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Does this sound like IC to you?? X Post
Hi everyone 
I wanted to get a few opinons on my "IC story"....I wanted to see if you think this is really IC or not..My uro wanted to do a hydro, but I am still recovering from a C-section so I can't do that for another month or more. Anyway, here is my story...
About 20 weeks into my pregnancy is when it ALL began....The frequency and pain. Now, everyone was saying it was all because of the pregnancy is why I was expereincing agonizing frequency, urgency, and pain after urination (well, I am a month past partum and the symptoms are WORSE than during pregnancy!). I had, and still have, frequency to the point where I feel my bladder all the time. Even after I just use the bathroom...I get up, wash my hands, and this strange feeling is left in my bladder/bladder area where it feels bruised and then the feeling like I need to go to the bathroom comes back IMMEDIATETLY after I just went. I get no break at all!!! I get no relief. Also, sometimes I get this funny feeling in my urethra where it is very sensitive, sometimes spasms, and sometimes feels like a needle was inserted into it. It happens about half the time after I urinate, for no rhyme or reason. Would this whole experience be called a "flare"? It's been THREE months of this! I ALWAYS feel the need to urinate. It never goes away. (Actually, I recall one or two hours during the three months where I felt normal...) I always feel internally bruised in my bladder, and irritated. I also have pain on my pelvic "floor"...All near the vagina and lower-abdominal area. I seriously can't take it anymore. Does this all sound like IC to you? My uro thinks so, and my OB thought so during the pregnancy. I now take Elmiron (for 2 months so far), Ditropan XL (1 week), Cystoprotek, Desert Harvest Freeze Dried Aloe Vera, and I am going to push for Elavil and maybe Prosed/DS when I see my uro tomorrow.
When I look back before this hell of a flare, I recall days when I thought I had a UTI, but it turned out to be nothing. It seems like they were "mini" flares or something. I can recall them all the way back to a year ago, maybe about 4 or 5 of them. Also, since 2005, I have had SEVERE UTI's with a lot of bleeding...Many of them that kept recurring. I have a feeling that these led to the IC and strange feelings in my urethra. I also have endometriosis, which I am told many patients with endo have IC
I had a laparoscopy 3 months before my pregnancy and there is no endometriosis sites on my bladder at all. I thought maybe that was causing the frequency. It still crosses my mind that maybe there is scar tissue there or something from the surgery...I don't know. I was going to ask my gyno to do another laparoscopy to check it out, but he didn't seem to keen on the idea. We just reviewed my pics from my old laparascopy and he said "no endo on the bladder". I saw the pics and it was clean.
So, in review, my symptoms are: Constant frequency, "bruised" feeling in the bladder and urethra, urethral sensitivity and spasms, and pain. Does this sound like IC? What OTHER conditions can cause these symptoms, if not IC??
(Sorry this was so long! Thank you for reading!!)
I wanted to get a few opinons on my "IC story"....I wanted to see if you think this is really IC or not..My uro wanted to do a hydro, but I am still recovering from a C-section so I can't do that for another month or more. Anyway, here is my story...
About 20 weeks into my pregnancy is when it ALL began....The frequency and pain. Now, everyone was saying it was all because of the pregnancy is why I was expereincing agonizing frequency, urgency, and pain after urination (well, I am a month past partum and the symptoms are WORSE than during pregnancy!). I had, and still have, frequency to the point where I feel my bladder all the time. Even after I just use the bathroom...I get up, wash my hands, and this strange feeling is left in my bladder/bladder area where it feels bruised and then the feeling like I need to go to the bathroom comes back IMMEDIATETLY after I just went. I get no break at all!!! I get no relief. Also, sometimes I get this funny feeling in my urethra where it is very sensitive, sometimes spasms, and sometimes feels like a needle was inserted into it. It happens about half the time after I urinate, for no rhyme or reason. Would this whole experience be called a "flare"? It's been THREE months of this! I ALWAYS feel the need to urinate. It never goes away. (Actually, I recall one or two hours during the three months where I felt normal...) I always feel internally bruised in my bladder, and irritated. I also have pain on my pelvic "floor"...All near the vagina and lower-abdominal area. I seriously can't take it anymore. Does this all sound like IC to you? My uro thinks so, and my OB thought so during the pregnancy. I now take Elmiron (for 2 months so far), Ditropan XL (1 week), Cystoprotek, Desert Harvest Freeze Dried Aloe Vera, and I am going to push for Elavil and maybe Prosed/DS when I see my uro tomorrow.
When I look back before this hell of a flare, I recall days when I thought I had a UTI, but it turned out to be nothing. It seems like they were "mini" flares or something. I can recall them all the way back to a year ago, maybe about 4 or 5 of them. Also, since 2005, I have had SEVERE UTI's with a lot of bleeding...Many of them that kept recurring. I have a feeling that these led to the IC and strange feelings in my urethra. I also have endometriosis, which I am told many patients with endo have IC
I had a laparoscopy 3 months before my pregnancy and there is no endometriosis sites on my bladder at all. I thought maybe that was causing the frequency. It still crosses my mind that maybe there is scar tissue there or something from the surgery...I don't know. I was going to ask my gyno to do another laparoscopy to check it out, but he didn't seem to keen on the idea. We just reviewed my pics from my old laparascopy and he said "no endo on the bladder". I saw the pics and it was clean. So, in review, my symptoms are: Constant frequency, "bruised" feeling in the bladder and urethra, urethral sensitivity and spasms, and pain. Does this sound like IC? What OTHER conditions can cause these symptoms, if not IC??
(Sorry this was so long! Thank you for reading!!
)
I WILL conquer this disease! 
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