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Instillations and urethral discomfort

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  • #1

    Instillations and urethral discomfort

    I am trying to decide whether to start instillations. My biggest problem is frequency. I'm taking elmiron for almost 90 days now, and may be seeing some reduction in pain. Hydrozyzine which I started a couple of weeks ago seems to be helping me with swelling...

    I'm afaid of the instillations because my urethra is so sensitive. I had a lot burning when I was first diagnosed...My Urogyn prescribed a compounded cream with amitriptiiyne and thankfully, I used a only a small amount to test it. About 30 minutes later, boy was I burning..

    So, what is the biggest benefit of instillations? I'd like to get a reduction in frequency, but I know the catheter is going to be a problem...
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  • #2
    almost same boat

    I have been on the right amount of elmiron for about 5 months now. No noticeable difference. I just started instillations myself. only been 2 times. My main problem is frequency as well. The 1st 2 instillations gave me relief for 24 hrs or so. My main problem is frequency and urgency and doc says i have to do instillations twice a week to notice cumulative efffect. Im a male so catheter isnt fun but im gonna keep trying. if this doesnt work its either interstim or stay suffering. hope they work for you

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    • #3
      If you decide to try instillations, I suggest you ask that they use a pediatric catheter. Also be sure they use an analgesic on the catheter so it won't hurt going in. Instills do help lots of folks.


      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
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      • #4
        Yes, I agree with Donna they can use a real small cat.
        the DMSO helps coat and heal the bladder and somes instills have a numbing agent in them. They work well for me if you have a good nurse you hardly even notice being cath.
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