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  • Peeing all night long

    I've been feeling really good for several weeks but last night it felt like i was peeing all night long, although actually it was only 8 times (once an hour, like clockwork). I've been trying to figure out why this happened so that i can maybe prevent it again. It seems to happen every few months and i don't have irritation, just frequency and the passing of lots of clear urine. It's almost like my body was trying to flush something out, or maybe my kidneys were doing something in reverse - like hanging onto the toxins but getting rid of the water. I hadn't been drinking a lot or eating anything diuretic. In fact yesterday i didn't eat or drink much all day because my IBS was playing up. I had diarrhea several times but eventually 4 Pepto-Bismol pills did the trick. Today everything is back to normal, which for me is peeing 5 or 6 times during the day. I usually drink lots of water during the daytime but stop in the early evening because i don't want to be up all night.

    I once asked my doctor about this passing loads of clear urine without having had a lot to drink, and he was also puzzled by it. He said he would ask his colleagues if anyone knew the cause but apparently nobody did. Has anyone here experienced this? I don't think it's a reaction to the Pepto because it's never caused it before, and there have been times this has occurred when i haven't taken Pepto, or maybe stress-induced. I have a stressful few days coming up which i have been worrying about.

    Any ideas, anybody?
    I'm sick of being sick. Fed up with all this autoimmunity/allergies stuff: migraines, eustachian tube dysfunction, asthma, peripheral neuropathy with polyneuritis, Raynaud's disease, acne rosacea, Hashimoto's thyroiditis, IBS (diarrhea type), IC, one deformed kidney, Von Willebrand Disease (a bleeding disorder), drug allergies, food intolerances, life intolerance! And besides all that, i'm missing my tonsils, my gallbladder, my uterus and ovaries... and probably a gazillion brain cells

  • #2
    Most of us go to the bathroom every hour on the hour I just think it's part of the crummy IC. Today is especially bad for me. I have been going every 30 mins. or so. It is driving me NUts....
    Sometimes I think that there was something in what I ate that I didn't know was in there. But it has been a BAD day. I just can't stop going. (Also Clear )
    Endometriosis,Fibromyalgia, Severe Adhesions-
    3 c-sections, Particial Hysterecotmy,Laporoscopy for cysts, Appendectomy, R-ovary removed, IBS, Acid Reflux, Asthma, and the worst of all IC


    Patty

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    • #3
      Have you ever been tested for diabetes? Just a thought....IC does make you pee a lot though. One never knows why!
      Meds I take:
      Elmiron, Elavil, Vagifem- for IC
      Albuterol, Flovent, Atrovent- for Asthma and lung problems
      Paxil, Clonazepam- for depression and Anxiety
      Atenolol- for rapid heart rate
      Nexium- for Gerd
      Levothyroxin- for Hypothyroidism
      Lasix, Pottasium- for edema
      Lipitor- for High Cholesterol
      I coated aspirin
      02 at bedtime

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      • #4
        There have been two nights for me in the past two months where I had to get up three or four times in the night to go the restroom. My normal is maybe one maximum. Both of these times I was stressed out. Do you put a heating pad on as soon as your bladder starts acting up to see if that will help?
        Diagnosed with IC - March 2007
        Diagnosed with vulvodynia - June 2007
        -Lots of prayer
        -Taking Elmiron and Hydroxzine (stoppped because of pregnancy)
        -Taking Prelief as needed (stopped because of pregnancy)
        -IC diet

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        • #5
          Well, i haven't been tested for diabetes since January but i'm pretty sure that's not it as this has been on and off since way before then.

          I don't use heating pads because they tend to aggravate my sciatica, which is much more painful than IC so i don't want to upset anything in that area.

          I guess this is one of those strange things i may never know the answer to.

          Thank you for your replies
          I'm sick of being sick. Fed up with all this autoimmunity/allergies stuff: migraines, eustachian tube dysfunction, asthma, peripheral neuropathy with polyneuritis, Raynaud's disease, acne rosacea, Hashimoto's thyroiditis, IBS (diarrhea type), IC, one deformed kidney, Von Willebrand Disease (a bleeding disorder), drug allergies, food intolerances, life intolerance! And besides all that, i'm missing my tonsils, my gallbladder, my uterus and ovaries... and probably a gazillion brain cells

          Comment


          • #6
            When I don't do my treatment I go every 30-45 minutes day and night. When I do treatment I normally every 2-3 hours during the day and I go 1-2 at night.

            My urine is always clear or very light yellow. That is what is normal for me. Urogyne said that isn't "rare" in paitents with IC but it is a little unusual. It is sometimes hard to see it in the catheter. If mine is "yellow" it means I haven't had enough fluid for the day. And believe it or not that is about the only time I have "pain".
            TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
            My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

            Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
            Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
            I post to encourage and offer total support for rescue instillations.
            Find me on facebook: L. Clark Thomas
            Louann

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            • #7
              Each time you do this check to see what you ate that day.. Your diet can cause this.. I know if I eat certain foods during the day it can cause me to go all night

              Ronda
              Hugs
              Ronda

              ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


              Link to Patient Handbook:
              http://www.ic-network.com/handbook/

              Diet Reference Sheet:
              http://www.ic-network.com/diet/icndi...tsheet0909.pdf

              Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

              Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

              Meds I have Tried:
              Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
              Lexapro< Bad reaction to this med!
              Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

              Dx With IC in Nov 2006 with Hydro/Cysto
              Hydro/Cysto Caused Bladder to Rupture.

              Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



              ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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              • #8
                Personally it just seems to be part of the flaring process for me. I've never been too bad about going at night, but this morning for instance I only had a little bit to drink to take my meds and I've been peeing alot, maybe every 30 minutes. My urine is not yellow, I just attribute it to flaring.
                Christine



                I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                I have tried every oral medication as well as rescue instills and DMSO.

                I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                Also proud mom to the best Bullmastiff on earth, Claus

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                • #9
                  If I wake up, I have to pee, but it doesn't wake me up. I would say maybe 2 to 3 times a night. In the beginning when I started having symptoms, I would go and then feel like I would have to go again right after and I think it was due to the energy drinks I was drinking. If I drink water with 1/ 2 teaspoon of baking soda when I feel frequency coming on, it seems to help.

                  Comment


                  • #10
                    "I know if I eat certain foods during the day it can cause me to go all night"

                    Leelee, which foods in particular do this to you? I know different foods probably affect different people, but knowing some of them would be a good starting point for me.

                    I'm sick of being sick. Fed up with all this autoimmunity/allergies stuff: migraines, eustachian tube dysfunction, asthma, peripheral neuropathy with polyneuritis, Raynaud's disease, acne rosacea, Hashimoto's thyroiditis, IBS (diarrhea type), IC, one deformed kidney, Von Willebrand Disease (a bleeding disorder), drug allergies, food intolerances, life intolerance! And besides all that, i'm missing my tonsils, my gallbladder, my uterus and ovaries... and probably a gazillion brain cells

                    Comment


                    • #11
                      The ICN patient Handbook may be of some help for you as well as talking to your Doctor about what you can do to feel better. There is a whole section regarding diet and IC: http://www.ic-network.com/handbook/diet.html#topfive

                      Kara
                      Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                      "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                      I also have some journals of my journeys, past and some present at:
                      http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                      Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

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                      • #12
                        Yes, I have passed loads of clear urine. If I eat peanut butter or chocolate or something that isn't good for me, but doesn't make my urge go through the roof, I will pee often due to a larger volume in urine. It's like my kidneys are diluting something bad and my bladder is unable to hold much volume (150cc's was my max).

                        I'm with you on that. I get it after something questionable was consumed... but when something bad bad bad (like coffee or tea) is consumed, I'm peeing 1 teaspoon at a time every 5 minutes for hours. I don't sleep at all. So, there is a difference... It's weird.
                        [SIZE="1"][B]Be well, Alyssa :hi:[/B]

                        [

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                        • #13
                          I've been avoiding caffeine and other acidic foods and drinks for months now, and i also take Prelief, and generally everything is fine. It's just this weird thing that happens every now and then that doesn't seem to have any cause.

                          Oh well, things could be worse... at least it's not painful when i pee volumes like that!
                          I'm sick of being sick. Fed up with all this autoimmunity/allergies stuff: migraines, eustachian tube dysfunction, asthma, peripheral neuropathy with polyneuritis, Raynaud's disease, acne rosacea, Hashimoto's thyroiditis, IBS (diarrhea type), IC, one deformed kidney, Von Willebrand Disease (a bleeding disorder), drug allergies, food intolerances, life intolerance! And besides all that, i'm missing my tonsils, my gallbladder, my uterus and ovaries... and probably a gazillion brain cells

                          Comment


                          • #14
                            If I don't drink enough water during the day it seems to be worse then at night.
                            I do go plenty of times anyway but this does help somewhat.

                            Take care, Trishann

                            Comment


                            • #15
                              Hi,
                              You might want to have your doctor check your thryroid. I have Grave's disease (on top of the IC), which is hyperactive thryoid disease. (not HYPOactive, which is the opposite), In Grave's, the body metabolism is very speeded up, even urine output, and since I developed Grave's, I've noticed a worsening of my IC, with more urine being produced or at least that's what it feels like to me. Urine output is very complex, and a variety of hormones stimulate the kidneys to produce urine. You might want to have more sophisticated bloodwork or other tests of your kidneys done just to make sure there's no underlying kidney problem. I'm surprised that a urologist wouldn't know about the various health problems that can cause the kidneys to overact like that. (yes, diabetes being another one with urinary frequency). In classic kidney disease (not saying you have that at all), the kidneys are trying to dilute extra toxins in the bloodstream because the kidneys are working properly, and they produce a lot of urine doing that. I mean, there's lots of different reasons for increased urine production. I've also noticed more urine production before and during my period - again, I think there may be some hormone tie-in on that. Sometimes I wonder about doctors......

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