Announcement

Collapse
No announcement yet.

Instillations and urethral discomfort

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Instillations and urethral discomfort

    I am trying to decide whether to start instillations. My biggest problem is frequency. I'm taking elmiron for almost 90 days now, and may be seeing some reduction in pain. Hydrozyzine which I started a couple of weeks ago seems to be helping me with swelling...

    I'm afaid of the instillations because my urethra is so sensitive. I had a lot burning when I was first diagnosed...My Urogyn prescribed a compounded cream with amitriptiiyne and thankfully, I used a only a small amount to test it. About 30 minutes later, boy was I burning..

    So, what is the biggest benefit of instillations? I'd like to get a reduction in frequency, but I know the catheter is going to be a problem...

  • #2
    almost same boat

    I have been on the right amount of elmiron for about 5 months now. No noticeable difference. I just started instillations myself. only been 2 times. My main problem is frequency as well. The 1st 2 instillations gave me relief for 24 hrs or so. My main problem is frequency and urgency and doc says i have to do instillations twice a week to notice cumulative efffect. Im a male so catheter isnt fun but im gonna keep trying. if this doesnt work its either interstim or stay suffering. hope they work for you

    Comment


    • #3
      If you decide to try instillations, I suggest you ask that they use a pediatric catheter. Also be sure they use an analgesic on the catheter so it won't hurt going in. Instills do help lots of folks.


      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        Yes, I agree with Donna they can use a real small cat.
        the DMSO helps coat and heal the bladder and somes instills have a numbing agent in them. They work well for me if you have a good nurse you hardly even notice being cath.
        <center>
        <a href="http://s1086.photobucket.com/albums/j441/linda5552/?action=view&amp;current=Picture005.jpg" target="_blank"><img src="http://i1086.photobucket.com/albums/j441/linda5552/th_Picture005.jpg" border="0" alt="Photobucket" ></a>
        </center>

        Comment

        Working...
        X