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Went to dr today, first time

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  • Went to dr today, first time

    Went to Urologist today for the first time. He said he has to rule everything else out before he gives me a dx of IC. He did a bladder test to check my capacity and said I have diminished capacity. Is this normal for IC? He's having me take a CAT scan and doing some bloodwork and will see me back in two days. Meanwhile, he gave me a pill of Levaquin in the office and also gave me Urelle to take 4 times a day saying this will help me feel better.
    Will Urelle help with my frequency? Since I started the IC diet, my pain has gone down some but not my frequency.
    Thanks in advance for your advice!

  • #2
    Urelle helps me...somewhat. It takes away the burning to a degree. Pyridium helps me the most, but it causes nausea so I couldn't stay on that. I sure it helps.

    IC diagnosed officially via cysto/urodynamics 1/26/07

    Grade II Endometriosis diagnosed via lap 12/11/07

    "Fall down seven times, Stand up eight."

    "Life is a tragedy for those who feel and a comedy for those who think."

    Current Treatments:
    Interstim Since 5/25/07!
    Birth Control


    • #3
      Allies- It is good that your doctor wants to rule out all other causes for your discomfort because I think that is a major factor in diagnosing IC. And wouldn't it be wonderful if they could find something (another cause) that could be easily cured - that is what I was hoping for when I went through all of those tests. I am not familiar with Urelle but maybe someone else can help you with your questions about Urelle. Feel free to send me a PM if you have any other questions that I can help with - or just post your questions and you will get lots of support on these boards. I am keeping you in my thoughts and wishing you well ...linda
      Sudden onset of UTI like symtoms on Dec 27, 2006.
      Diagnosed with IC on March 12, 2007.
      Current Meds: 50mg Elavil
      "Be kinder than necessary, for everyone you meet is fighting some kind of battle" author unknown


      • #4
        Thanks Linda

        Thanks for your support Linda, I know it's a good thing to rule out other things and fortunately, I'm moving along quickly. I have the CAT scan tomorrow and then I see the Urologist again on Thursday. I'm hurting right now, which I think is to be expected, plus I have a lot of itches, which I think I may be starting with Vulvodenia. I'm not sure, it's all so overwhelming! Thanks again, I'll keep you posted.


        • #5

          Yes I think a lot of ICers have lost capacity. After my cysto/hydro my uro said that I had 1/3 the capacity of a normal bladder. She explained that my GAG layer is missing and therefore the bladder wall is very irritated with urine right up against it. The bladder wall is so irritated that it bleeds. This bleeding leads to scarring. The bladder is supposed to be very elastic but all the scarring prevents the bladder from expanding to full capacity. Hope that makes sense.
          Lee Ann
          Lee Ann
          Current Rx Meds:
          Atarax, Ditropan, Elmiron
          Prior to pregnancy: The above 3 meds PLUS Neurontin, Topamax, Loratadine, continuous OrthoCyclen, Lidocaine Patches PRN, Temazepam PRN, & Vicodin PRN
          Hooray for babies!
          Misc. lifesavers: Hot baths, ThermaCare Heat Wraps, Ice Packs. The IC Diet has changed my life.
          Didn't work for me:
          Detrol LA, Amitryptiline, Morphine, Percocet, TENS unit, Interferential Pain Stimulator Unit, Hypogastric Plexus Nerve Block
          IC (Mod-Severe) since 1996

          UPDATE: 5/21/08 Pregnancy and breastfeeding afterwards have alleviated my IC symptoms more than anything, EVER. Most days are 100% pain free & I now have normal frequency (as long as I take these 3 meds).

          My little sweetie! Jack weighed 9 lbs 12 oz and was born via c-section on Feb. 28, 2008...


          • #6
            How many CC's of water did your bladder hold?


            • #7

              I didn't think to ask! I go back to him on Thursday after I've done my bloodwork and CAT Scan. I'll remember to ask then.