Announcement

Collapse
No announcement yet.

Hello fellow ICer's

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Hello fellow ICer's

    My name is Angela.I am twenty four years old from TN.I have had bladder infections as a young child but they were easy to get rid of and didn't really affect my life.A quick course of antibiotics and I was better.

    I had previously tried to post my story a few minutes ago and had some technical issues so I'm going to make it a little bit shorter this time and remember to copy/paste it somewhere else in case it doesn't end up getting posted again.

    Within the past 1-2 years I have been having recurrent bladder infections/UTIs that have been resistant to antibiotics and they wouldn't go away.I have been to numerous ERs,walk in clinics,and my primary care Dr about the issue. I have peed in a cup more times than you can count for urinalysis. None of the medicines they were using seemed to help or they would help for a little bit and then the infection would be right back again.
    (Cipro,Macrobid,Doxycycline and more antibiotics). I tried what you normally try the natural remedies at home cranberry juice,etc nothing worked.I would never get any prescription pain medicines.I would be told to take over counter ones which would not ease the pain at all.

    With each one of these current episodes,I would be in excruciating pain,be severely dehydrated,not able to pee or it hurt when urinating,sometimes a low grade fever,headache,fatigued.If I was lucky,they would hook me up to a saline IV for the dehydration,prescribe me antibiotics yet once again and send me on my way.

    Last week,I finally got fed up.I couldn't stand the constant pain anymore.I got an appointment with a Dr. who does gynecology and urology.He did a well woman exam,ran STD tests,and looked at my bladder.Asked for me to pee in a cup so he could send it off and culture it.He gave me some clindamycin vaginal insert cream and told me the proper amount of Motrin to take for the pain.I was feeling quite confident with this new doctor because he actually listened to me and didnt give me antibiotics by mouth like the rest of them did.Using the cream at home made me feel a little better,but not much.

    His nurse was supposed to call me back with my lab results,prescriptions a few days after the appointment. I never received a call so I decided to take matters into my own hands. I called the lab and they said they had faxed the results to the dr's office.So I decided to go in person to the dr's office.I was met by a frantic nurse who called me Jessica *rolls eyes* who says she's been trying to call me all day.

    Anyway,she said I still had the infection and the Dr wanted me put on Macrobid again.I burst out in tears.The nurse knew my story how long I've dealt with this and Macrobid wasn't going to work.I asked her to call the doctor for me.I literally begged him to admit me to the hospital so I could get some tests run on my bladder/see whats going on with my body.At first he was hesistant to admit me saying that insurance wouldn't pay or I would receive thousands of dollars in hospital bills at that point I told him I didn't care about money. My health was at stake and this had been going on far too long without a resolution out-patient wise.

    He agreed to admit me.I stayed in the hospital for 2 days.Found out all STD tests were negative so that eased my mind.They treated me with IV saline,percoset for the pain and IV vancomyacin a very strong antibiotic.It completely cured the infection. They did a catheter and drained my bladder,the bacteria was completely gone out of my system based on the urinanalysis.I was overjoyed.I was in no pain and felt like myself again.

    I strongly believe if I hadn't been admitted to the hospital, I would still have the infection,maybe worse.

    UPDATE AS OF NOW:So,after I was discharged from the hospital,the dr said he wanted me to come back a few days later to the hospital and let him put me to sleep and do a procedure called a cytoscopy.I said OK.Went in for the procedure a few days later.They told me after the procedure it would be normal to feel some pain.The doctor determined I had cystitis after doing that procedure.It's been 3 days since the procedure.I am in pain and feel like my infection is coming back,either the bacterial one or a yeast infection.I have a fever again I feel like I'm back at square one.My doctor said the infection was behind my bladder.Thats why it was so hard to get rid of.He wants to see me in his office in 1-2 weeks to do some 'bladder treatments'?Said this may take several months to resolve. But from what I've read it can be a lifelong problem? How am I supposed to be able to enjoy sex with my future husband if I can't even pee? Will I be able to have babies?

    I am supposed to be starting my dream job Valentines Day week but at this point I do not know if I will be able to go in to work because of all the pain I'm in.I am on Zoloft and Klonopin because I have had a rough past 2 years not related to this health problem but family/relationship issues.I recently rededicated my life to God cuz I couldn't handle it all anymore on my own.I need all the prayers I can get.

    Thanks for listening/reading my story.I'm glad I found this forum.I definitely need some support from others going through the same thing.
    Newly IC diagnosed as of February 2011.

    Medications I'm on that seem to work:
    Zoloft- one once a day
    Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

    Failed Meds:
    Elmiron-after 4 months,digestive side effects got to be too much
    tramadol-allergic
    DMSO treatments(5-6)
    probiotics

    THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
    AROMATHERAPY-candles,incense
    Village Naturals Aches and Pains Peppermint Bath Salts
    Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

    ACUPUNCTURE/HERBS
    Significant pain relief so far.

    MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

    Add me on facebook Angela Hasic

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    Lord, make me an instrument of your peace;
    where there is hatred, let me sow love;
    when there is injury, pardon;
    where there is doubt, faith;
    where there is despair, hope;
    where there is darkness, light;
    and where there is sadness, joy.
    Grant that I may not so much seek
    to be consoled as to console;
    to be understood, as to understand,
    to be loved as to love;
    for it is in giving that we receive,
    it is in pardoning that we are pardoned,
    and it is in dying [to ourselves] that we are born to eternal life.

  • #2
    So sorry Ang, glad you found this site. Did they definitely DX you with IC or "regular" cystitis? If you are running a fever that is usually not indicative of IC, but infection. And if you have been taking the anitbiotics for so long, you may have a resistance to some.

    Glad you took matters into your own hands and insisted on treatment. Good girl! Is this doc familiar with IC? And how familiar? You need to stay strong and get to the bottom of this and ask questions. We do not need to be confrontational, only let them know that we know our bodies, and we know what it COULD be and what it is.

    Wish you luck at getting to the solution, just sounds different. Read up some more and go back totally informed. And stay away from that cranberry juice. Jill, wife of Bob

    Comment


    • #3
      jill, he diagnosed interstitial cystitis because this is a recurring thing. if it was just a regular bladder infection it would not have been going on for this long.i think it is genetic. my mother had these throughout her lifetime also. i am staying away from the cranberry juice because it doesnt work.this doc is one of the best urologists/gynos in town and he treats many urological conditions including IC.all i know is theres something wrong with my bladder.we cant find a reason for why the infections were/are recurrent.
      Newly IC diagnosed as of February 2011.

      Medications I'm on that seem to work:
      Zoloft- one once a day
      Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

      Failed Meds:
      Elmiron-after 4 months,digestive side effects got to be too much
      tramadol-allergic
      DMSO treatments(5-6)
      probiotics

      THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
      AROMATHERAPY-candles,incense
      Village Naturals Aches and Pains Peppermint Bath Salts
      Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

      ACUPUNCTURE/HERBS
      Significant pain relief so far.

      MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
      ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
      ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

      Add me on facebook Angela Hasic

      ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
      Lord, make me an instrument of your peace;
      where there is hatred, let me sow love;
      when there is injury, pardon;
      where there is doubt, faith;
      where there is despair, hope;
      where there is darkness, light;
      and where there is sadness, joy.
      Grant that I may not so much seek
      to be consoled as to console;
      to be understood, as to understand,
      to be loved as to love;
      for it is in giving that we receive,
      it is in pardoning that we are pardoned,
      and it is in dying [to ourselves] that we are born to eternal life.

      Comment


      • #4
        IC causes alot of utis stay on the ic diet do not cheat very important! Your uro may give you rescue treatments to help with the pain or he may want to try DMSO. Thier are many treatment plans and this should not interfere with you wanting to have a baby.

        I was like you in excruitiating pain for three solid months before I found the right uro.

        He found the right DMSO cocktail for me and I am for the most part so far 99% well. It takes 6 treatments for full effect however, if you get a uti they have to clear it up before they can continue the treatments.

        It happened to me once during my treatments, so I had to wait.

        Do not get discouraged every icer is different and if you have a good uro he or she will find the right treatment.

        I pray and hope you get the correct treatment soon, you are not alone feel free to ask questions of anything, we are all here for support.
        <center>
        <a href="http://s1086.photobucket.com/albums/j441/linda5552/?action=view&amp;current=Picture005.jpg" target="_blank"><img src="http://i1086.photobucket.com/albums/j441/linda5552/th_Picture005.jpg" border="0" alt="Photobucket" ></a>
        </center>

        Comment

        Working...
        X