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New Here, Possibe IC, Need Help.

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  • ICNDonna
    replied
    Some of us get relief for many months after a hydrodistention. If you have tried other treatments with no success, it might be worth trying again. It's a decision you will need to make for yourself. Whatever you decide, I hope you feel better soon.

    Sending healing thoughts,
    Donna

    Leave a comment:


  • purpleorcid
    started a topic New Here, Possibe IC, Need Help.

    New Here, Possibe IC, Need Help.

    Unhappy New Here, Possibe IC, Need Help.
    ok so here is my story: my name is dawn, iam 24 years old, i have 2 children, and i had a complete hysterectomy at age 17. i have had many surgeries for endometriosis, along with a gallbladder removal and also my appendix, i have had a total of 23 surgeries in my short life span. i have always had problems with my stomach or so i thought it was my stomach, also had many many bladder infection or so i thought were bladder infections. it would feel like an infection then 2-3 days later it would be gone. i began to notice that almost every time i ate my stomach would swell up like a balloon. i began to have abdominal pain, when i bent over or got up from sitting, when lifting, or during intercourse. the pain got so bad i went and seen my regular M.D, she sent me to a gyno, and he said that the scare tissue that i had, had made my bladder shrink down in size, i dont know how accurate this is, but its what i was told. so i had my first hypertension done, i would up not being able to urinate for over a week on my own, i had to have 3 separate catheters put in so that i could go to the bathroom. after about a week and a half i began to go on my own. the pain eased up some after a few weeks, and it has been 7months since that surgery, and the pain is back with vengeance. my doc is thinking of preforming the surgery again, but i dont know if it is worth it or not,

    i have been reading this form, and reading all the stories of the people on here, and some have had to have it done many many times during there lives, iam just not sure if this is right for me, i have had so many surgeries during my life, that just thinking of another one makes me sick lol, iam not afraid of surgery since i have been having them since i was 15. iam just curious as to what else could be done? is there anything i should ask the doctor? because last time he didnt really tell me what was wrong, just sent me home with an IC diet sheet and told me to stick to it. i feel as though iam going crazy some days, not knowing, and having to make these choices on surgeries. could someone please give me some advice, or tell me what they did? thanks for listening to my story, i hope anyone else going through this is getting the help they need, and i will be praying for everyone on this network
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