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Stress made me flare after remission...HELP!

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  • Stress made me flare after remission...HELP!

    I was in a "remission" for weeks. Still took my meds, had reduced some mg. but all was good. NO PAIN!!!!!! Then, I had the worst week of my life about 2 weeks ago and BAM, crippling pain. I'm not crippled in pain anymore, but I still have IC pain symptoms everyday. I have started going for my rescue instillations again and had a PT appt.

    I cannot believe that a stressful episode that was out of my control could set me back for this long. Has this happened to anyone else? Will I get better again? I'm trying to reduce my daily stress level and resume normal activities but this "twinge" in my bladder drives me insane!!!!

    Will they ever find a cure for this dreadful disease!?

  • #2
    HI! Sorry to hear about the rotten flare. You said you'd reduced some mg. of your meds? Maybe you reduced too much thinking you were doing better? I've heard people on here say that they felt so remission.....and then they cut back on their meds.....and within a while......they were hurting all over again. I hope that isn't your problem......but might we worth looking into if you continue to have that IC pain. Roxie

    Double Spinal Cord Stimulator surgery 8/09
    Unsuccessful MiniArc sling surgery 12/07
    Dx'd Hypothyroid
    Dx'd Chronic Axonal Neuropathy & Myopathy
    June 2007
    Dx'd IC May 2006 (after suffering for 25+ yrs!)
    First Cysto 1979
    First Hydro 1981 (Many treatments since then!)
    Collagin"Durasphere" injections for urethra
    Gall bladder surgery Aug. 2004
    Gastric Bypass Dec. 2004
    Dx'd: Barrett's Esphogus July 2004
    Dx'd: Vaginal Atrophy 2005
    Bladder surgery 2000
    Dx'd: IBS 2000
    Hysterectomy (fibroids) 1999
    Laminectomy 1989
    Dx'd: Degerative Disk Disorder 1989

    For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
    I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra's amazing stuff!!:woohoo:


    • #3
      sorry you're flaring. I'm right there with you. I was in remission and a really stressful couple of months brought IC back with a bang. I'm still trying to get it under control. It bites! Wish I had more answers for you.


      • #4
        Stress IS my biggest cause of flares. I can see how it could bring you out of remission. At least you got there before so you know that your body is capable of it. Hopefully if you start doing everything the same way you did when you went into remission before it'll happen again.

        I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
        1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
        2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
        I have tried every oral medication as well as rescue instills and DMSO.

        I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

        Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
        Also proud mom to the best Bullmastiff on earth, Claus