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  • CCB
    replied
    Welcome
    I've learned much about this illness reading and asking questions. I found this site when I first heard the doctors talking I.C., and I hoped my daughter would not be a member of this special place. But she is and I'm so glad she found this supportive group.

    Leave a comment:


  • leelee88
    replied
    Hello and

    You came to the right place for great help and advice
    We are not doctors but have lots of great tips and advice from our own personal experiences..The best way I have found to learn about IC is to ask lots of questions..So start asking away..Also I am givng you a link for the ICN PATIENT HANDBOOK...It has a lot of great information in it.. Good luck!

    http://www.ic-network.com/handbook/

    Ronda

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  • ICNDonna
    replied
    to the IC Network. You are fortunate to be seeing Dr. Payne. He is very well known in the IC community.

    Sending healing thoughts,
    Donna

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  • Roxie2007
    replied
    I forgot to mention.....lots of us started out peeing 40 times a day! lol Have you tried Azo or one of the other OTC meds for frequency? OR you can ask your dr. about Elavil, it's a prescription but really helps calm the bladder down. Roxie

    Leave a comment:


  • Roxie2007
    replied
    HI! Welcome to our great site! I'm glad you got a diagnosis, finally! But sorry it had to be IC.
    Have you tried the IC diet? It's a great place to start. Find out what foods/ and other things that cause you to flare.
    Did your dr. start you on any IC meds? There's lots out there to try. Check around on this site and read up on things that's helped others. I hope you find the right combination for you! PM me if you want.....I'm here often! lol Take care and best wishes! Roxie

    Leave a comment:


  • Ebonfiglio
    started a topic Diagnosis

    Diagnosis

    Hi My name is LIz and i finally got diagnosis with IC after a terrible, long and frustateing time, I notice this problem after i was in a car accident, at first i thought it was a bladder infection and have been seeing doctors ever since that, They waited so long to do any test because one of the Doctors i was seen though it was all in my head!!! and it will go away soon, I have no clue about IC? I have Chronic Pain and Fibromialya (spelling) and my pain is terrible! any help would be great! I'm in CA and have seen Dr. Pain in stanford.
    This is alot to handle and would be great to talk to some people that pee 40 times a day like me?

    Thanks Liz
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