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  • Thank you

    thank you all for your words of encouragement! I have my appt in a few hours and I hope I find some peace in all of this. I cried and cried yesterday and finally had a heart to heart with my husband. I told him about IC (not all the details but enough) and told him that I'm pretty sure this is what I have. Always the optomist, my husband said, "we don't even know this is what it is yet, don't think the worst" but I'm sure even if he isn't. I know I need to look closely at that diet. I've already eliminated all sodas and coffee, plus anything with citrus. The rest is pretty tough. My fav sushi and mexican food are, I assume, out for me because of the soy and spices. I've had a hard time eliminating wine also. It's a kind of tradition that my husband and I will have a glass or two of chardonnay on the weekends. I know that my life is going to change drastically. We have even been talking about trying to get pregnant, which scares me out of my mind now. I will post and let you all know how my appt goes today.
    Thank you,

  • #2
    I don't know your symptoms and I certainly don't know your discomfort, but IC was not a fate worse than death for me. I was diagnosed quickly and the first treatment was 100% effective. I have an outstanding uorgynecologist. I want to encourage you to continue to search for tratment that is best for you. I drive 90 miles one way to my urogyne office and it is worth every mile.
    TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
    My Helpful Hints for Home Instillation:

    Institute of Female Pelvic Medicine (J. Dell, My MD)
    Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
    I post to encourage and offer total support for rescue instillations.
    Find me on facebook: L. Clark Thomas


    • #3

      I love sushi to and can still eat most of it.. I just leave the soy out..but I have noticed that if i take prelief and just use a very little i have no problem at all.. Now mexican is also another favorite but i have been to chicken to try it but I have ate refried beans and cheese wrapped in tortillas..and also i do chicken this way.. There is alot of new things i have discovered just by so if you need any tips just let me know and good luck hun.. and please know you are not alone we are all here to support you..(((((((((hugs)))))))))))


      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

      Link to Patient Handbook:

      Diet Reference Sheet:

      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

      Meds I have Tried:
      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
      Lexapro< Bad reaction to this med!
      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

      Dx With IC in Nov 2006 with Hydro/Cysto
      Hydro/Cysto Caused Bladder to Rupture.

      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.