Has anyone been told they had an inflammed bladder, but not IC? My urologist told me after my cystoscopy 3 years ago my bladder was inflamed. He said to just watch caffeine intake to avoid it flaring up. He said I do not have IC last week at my visit. He also said you have to have a biopsy on your bladder to diagnose. Any feedback? I don't want to have IC so this is good news, but I would like to know what is going on with me.
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Bladder Inflamation?????????
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It's possible that what you have is IC. If avoiding coffee is helping, you might want to have a look at the IC diet food list and eliminate other problem foods and drinks. You'll find the link in my signature below.
DonnaStay safe
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Originally posted by lovemyalliebug View PostHe also said you have to have a biopsy on your bladder to diagnose.
Did your doctor suggest what he thought the underlying cause of your inflammation might be? Having found the inflammation during a cysto three years ago kind of says to me you're dealing with some sort of long term condition.
It sounds like the diet may be helping you which is great. My IC seems to be mainly triggered by diet so that one little change has been a life-saver for me.
Vicki"The happiest people don't necessarily have the best of everything; they just make the best of everything they have."
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I think you might want to get a second opinion. Inflammation can be part of IC. Did you read the new guidelines? see my link below (there is a link to a PDF there also). You certainly don't need a biopsy to diagnose IC, there is a great flowchart on page 19 of the pdf that outlines diagnosing and treating IC. Do you have other symptoms?
I have been diagnosed mild IC based on symptoms of frequency, pressure, discomfort. My in office cystoscopy did not show anything unusual but I was started on the IC diet and elmiron and have been offered instillations which I am waiting to see if the Elmiron works for me.
The frustrating part of what he is telling you is that he won't treat you for it, is that correct?Cindi
Gelnique for frequency/urgency - works great
Macrobid after sex
Prilosec, continuous birth control pills
synthroid .088mg, mucinex-d, restasis
Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil
Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.
IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
Great treatment flowchart on page 19 of the pdf
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