I was diagnosed a year ago with I.C. I was also diagnosed with fibromyalgia, pelvic muscle atrophy, myofascial pain syndrome and short type pelvic floor.I have had 4 surgeries (exploratory surgery, hysterectomy, an operation for adhesions and a repair for a rectocele) and multiple procedures (bladder infusions, trigger-point injections, trigger point physical therapy and also nerve blocks) I am on all different kinds of medications. I also went 4 months having to self-cathering myself because I went from urinating to much to not being able to urinate on my own. I have been to 3 different urologists who just don't understand I.C. I am now seeing a urogynecolgist and also a pain management doctor. I lost my job after working there for 14 years. I had to get a lawyer in order to win my appeals for long term disability. After six months I finally started to get long term disability. I applied for social security back in January and haven't heard if I was approved or denied. The hardest part is trying to get my doctors to see right now that I just can't work. It is very hard for me to sit, stand or walk for any length of time. I am going to see a psychiatrist because the only thing I seem to do is cry. I was hoping that someone could help me with finding a doctor in Mass that is understanding with I.C. patients. Also if there is anyone who is going through the same things I am. Thank goodness I have a very understanding husband. We have not had sexual relations in a year, because of all the surgeries and that I am afraid because of the pain. PLEASE ANYONE WHO READS THIS AND IS GOING THROUGH THE SAME AS MYSELF, PLEASE RESPOND.
THANK YOU,
JOANNE
THANK YOU,
JOANNE
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