where the Grace of God will not protect you.'

          Comment


          • #6
            Glad to hear you're feeling better!

            Those flares can be quite maddening; I say this as I'm sitting here at 430am wondering what has set me off.


            Diana
            (\__/)
            (o.O )
            (> < ) This is Bunny. He's on his way to world domination.

            Comment


            • #7
              Wonderful.

              Comment


              • #8
                Very good news. (((hugs)))
                Sharon

                Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                Where I can be found most days.



                Link to the ICN Patient Handbook:
                http://www.ic-network.com/handbook/

                Link to the IC Diet:
                http://www.ic-network.com/diet/


                IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                Comment


                • #9
                  Glad you are feeling better- I know tomatos are a killer for me--

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