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Finally diagnosed

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  • Finally diagnosed

    Hello all,

    After 5 month of struggle I have finally been diagnosed with IC. It all started last year with a series of UTIs (8) with nothing found in the cultures. At first my symptoms went away with atibiotics, but eventually that did not work anymore. I was diagnosed by exclusion as there was nothing abnormal in my pelvic CT scan and the Dr. did not see anything during the cystoscopy (not as horribly bad I thought it was going to be), however when he put the solution I was in pain after 100cc. Since the urologist could not figure out what else could be causing my symptoms he diagnosed me with IC. I am now on Elmiron and Hydroxizine (first dose: 5/30/07). He also prescribed polyethylene glycol, a laxative. Does any body know if this is bladder friendly?

    I found this site when I was struggling with extreme bladder pain, pressure, urgency and frecuency. Following the IC diet was my first step and it reduced my symptoms to 2-4 days every week. I am very thankful about all the information and support I have found here.

    Thanks to all!

  • #2
    Hello and

    I am glad you joined us but sorry you have IC, but you will get a lot of support here..

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

    Link to Patient Handbook:

    Diet Reference Sheet:

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


    • #3
      Sorry you have IC, but glad you found us! I always tell my friends that this isnt just an IC support group, its a life support group.
      Meds: Percocet PRN; Pyridium PRN. First symptoms Dec 2005. Diagnosed in March 2006.

      I am the proud mom of a two year old boy! I was lucky enough to be in remission my entire pregnancy. If you have any questions regarding my pregancy, delivery, breastfeeding, or pumping, feel free to contact me!

      Im on Facebook! Just tell me you are from the ICN. Look me up under Kim Wayne.

      I love working as a CNA in a nursing home. Started school in August part time. Going for my LPN!!!!


      • #4
        Sorry you have IC but this is a great place to be to find supoprt and comort. And to know your life isn't over and you are not alone. Most ICers find what works and have good days. I know I have more good days than bad since my diagnosis. Good luck and PM me anytime you need to talk.