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um, what is a flare?

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  • lan
    replied
    jube - thanks so much for the information. I will let you know if I talk to my uro. My uro treated me with antibiotics for a couple of months before he sent me to an IC specialist. The IC specialist said that he did not think I should continue antibiotics since I have no bacteria. But I am having a hard time giving up on antibiotics since my symptoms started so suddenly and very much like a UTI. It is hard to give up on antibiotics because they were my only hope for a quick cure. I am taking Elavil now and feeling a bit better but I want to be 100%. I hope that you are feeling better soon and I am keeping you in my thoughts. Linda

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  • jubejube
    replied
    Hi Linda...
    My doc prescribed me a month's worth of Macrobid right after my cysto. He prescribed 100mg 2 x per day, with meals. So far, I honestly havent noticed much difference. As my main symptom is burning in the urethra, my doc thought this might help ease the inflammation (which he felt has been a low grade infection) and hopefully would make a difference to my IC symptoms. But at this point, I think my burning is diet sensitive, as I have been noticing it while trying the IC diet.
    Ask your doc about it, and let me know what he/she thinks... i am curious, as I am newly diagnosed, and not sure if my doc is going about things the right way, or if i should be looking for someone new?
    Thanks so much... take care

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  • lan
    replied
    Hi Jube. I love your Dr. Seuss quote. I also was told, following my cystoscopy, that I have mild inflamation near the base of my bladder. I was wondering how much Macrobid your doctor wants you to take and for how long. I am curious because I might ask my doctor if I should give antibiotics a try. I think it would be a long shot for me but it might be worth a try. Thanks. Linda

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  • jubejube
    replied
    Thanks everyone... this site is such a godsend!

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  • Roxie2007
    replied
    HI! If you dr. told you that you have IC.....and start the diet and nothing more....I'd say you need to find another URO who knows how to treat IC patients....it sounds like that dr. doesn't know what to do for you other than tell you to start the diet. It's best if you can find a dr. who is an IC specialist. I looked up URO's in the phone book.....and went dr. the list calling each one and asking if they specialize in IC. Luckily I found a good one and I love him! I hope you are able to find a good dr. who helps you with the IC.
    It sounds like you are having a mild flare...it can get worse......so find a good dr. before then! Roxie

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  • GriffsMommy
    replied
    A flare is usually when your symptoms get worse. If someone says that they have been flaring for months, it's probably because their symptoms had been more under control and then something set their symptoms off and they got worse. I personally have pain most days but a flare for me is much more pain, more frequency more burning and just generally feeling crappy. When I was first diagnoised though I felt like I was in a big flare, symptoms were bad all of the time. Once you start getting treatment and feeling better you'll know baseline symptoms vs flares.

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  • leelee88
    replied
    Some people have differant symtoms of flaring...
    It could be from very mild to severe pain...

    When most say flare it involves: Burning, Pain, Swelling, Frequency,and Severe urge feeling.
    I would say that is a severe flare for me..

    But sometimes it can be mild with just frequency and burning...

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  • jubejube
    started a topic um, what is a flare?

    um, what is a flare?

    Ok... so this may sound like a dumb question... but im new to this
    My really only symptoms right now are urethral burning... I dont happen to have frequency issues currently. Sometimes I have an urgency concern, like if im shopping or something, it will strike me and i will get sweaty and panicky. But mainly i have urethral burning, sometimes when i urinate, sometimes when i dont.
    I have been trying the IC diet, avoiding acid foods, and chocolate (im not too happy about that). Sometimes after I eat, i still get burning in my urethral area. I was wondering, is this a flare? It passes, if i drink a big glass of water, or in time it just seems to go away...
    I also have some bloating in my abdmonen... feels as though im gassy, but im not.
    I have been reading the site, and i have noticed that people flare for months... so im confused as to whether or not what is happening to me would be a flare?
    Also wondering if anyone else out there seems to have this mild version of IC, or whether i have been misdiagnosed? I had a cysto, and following my uro told me i had IC. But no more info than that, other than try the diet and im on Macrobid, as he found some inflammation.
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