I was diagnosed with IC 4 months ago and have been on Elmiron with little result. I'm so tired of pain and going to the bathroom 20+ times a day and leaking all the time. I usually have to self-cath once during the night but I don't know if that's due to progressive multiple sclerosis (20+ yrs) or the IC. I also have an ileostomy from ulcerative colitis 30+ yrs ago.
Anyway, the doc says that if I don't improve the next step would be bladder removal! I'm not a candidate for some kind of bladder reconstruction because I don't have any lower bowel. So that leaves another ostomy. 2 bags handing off my abdomen! I don't think I can cope with that. I'd rather just throw in the towel. Between multiple sclerosis, IC and the ostomy I already have, I just don't think I have it in me to cope with any more.
The pain is really dragging me down. I can't take any opiods because I vomit my brains out. Utram and Darvocet don't work. I'm maxed out on Motrin and Tylenol. Any ideas?
No coffee, chocolate, fresh fruits, what's the point of even trying? MS already blew my quality of life all to he**. Now it's daily pain (on top of the joys of MS pains), no good food, no coffee (which I used to help with the overwhelming fatigue I have with MS, plus it tastes good), and living in the bathroom. I'm so tired that I just want to stay in bed.
Sorry to rant, but my poor husband dosn't deserve anymore of my health woes. This seemed a safe place to do it. I dont' know what I want from any of you it was just good to let off steam. I'm feeling hopeless and overwhelmed at this point.
Meds:
Daily injections of Copaxone for Multiple Sclerosis
Tegretol for MS pain, Zanaflex and Klonopin for MS spacisity, Elmiron, Zocor, Lexapro.
Anyway, the doc says that if I don't improve the next step would be bladder removal! I'm not a candidate for some kind of bladder reconstruction because I don't have any lower bowel. So that leaves another ostomy. 2 bags handing off my abdomen! I don't think I can cope with that. I'd rather just throw in the towel. Between multiple sclerosis, IC and the ostomy I already have, I just don't think I have it in me to cope with any more.
The pain is really dragging me down. I can't take any opiods because I vomit my brains out. Utram and Darvocet don't work. I'm maxed out on Motrin and Tylenol. Any ideas?
No coffee, chocolate, fresh fruits, what's the point of even trying? MS already blew my quality of life all to he**. Now it's daily pain (on top of the joys of MS pains), no good food, no coffee (which I used to help with the overwhelming fatigue I have with MS, plus it tastes good), and living in the bathroom. I'm so tired that I just want to stay in bed.
Sorry to rant, but my poor husband dosn't deserve anymore of my health woes. This seemed a safe place to do it. I dont' know what I want from any of you it was just good to let off steam. I'm feeling hopeless and overwhelmed at this point.
Meds:
Daily injections of Copaxone for Multiple Sclerosis
Tegretol for MS pain, Zanaflex and Klonopin for MS spacisity, Elmiron, Zocor, Lexapro.
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