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  • #1

    Urgency Flare

    Does anyone have any suggestions for flares with urgency only? Thankfully I don't have the burning or pain but the urgency is horrible and it's not a UTI. Heating pads don't work and either does Advil. I work at the front desk at work and have to get someone to cover for me so it's very noticeable when I have to get up to go all day.
    Feel Free to Private Message me or E-mail me at
    [email protected]

    Altough I have had IC symptoms in the past my main issue is urinary retention - I am DESPERATE for an answer. I have to self-cath every time I go to the bathroom and have been since 2000. I feel helpless. Any advice would be appreciated.

    --------------------------------
    Interstim Trial on 12/21/07 - Didn't work so no InterStim for me

    Tried:

    Worked - Ditropan 15mg (and helps you sleep!) Off it now though

    Didn't Work - Vesicare, Enablex, Detrol

    Macrobid 50mg/day for to ward off infections
    Self-Cath (can't go on my own!) for retention
    Birth Control - Nothing- Quit Yasmin (It's a Diuretic!)

    Tags: None
  • #2
    I am so sorry to hear that you are not feeling well. It must be so difficult to have such a visible job. I am lucky to have a desk job where no one notices how much I get up to go. I am newly diagnosed and have been taking Elavil. It seems to be helping my urgency/frequency. Maybe you could ask your doctor about it. Some people can not take Elavil because of the side effects but it seems to be helping me. I hope you are feeling better soon. Linda
    Sudden onset of UTI like symtoms on Dec 27, 2006.
    Diagnosed with IC on March 12, 2007.
    Current Meds: 50mg Elavil
    "Be kinder than necessary, for everyone you meet is fighting some kind of battle" author unknown

    Comment

    • #3
      I agree. Elavil helped me with the urgency and frequency too. Those were my main symptoms also. I was on Elavil and Elmiron for about a year and went into remission after about 4mos of being on them. I've been off of them for 2mos (I'm TTC) and still haven't had many flares.

      Comment

      • #4
        Elavil

        I will ask my dr. but I am already on Paxil so it might be a conflict. I didn't start having flares until I got on birth control (Yasmin) so I wonder if the hormones in that have caused them. Thanks for the advice!
        Feel Free to Private Message me or E-mail me at
        [email protected]

        Altough I have had IC symptoms in the past my main issue is urinary retention - I am DESPERATE for an answer. I have to self-cath every time I go to the bathroom and have been since 2000. I feel helpless. Any advice would be appreciated.

        --------------------------------
        Interstim Trial on 12/21/07 - Didn't work so no InterStim for me

        Tried:

        Worked - Ditropan 15mg (and helps you sleep!) Off it now though

        Didn't Work - Vesicare, Enablex, Detrol

        Macrobid 50mg/day for to ward off infections
        Self-Cath (can't go on my own!) for retention
        Birth Control - Nothing- Quit Yasmin (It's a Diuretic!)

        Comment

        • #5
          Advil is a problem for many ICers. I know I can't take anything with ibuprofen.

          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.           [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment

          • #6
            I recently started taking Vesicare (5mg). Every once in awhile with the doctors approval, I'll up it to 10mg when it gets out of control for my urgency/frequency. It has really help me a lot. Might ask your doctor about this.

            Comment

            • #7
              My History

              Here is my history with IC (just occurred over the last year)
              Feel Free to Private Message me or E-mail me at
              [email protected]

              Altough I have had IC symptoms in the past my main issue is urinary retention - I am DESPERATE for an answer. I have to self-cath every time I go to the bathroom and have been since 2000. I feel helpless. Any advice would be appreciated.

              --------------------------------
              Interstim Trial on 12/21/07 - Didn't work so no InterStim for me

              Tried:

              Worked - Ditropan 15mg (and helps you sleep!) Off it now though

              Didn't Work - Vesicare, Enablex, Detrol

              Macrobid 50mg/day for to ward off infections
              Self-Cath (can't go on my own!) for retention
              Birth Control - Nothing- Quit Yasmin (It's a Diuretic!)

              Comment

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