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  • Amydelea
    replied
    Thanks

    Thanks to the ones that replied to me. I have been to so many different doctors for all of my symptoms and I'm not crazy. I just want some miracle drug to help my pain and extreme fatigue and fever. Take care!

    Leave a comment:


  • ICNDonna
    replied
    A combination of pain and anxiety can cause a low grade fever. Pelvic pain can absolutely be a part of IC. If the leg pain is something new, it should be checked out to be sure there isn't something else going on.

    Sending healing thoughts,
    Donna

    Leave a comment:


  • futurehope
    replied
    Amydelea

    Yes, during my worst flares, I feel sick, I have a low-grade fever, I lose my appetite, experience nausea, have horrible burning pain in the pelvic region day and night and, as of the last urine culture & sensitivity during all this: negative??? See my prior thread:

    http://www.ic-network.com/forum/showthread.php?t=39089

    Go figure?! There is no way I will believe that I am okay and "healthy" during one of these attacks no matter what the test says. Luckily, in this last case, I forced the issue with my doc because it was before a holiday weekend and I couldn't stand the thought of being that sick. He gave me 5 days worth of septra DS twice a day (antibiotic), which helped me get through. BTW, as soon as I stop the med, the symptoms slowly return.

    I am going to see Dr. Chai at the U. of MD hospital at the end of the month, and this is one of the questions I am going to ask him:

    How can I feel so sick, but the urine culture and sensitivity comes back negative? In a nutshell, I do not believe the test. That's my opinion and I'm sticking with it. As far as I'm concerned, there's much that is still unknown about this ailment.

    The good news is, many people have been helped:it takes a knowledgable doctor and perseverance in finding the right treatment. I don't believe we're ever cured, but our quality of life can improve. I'm looking forward to that.

    I hope you find a good doctor who's willing to work with you in improving the quality of your life.

    Leave a comment:


  • Trishann
    replied
    Me too, I get those pains and it goes down my leg. Is it IC related I don't know.
    I personally think people with IC is constantly getting strange pain that can not be identify.

    Take care, Trishann

    Leave a comment:


  • GriffsMommy
    replied
    Sometimes I have groin pain but not very often.

    As for the low grade fever. The day that I had my in office cysto to rule our cancer they took my temp and I had a low grade fever. The nurse freaked out because I told her I had flared the day before and she thought maybe I had an infection. If that were the case they weren't going to do the cysto which would have sucked because I had already taken the day off work. My uro checked a urine sample and there was no sign of infection so they did the in office cysto. I still have no idea why I was running a fever, I wasn't sick. Maybe it is related to the IC.

    Leave a comment:


  • Amydelea
    started a topic leg pain symptom?

    leg pain symptom?

    I just found this web site and have been reading all the info but I still need to ask something. Does IC make your groin area hurt especially when you walk? Also, does this make you have a low grade fever? I have been in and out of Doctors offices for years and it all comes down to Fibro, CFS, IC, TMJ, etc. Thanks!
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