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  • Horrible pain!

    The pain is insane! Doctor gave me Cipro but it's not an UTI, I'm going to ask for a referral to a urologist because I've been having IC symptoms for over 8 weeks now. I got it under control for a while by drinking lots of marshmallow tea, but after I took my ADD meds (Vyvanse) it came back.

    I can't focus at work because I'm hurting so bad. Yes, I have rxd. Vicodin but when I take it it makes me "looped" and I can hardly drive myself home.

    How do you all deal with this at work, managing family life etc.?

    I already take Wellbutrin XL 150 for depression but this is just making me want to drive off the cliff. I feel like my life has been ruined...can no longer enjoy things and dealing with daily pain is not fun!
    Last edited by ICNDonna; 02-23-2011, 03:50 PM.
    Dg. with IC 2/15/10

    Other conditions: depression, ADHD, lactose intolerance, celiac disease, chronic fatigue syndrome, IBS-C.

    Medications I'm on: Vyvanse 70mg, Xanax 1 mg as needed, Wellbutrin XL 150 mg, Vicodin 5/500 as needed for pain, Microgestin 1/20 continuously.

    Supplements I'm taking: Chondroitin Sulfate, N-acetyl-glucosamine, MSM 3gr/day, Pancreatin, B-5, Ester-C, and marshmallow root tea

  • #2
    I'm so sorry you're in this much pain! I think your asking for a referral to see a urologist is a great idea. You're right, if it's IC then Cipro is not going to be helpful. Hopefully with a uro you will get some answers. If it is IC there are treatments that can help and the sooner you have that diagnosis, the sooner you can begin them.

    Most of us do get better once diagnosed & treated. For many of us the IC diet can make a big difference so you might want to check it out if you haven't already.

    Vicki
    "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

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    • #3
      please dont panick. you may not necessarily have IC. A good urologist can rule other conditions out first. It could be kidney/bladder stones, yeast infections,bv, and stds can give people urinary symptoms also. it could also be stress who knows. good luck
      Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

      I have moderate-severe IC

      Currently stopped taking all medications due to pregnancy

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      • #4
        Hi,please don't feel like your life is ruined.I'm in a horrid flare right now too.I have new symptoms that I have never had before.The pain and pressure I feel,feels like a really heavy pressure in my "bottom"area.It not only hurts but sort of burns too besides the usual urethral burn and frequency.I had pressure before but only for a day or so around my period,not lasting.Sorry to ramble on but long story short........I've had IC for more than 10 years,maybe since childhood.I am 45 now.I started Atarax last spring and I improved a lot!I felt almost normal at times.My period usually flared me but didn't last real long.I think I ate too many "no"foods and I did exercises such as sit-ups and the"stepper."I am now finding out that those type of exercises are bad for PFD.There are things out there that can improve your symptoms.That is what is so tricky about treating IC,some of us have different symptoms and need different treatments.Hope you feel better soon and find a treatment that is right for you.Better days are ahead!Keep the faith.I know I am.

        Take care,
        Duana

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        • #5
          i know how you feel.thats all i can say.
          Newly IC diagnosed as of February 2011.

          Medications I'm on that seem to work:
          Zoloft- one once a day
          Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

          Failed Meds:
          Elmiron-after 4 months,digestive side effects got to be too much
          tramadol-allergic
          DMSO treatments(5-6)
          probiotics

          THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
          AROMATHERAPY-candles,incense
          Village Naturals Aches and Pains Peppermint Bath Salts
          Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

          ACUPUNCTURE/HERBS
          Significant pain relief so far.

          MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
          ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

          Add me on facebook Angela Hasic

          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
          Lord, make me an instrument of your peace;
          where there is hatred, let me sow love;
          when there is injury, pardon;
          where there is doubt, faith;
          where there is despair, hope;
          where there is darkness, light;
          and where there is sadness, joy.
          Grant that I may not so much seek
          to be consoled as to console;
          to be understood, as to understand,
          to be loved as to love;
          for it is in giving that we receive,
          it is in pardoning that we are pardoned,
          and it is in dying [to ourselves] that we are born to eternal life.

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          • #6
            Yes, I have tried Pyridium but got allergic reaction to it. It didn't help much anyway. I already had tests to rule out kidney stones, urinary tract abnormalities, multiple urine cultures, pelvic issues (transvaginal ultrasound, pap smear) etc. etc. all came back negative. Dipstick urine tests always shows blood though.

            I've done my research and feel 99% sure that it's IC. It feels as if someone was cutting up my bladder with a razor, when I go pee - it doesn't go easy, I strain and little urine comes out. It's all very, very painfull - almost like my kidneys were producing acid.
            Dg. with IC 2/15/10

            Other conditions: depression, ADHD, lactose intolerance, celiac disease, chronic fatigue syndrome, IBS-C.

            Medications I'm on: Vyvanse 70mg, Xanax 1 mg as needed, Wellbutrin XL 150 mg, Vicodin 5/500 as needed for pain, Microgestin 1/20 continuously.

            Supplements I'm taking: Chondroitin Sulfate, N-acetyl-glucosamine, MSM 3gr/day, Pancreatin, B-5, Ester-C, and marshmallow root tea

            Comment


            • #7
              Please do go see a urologist. It does sound like IC is a possibility. There are many treatments for us and the sooner you get started with a uro, the sooner you have an opportunity to feel better.

              One very important thing --- please don't strain to urinate --- it will only make the pain worse. Your doctor should be able to prescribe something to help relax your muscles so you can go without straining. There are several --- the ones that immediately come to my mind are cardura, hytrin, and flomax.

              I also suggest you give the IC diet a try. The link to the latest food list is in my signature below.

              Sending well wishes,
              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

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              • #8
                I have been there too. I just thought I'd mention that Cipro makes me feel horrible. I can't take that and it's probably not helping how you feel at all.

                When you get some definite answers, it will help a lot. I take Wellbutrin also, you may need something for anxiety. I sure do. Sometimes it is VERY hard to deal with, but I am sure things will look better tomorrow. Get some sleep, get to the urologist and try to follow the diet. I wish you all the best.
                treatment:
                -I follow the IC diet to the letter
                -acupuncture and chinese herbs
                -Prelief
                -UTA
                -instillations as needed
                -beginning yoga and specialized yoga for breathing and relaxation
                -Wellbutrin
                -Klonopin


                main symptoms: pain and burning

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