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  • #1

    Question about vitamins

    Hi!
    I'm just wondering how we're supposed to get the necessary vitamins etc that our bodies need if they hurt the bladder...?? My family is concerned because I quit taking my vitamin (I can only have flinstones kids ones because the adult ones upset my stomach) and keep telling me I'm not going to be healthy if I don't take them, especially since I'm also limiting my diet alot. For example, Vitamin C helps immunity but I've read all over that it hurts the bladder. But we need those antioxidants to stay healthy. Should I just take the vitamin anyway?
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    • #2
      I don't take regular vitamins. If you can tolerate children's vitamins I don't see a problem with that --- and some ICers can take them with no problem. Both my husband and I take a daily vitamin D, but that's because we live in Oregon, where we don't get enough sunshine in winter months. Vitamin C is a problem for many people with IC.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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        • #3
          I live in the south and take vitamin D daily also. One of my Dr's and articles I have read say that all of us could do with taking a daily vitamin D supplement. I also can take E, and am trying to slowly start a few other supplemental vitamins. I tried Esther C once and couldn't handle it, I might try again though since I am so much further along in my treatments.
          Link to the patient information, everything from What is IC? to Disability
          http://www.ic-network.com/patientlinks.html

          American Urological Association Clinical Guideline
          Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
          http://www.auanet.org/content/guidel...ent_ic-bps.pdf

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            • #4
              You can get most vitamins by eating a healthy diet.

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                • #5
                  Thanks for the replies. I think I'll try my kid's vitamins again and see if it affects me. I've been trying to eat healthy but I'm still struggling to get off the college student "can't afford anything decent" diet.. haha Oh, and I agree about the vitamin D. I think I might start taking extra of that. My mom has MS and one of her doctors just told us scientists are starting to see a link between that and a vitamin D deficiency (along with other diseases).

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                    • #6
                      I take D and the ester C doesn't bother me, maybe try that as it is buffered. You are probably fine with the flinstones. My son has an issue with vitamins himself so I give him kids vitamins. I think it has most of what adults need too.
                      Cindi


                      Gelnique for frequency/urgency - works great
                      Macrobid after sex
                      Prilosec, continuous birth control pills
                      synthroid .088mg, mucinex-d, restasis

                      Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

                      Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

                      IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
                      AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
                      AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
                      Great treatment flowchart on page 19 of the pdf

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                        • #7
                          i'm wondering about vitamins too. my drs office told me to start taking a multi vitamin daily but i've never really had a good relationship with TAKING vitamins or feeling like they helped me at all
                          Newly IC diagnosed as of February 2011.

                          Medications I'm on that seem to work:
                          Zoloft- one once a day
                          Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

                          Failed Meds:
                          Elmiron-after 4 months,digestive side effects got to be too much
                          tramadol-allergic
                          DMSO treatments(5-6)
                          probiotics

                          THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
                          AROMATHERAPY-candles,incense
                          Village Naturals Aches and Pains Peppermint Bath Salts
                          Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

                          ACUPUNCTURE/HERBS
                          Significant pain relief so far.

                          MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
                          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                          ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

                          Add me on facebook Angela Hasic

                          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                          Lord, make me an instrument of your peace;
                          where there is hatred, let me sow love;
                          when there is injury, pardon;
                          where there is doubt, faith;
                          where there is despair, hope;
                          where there is darkness, light;
                          and where there is sadness, joy.
                          Grant that I may not so much seek
                          to be consoled as to console;
                          to be understood, as to understand,
                          to be loved as to love;
                          for it is in giving that we receive,
                          it is in pardoning that we are pardoned,
                          and it is in dying [to ourselves] that we are born to eternal life.

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                            • #8
                              getting the vitamins in ur body

                              I too could not take vitamins, really messed up my bladder even the flintstone ones...I went on the net and got a list of all the vegetables and fruits I could eat and found out wat vitamins where in them for example SPINACH helps me alot it has LOTS OF VITAMIN C AND CALCIUM. Apples and apple sauce is good vitamin C. Carrots are good vitamin C. I take gel small vitamin D. I also take regular amount of tums 2 a day for calcium. If ur bladder can tolerate it CHERRIES ARE SUPER FOOD, and have lots of VITAMIN A and C. Cherries really boost ur immune system. For potassium if u cannot tolerate bannanas I eat baked potatoes or SWEET POTATOES have alot of potassium and other vitamins. I also find that I can tolerate the GUMMI CHILDRENS vitamins better now not the hard flintstones I read the label and they are loaded with lots of dyes and other ingredients. Hope this helps it took me awhile to figure all this out thru trial and error

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