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Bladder Inflamation?????????
Has anyone been told they had an inflammed bladder, but not IC? My urologist told me after my cystoscopy 3 years ago my bladder was inflamed. He said to just watch caffeine intake to avoid it flaring up. He said I do not have IC last week at my visit. He also said you have to have a biopsy on your bladder to diagnose. Any feedback? I don't want to have IC so this is good news, but I would like to know what is going on with me.
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It's possible that what you have is IC. If avoiding coffee is helping, you might want to have a look at the IC diet food list and eliminate other problem foods and drinks. You'll find the link in my signature below.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
Thank you. I've been following the diet for about a week. I noticed yesterday the frequency is reduccing. That is a blessing. Even if it isn't IC the diet can't be a bad thing. I am actually very surprised how much of my favorite foods are okay on the diet. Thanks for the advice!Comment
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I think this might fall under the heading of there's more than one way to skin a cat. I am not a doctor and have no idea as to what procedures are absolutely necessary, but I do know that a whole lot of people are diagnosed without ever having a biopsy. I wonder if this isn't more your doctor's diagnostic procedure of choice rather than a necessity?Originally posted by lovemyalliebug View Post
Did your doctor suggest what he thought the underlying cause of your inflammation might be? Having found the inflammation during a cysto three years ago kind of says to me you're dealing with some sort of long term condition.
It sounds like the diet may be helping you which is great. My IC seems to be mainly triggered by diet so that one little change has been a life-saver for me.
Vicki"The happiest people don't necessarily have the best of everything; they just make the best of everything they have."Comment
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I have only bladder inflammation and was told that this is mild IC.. what are your symptoms?Comment
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I think you might want to get a second opinion. Inflammation can be part of IC. Did you read the new guidelines? see my link below (there is a link to a PDF there also). You certainly don't need a biopsy to diagnose IC, there is a great flowchart on page 19 of the pdf that outlines diagnosing and treating IC. Do you have other symptoms?
I have been diagnosed mild IC based on symptoms of frequency, pressure, discomfort. My in office cystoscopy did not show anything unusual but I was started on the IC diet and elmiron and have been offered instillations which I am waiting to see if the Elmiron works for me.
The frustrating part of what he is telling you is that he won't treat you for it, is that correct?Cindi
Gelnique for frequency/urgency - works great
Macrobid after sex
Prilosec, continuous birth control pills
synthroid .088mg, mucinex-d, restasis
Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil
Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.
IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
Great treatment flowchart on page 19 of the pdfComment
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