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  • #1

    Hydrodistention Tomorrow

    Well tomorrow is the BIG day. Hoping Like crazy that it will put this flare to an end I just want to have ONE day painfree! I am so tired of being in pain. I really really hope this works. Keep me in your thoughts. I will write some more tomorrow when I get done.
    Mia Sowell
    Fort Worth, TX
    2 Kids
    Ethan (3)
    April (17)
    Husband Eric (Very Supportive)
    Clinically Dxed 04-16-07
    Symptoms Since 2004

    Meds:
    Elmoron 400mg 2x Day
    Atarax 50mg 1x Day
    Xanex .50mg 8 hrs As needed
    Vicodin 5/500mg 4-6 hrs As needed
    Xanaflex 4mg 1x Day
    Urelief Plus 6 hrs as needed for Bladder spasms
    Prelief as directed

    Tags: None
  • #2
    I hope & pray that all goes well for you !
    Hugs Sandra
    "Never Give Up."

    To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

    My Photobucket Link:
    http://s237.photobucket.com/albums/f...ramack_photos/

    Comment

    • #3
      Good luck, you will be in my thoughts. I just had one and the pain does get worse before it gets better, so don't loose hope. Be sure you have pain meds, pyridium or like and rest after you get home.

      Comment

      • #4
        Good luck! I needed pain meds after mine but I didn't have any retention or problems peeing so hopefully you won't either.
        Christine



        I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
        1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
        2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
        I have tried every oral medication as well as rescue instills and DMSO.

        I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

        Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
        Also proud mom to the best Bullmastiff on earth, Claus

        Comment

        • #5
          Well they confirmed the IC for sure! will scan in the pics tom. still pretty woozy from all the meds. I am supposed to go see him in 1 week and that is sooner than originally scheduled. The numbing meds they washed me with after is wearing off and pain is REALLY BAD. Going back to bed will write more later.
          Mia Sowell
          Fort Worth, TX
          2 Kids
          Ethan (3)
          April (17)
          Husband Eric (Very Supportive)
          Clinically Dxed 04-16-07
          Symptoms Since 2004

          Meds:
          Elmoron 400mg 2x Day
          Atarax 50mg 1x Day
          Xanex .50mg 8 hrs As needed
          Vicodin 5/500mg 4-6 hrs As needed
          Xanaflex 4mg 1x Day
          Urelief Plus 6 hrs as needed for Bladder spasms
          Prelief as directed

          Comment

          • #6


            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.             [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment

            • #7
              Sending lots of

              Comment

              • #8
                My Cysto Pics

                Okay Guys Here are the pics from the cysto.
                Attached Files
                Mia Sowell
                Fort Worth, TX
                2 Kids
                Ethan (3)
                April (17)
                Husband Eric (Very Supportive)
                Clinically Dxed 04-16-07
                Symptoms Since 2004

                Meds:
                Elmoron 400mg 2x Day
                Atarax 50mg 1x Day
                Xanex .50mg 8 hrs As needed
                Vicodin 5/500mg 4-6 hrs As needed
                Xanaflex 4mg 1x Day
                Urelief Plus 6 hrs as needed for Bladder spasms
                Prelief as directed

                Comment

                • #9
                  Your poor bladder! No wonder you hurt so bad! Hopefully your uro will treat you aggressivly now. Sending hugs.

                  Erika
                  IC diagnosed officially via cysto/urodynamics 1/26/07

                  Grade II Endometriosis diagnosed via lap 12/11/07

                  "Fall down seven times, Stand up eight."

                  "Life is a tragedy for those who feel and a comedy for those who think."

                  Current Treatments:
                  Interstim Since 5/25/07!
                  Birth Control

                  Comment

                  • #10
                    Ouch! Those pictures look painful! I never posted my pictures because my bladder looked pretty much normal from the hydro. It wasn't until they got the results back from the biopsy that they confirmed that I had IC from the mast cells that were all over the place. I hope you start to feel better soon!
                    Christine



                    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                    I have tried every oral medication as well as rescue instills and DMSO.

                    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                    Also proud mom to the best Bullmastiff on earth, Claus

                    Comment

                    • #11
                      I was diagnosed with IC by just a regular cystoscopy and I had alot of imflammation and alot of those veins. Does anyone have any pictures of what a normal healthy bladder looks like? I have searched the web and cannot find one. I am just curious to see what a healthy bladder looks like.
                      Jen

                      Comment

                      • #12
                        flaring?

                        If your frequency flaring from the Hydro...
                        (which i did for like 2 weeks...)
                        it was a detrol la..that finally stopped the frequecy so i could sleep

                        i dont take it anymore..but i keep it handy
                        if ever a freqeunct flare comes..that wont go away
                        one of those kicks it

                        if i take it anymore than a few days..i start to retain
                        Quit ELMIRON due to hair loss
                        Cystoprotek ROCKS!

                        find me on FACEBOOK -
                        search my email [email protected]

                        Current Meds:
                        AM Cystoprotek & ATARAX 50mg
                        Dinner CYSTOPROTEK
                        PM Elavil 25mg

                        Comment

                        • #13
                          Thanks you guys for all your well wishes and prayers

                          I cannot thank you guys enough for being there for me throughout this process. I am glad that the cysto showed the IC without question because I myself needed validation for all the pain. I am back full on flare again after the cysto. I look about 5 mos pg again and can't sit or stand for very long. I am so tired of all of this. The achyness just refuses to subside. But, at least I know it isn't all in my head and I am not faking it for attention. IT IS REAL. Trying to keep my head above water as far as the depression goes. Sometimes I can and sometines I can't. Thanks again for all your support. If anyone here has a myspace I want you for a friend.

                          http://www.myspace.com/miasowell

                          Giffsmommy I already sent you an add request.
                          Mia Sowell
                          Fort Worth, TX
                          2 Kids
                          Ethan (3)
                          April (17)
                          Husband Eric (Very Supportive)
                          Clinically Dxed 04-16-07
                          Symptoms Since 2004

                          Meds:
                          Elmoron 400mg 2x Day
                          Atarax 50mg 1x Day
                          Xanex .50mg 8 hrs As needed
                          Vicodin 5/500mg 4-6 hrs As needed
                          Xanaflex 4mg 1x Day
                          Urelief Plus 6 hrs as needed for Bladder spasms
                          Prelief as directed

                          Comment

                          • #14
                            Hey there, Myspace addy is on the bottom of my Sig.. Would love to have you added as a friend

                            Ronda
                            Hugs
                            Ronda

                            ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                            Link to Patient Handbook:
                            http://www.ic-network.com/handbook/

                            Diet Reference Sheet:
                            http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                            Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                            Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                            Meds I have Tried:
                            Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                            Lexapro< Bad reaction to this med!
                            Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                            Dx With IC in Nov 2006 with Hydro/Cysto
                            Hydro/Cysto Caused Bladder to Rupture.

                            Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


                            ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                            Comment

                            • #15
                              Oh Crap Mia, I denied your request because I didn't know who you were, I get those fake friends requests all the time and your picture was so pretty, usually that's a fake friends request, lol, I'll send you one now.
                              Christine



                              I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                              1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                              2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                              I have tried every oral medication as well as rescue instills and DMSO.

                              I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                              Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                              Also proud mom to the best Bullmastiff on earth, Claus

                              Comment

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