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Newly diagnosed

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  • Newly diagnosed

    Hello, I was just diagnosed a week ago. I have visited the site a few times before because my urogynocologist had mentioned IC as a possibility. I was curious, but didn't really expect to be diagnosed. I have been fighting pelvic pain for over a year now, but blamed it all on adenomyosis and pelvic organ prolapse. I had a hysterectomy with posterior repairs a week ago. My doc scheduled a hydrodistention w/cystoscopy at the same time since I was already going to be under. I now have two sheets of pics showing all of these angry red spots all over my bladder . I honestly thought all of my pain was from my gyno issues. Unfortunately not. My daughter has had wetting issues for years, and the doc thinks she may have the same thing, so....I have joined, and am doing lots of research to see what we can do to help ourselves. The dietary changes are going to be difficult, but I am glad this site is here to help!

  • #2
    to the IC Network family. I'm glad you found us.

    Warm healing thoughts headed your way,
    Stay safe

    Elmiron Eye Disease Information Center -
    Elmiron Eye Disease Fact Sheet (Downloadable) -

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help:


    Diet list:

    AUA Guidelines:

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool


    • #3

      Sorry for the reason you had to come but so glad you found a fellowship of understanding and the help you need to navigate through life with IC.

      Once again, welcome and have the best day you possibly can.

      Praying for the cure


      • #4
        Glad you were able to find this site & forum and get diagnosed. I got those same red spotted pictures too. Hopefully, it turns out that your daughter doesn't have it.
        Dx with IC 3/2009 - Cysto w/Hydro
        Meds: Elmiron (400mg), Atarax (10mg), Elavil (20mg), Pyridium (as needed)


        • #5
          sorry for your pain. try to stay positive and remember that life doesn't end with IC. A good life is still possible.
          What helps
          Elmiron 200 mg bid
          Wellbutrin XL anxiety and depression
          Oxybutynin ER 10 mg

          tried and failed
          Cardura, Hytrin, Flomax, Prosed DS, Vesicare, Pyridium, Cystoprotek (caused GI problems), Lyrica, Pamelor

          "We can't wait until the storm is over. We need to learn to dance in the rain."